If we aim to truly #PriortizePain, all experiences and communities must be engaged. At PEPR, weβre developing a culturally responsive framework for engaging Indigenous patients that bridges academic methodologies with Indigenous healing practices and knowledge systems.
#NPAW2025 #PeprPartnership
07.11.2025 21:06 β π 1 π 0 π¬ 0 π 0
This #NPAW2025, be mindful of the guidelines and frameworks that shape #patientengagement. #PEPRPartnership is conducting an interpretive synthesis to identify the assumptions underpinning PE frameworks in order to re-imagine what it might look like in ways that promote equity and decolonization.
07.11.2025 00:03 β π 1 π 0 π¬ 0 π 0
Have you seen the latest episode of #LivingProofPodcast?
Meaningful engagement is a call to recognized lived experience AS evidence. Thank you Jenny Lorca, for this perspective.
πYOUTUBE: youtu.be/bbGmm952tGY
πSPOTIFY: tinyurl.com/43z746tb
πAPPLE: tinyurl.com/4m2mbcmx
#PeprPartnership #NPAW2025
06.11.2025 17:01 β π 1 π 0 π¬ 0 π 0
This #NPAW2025, PEPR would like to emphasize how weβre identifying institutional interests that underpin #pain #research in Canada and exploring the social relations that organize the experiences of #PWLE of #ChronicPain.
#PrioritizePain #PeprPartnership
05.11.2025 21:57 β π 1 π 1 π¬ 0 π 0
Brokered dialogue study around the concept of Participant Engagement in Research | PEPR Partnership
Exploring how βpatient engagementβ is characterized and understood by those holding a range of perspectives in the chronic pain field.
#PeprPartnership aims to #PrioritizePain through our Brokered Dialogue project that aims to understand how #PatientEngagement is characterized & understood by those holding a range of relevant #ChronicPain perspectives.
Learn about the project: www.pepr-partnership.org/projects/bro...
#NPAW2025
05.11.2025 15:40 β π 1 π 0 π¬ 0 π 0
YouTube video by PEPR Partnership
PODCAST Episode 2, Part 1: Why Do We Need and EDID Lens in Pain Research?
PEPR (Partnership for the Engagement of People in Pain Research) is funded by the Social Sciences and Humanities Research Council of Canada @sshrc-crsh.canada.ca
04.11.2025 22:34 β π 1 π 0 π¬ 0 π 0
YouTube video by PEPR Partnership
PODCAST Episode 2, Part 1: Why Do We Need and EDID Lens in Pain Research?
ποΈEpisode 2 of LIVING PROOF: Experience as Evidence is here!
πYOUTUBE: youtu.be/bbGmm952tGY
πSPOTIFY: open.spotify.com/episode/568n...
πAPPLE: podcasts.apple.com/ca/podcast/p...
Please subscribe, and stay tuned for part 2!
#PeprPartnership #NPAW2025
04.11.2025 22:34 β π 2 π 0 π¬ 1 π 0
PEPR Partnership supports meaningful engagement in #ChronicPain research in ways that move beyond the individual towards communities. Through community consultations, weβre learning collaboratively & carefully how, when & where to engage #PWLE of #pain & marginalization.
#NPAW2025 #PeprPartnership
04.11.2025 16:53 β π 1 π 0 π¬ 0 π 0
ποΈPODCAST PREVIEW
Living Proof: Experience as Evidence in Pain Research
Episode 2: Why Do We Need an EDID Lens in Pain Research?
We can't wait to share the latest episode of #LivingProofPodcast with you tomorrow. Stay tuned!
#PeprPartnership #NPAW2025
03.11.2025 22:26 β π 3 π 1 π¬ 0 π 0
Putting the Pieces Together | Pain Canada
PEPR is proud to support the Putting the Pieces Together Conference. Tune in now, and throughout the week. You can find more information here: www.paincanada.ca/events/putti...
03.11.2025 18:23 β π 3 π 1 π¬ 0 π 0
It's National Pain Awareness Week!
Our systems of care can be improved to help the 8M Canadians with pain to live better. This #NPAW2025, look at how far we've come in the implementation of the Action Plan for Pain in Canada has come & how far we still need to go. PainCanada.ca/actionplan
03.11.2025 16:14 β π 1 π 0 π¬ 0 π 0
The Unforgotten, a film about Indigenous health - The Unforgotten
"The Unforgotten" is a film that explores systemic racism, the impacts of colonialism and the ongoing trauma experienced by Indigenous peoples in the Canadian health care system. You can view the film here: theunforgotten.cma.ca
30.09.2025 13:26 β π 3 π 0 π¬ 0 π 0
Today we observe National Day for Truth and Reconciliation. We reflect on and acknowledge the historical and current lived experiences of Canada's Indigenous Peoples and strengthen PEPR's ongoing commitment to decolonization in our research, engagement, and knowledge mobilization practices.
