True Science Stories

Just read Blue Machine by Helen Czerski 📚 This is how you write popular science: engaging, clear, authoritative. Stories, weirdness and passion. It’s about how the sea works - the depths and shallows, the currents, the chemistry, the thermodynamics. An all time favourite. #booksky

Funny you should say. There's definitely a market for it...

If patients are collaborators, not subjects, our science gets better. Full post here: buff.ly/1HEMbS6

Designing research with patients, not for them, is the shift we need. Read more here. #PatientOrientedResearch buff.ly/1HEMbS6

Stop designing research *for* patients. Start designing *with* them. Why engagement matters: 👇 buff.ly/1HEMbS6

Lived experience is data, too. My latest on building meaningful research partnerships with patients. buff.ly/1HEMbS6

Show, don't tell Some call it ‘copying’. I call it ‘sharing best practice’

Too often, patients are brought in after the fact. My latest explores what authentic engagement really looks like. #PatientPartners

Show, don't tell Some call it ‘copying’. I call it ‘sharing best practice’

“Patient-oriented research” means more than a patient on a panel. What does *real* engagement look like? 🧠 buff.ly/1HEMbS6

By a stunning coincidence, that's what I do....

From tokenism to transformation: my new post on how Canada’s research culture can center lived experience. buff.ly/1HEMbS6

New post on Substack: Why patient engagement is a scientific imperative, not just a policy expectation. #PatientEngagement #HealthResearch buff.ly/1HEMbS6

I'm a scicomms person not a scientist, but my experience working with researchers is that many pubs want to do their own. I think they consider many researchers' idea of 'plain' language is nowhere near plain enough!

#medicalwriting

New blog: Why researchers in 🇨🇦 need to stop seeing patient engagement as a courtesy and start treating it as a scientific imperative. buff.ly/1HEMbS6

Great to see this kind of question getting asked. Are you asking patients and public as well? It's a good way of checking for groupthink and the same old suspects popping up time after time.

Show, don't tell Some call it ‘copying’. I call it ‘sharing best practice’

What if patient engagement in research wasn’t a box to check, but the backbone of better science? New post up now. 🔬👥

I messaged the show and was told 'it was a joke'. It'll match their reporting standards then...

The execrable Fi Glover has just said on her national radio show on Times Radio 'let's ignore the science and stick with the headline' after a respected neurologist pointed out the headline was wrong because it was based on a pilot study of 32 people and demonstrated nothing.

That’s what the rest of the world is doing in with trade agreements. That’s how you get out from under narcs - don’t play. MAGA are consciously working to flood the swamp. take up all the bandwidth. Let’s not let them. 2/2

Is there anything #scicomms on here that isn’t overwhelmed by the upshot of the orange toddler’s strop in the US. People are right to shout about it but another reaction has to be that the **rest of us** demonstrate that his tantrums don’t hold sway over the rest of the world. 1/2

Not just on the **how** either. The **why** is from literature too.

Sometimes cartoons work better than Substack posts apparently

The whole 'send out a zillion news releases' model is broken, I agree. But meeting client needs isn't going to change, because if they don't, they go bust. Clients are often woefully naive or paranoid about journalism and need educating too, or don't understand it's not part of their marketing dept.

Sat on both sides of that desk & feel your pain, but what journalists often miss is that a good story is secondary for PRs. It has to hit the client's needs first, and PRs have to meld the two sides. So from your expertise and experience what are 3 would be three short bullets to help PRs?

Brazil’s anti-vax disinformation economy — The Conversation Weekly

Catching up on podcasts and came across this, from the ever wonderful The Conversation. It traces how anti-vax misinfo spread in Brazil, and made money for people.

overcast.fm/+o7hLoXsGQ

Imagine being dead but still yelling at the TV every game day. That’s how you sell organ donation, folks. 🏆💀 #healthcareinnovation
#clinicaltrials
#clinicalresearch
buff.ly/vFIE6jR

Data may tell you what’s happening, but stories tell you why it matters. Time to frame your research like an epic tale of football fans and organ donations. #healthcareinnovation
#clinicaltrials
#clinicalresearch
buff.ly/vFIE6jR

Studies are full of facts, but people are full of stories. Learn why emotional campaigns (like immortal football fans) get better results than cold data.
#healthcareinnovation
#clinicaltrials
#clinicalresearch
buff.ly/vFIE6jR

Tolkien, football, and doctors—three things you never knew would boost your research sign-ups. Who knew the key to data-driven science was football immortality? ⚽💀 #healthcareinnovation
#clinicaltrials
#clinicalresearch
buff.ly/vFIE6jR

Want your research to stand out? Make it a competition. If it works for doctors to wash their hands, it can work for your study sign-ups.

#healthcareinnovation
#clinicaltrials
#clinicalresearch

Doctors love a challenge, especially if it involves a scoreboard. Who knew hand-washing could be a competitive sport? 🏆 #healthcareinnovation
#clinicaltrials
#clinicalresearch
buff.ly/vFIE6jR