30.09.2025 13:26 β π 2 π 0 π¬ 0 π 0
The PEPR Partnership is funded by @sshrc-crsh.canada.ca π
22.09.2025 17:55 β π 0 π 0 π¬ 0 π 0
YouTube video by PEPR Partnership
PODCAST Episode 1: Exploring Meaningful Engagement with Fiona Webster, Kate Rice, and Laura Connoy
ποΈEpisode 1 of LIVING PROOF: Experience as Evidence is here!
πYOUTUBE: youtu.be/Xtw3AET8y5k
πSPOTIFY: open.spotify.com/show/6lrG3BV...
πAPPLE: podcasts.apple.com/ca/podcast/l...
We invite you to listen, subscribe to #LivingProofPodcast, and share your feedback with us at #PeprPartnership.
22.09.2025 15:16 β π 2 π 2 π¬ 1 π 0
Here's a clip from our debut #LivingProofPodcast episode, dropping on Monday! Stay tuned on all of our #PeprPartnership channels for our premiere.
18.09.2025 20:01 β π 0 π 0 π¬ 0 π 0
Our colleagues at @kidsinpain.bsky.social are hiring π
18.09.2025 13:26 β π 1 π 0 π¬ 0 π 0
We're pleased to share a sneak preview of our new podcast, Living Proof: Experience as Evidence, launching in one week!
What topics or questions would you like us to explore in future episodes of #LivingProofPodcast?
Follow us here on Bluesky, and stay tuned for our premiere.
#PeprPartnership
15.09.2025 18:57 β π 0 π 0 π¬ 0 π 0
PEPR's podcast LIVING PROOF: Experience as Evidence in Pain Research premieres Sep 22 during #PainAwarenessMonth.
#LivingProofPodcast brings together researchers and people with lived experience to ask: What counts as evidence, and how do we share it?
Follow #PeprPartnership for updates!
11.09.2025 17:53 β π 0 π 0 π¬ 0 π 0
LinkedIn
This link will take you to a page thatβs not on LinkedIn
Canadian Journal of Pain special issue: "Social and health inequities in chronic pain across the lifespan." Members of our partnership, including @fionawebster1.bsky.social, are co-editors. Check out the collection, including their insightful editorial, here: www.tandfonline.com/toc/ucjp20/8/2
02.09.2025 17:16 β π 1 π 1 π¬ 0 π 0
Dr. Laura Connoy, PEPR Partnership
Dr. Laura Connoy is a critical sociologist whose research interests center on chronic pain, trauma, and social injustice. She is the Research Manager for the #PEPRPartnership and Postdoctoral Associate. She is involved in various projects that focus on #patientengagement in #chronicpainresearch.
07.08.2025 19:17 β π 1 π 0 π¬ 0 π 0
Kathleen (Kate) Rice is the Co-Director - Academic for the #PeprPartnership.
Kate is Assistant Professor and Research Director in the Department of Family Medicine at McGill University, where she holds the Tier II Canada Research Chair in the Medical Anthropology of Primary Care.
29.07.2025 14:48 β π 2 π 0 π¬ 0 π 0
We are thrilled to announce PEPRβs new partnership with the Saskatchewan Pain Society aka SaskPain! You can learn about SaskPain at their website saskpain.ca
23.07.2025 17:33 β π 1 π 0 π¬ 0 π 0
Desmond Williams
Desmond Williams is the Co-Director - Person With Lived Experience for the #PeprPartnership.
He also helps people to manage #chronicpain through movement and mindfulness. In his advocacy work, Desmond aims to amplify the voices of marginalized communities.
#PainResearch #PatientEngagement
17.07.2025 17:22 β π 1 π 0 π¬ 0 π 0
Professor Fiona Webster @fionawebster1.bsky.social is PEPR's Director and Principal Investigator. PEPR was founded in 2022 as a result of receiving a $2.4 million SSHRC Partnership grant, entitled Toward Democratization of Health: A Sociological Exploration of #PatientEngagement in #PainResearch.
15.07.2025 18:17 β π 1 π 1 π¬ 0 π 0
#LivingProofPodcast brings together researchers, partners, and people with lived experience to ask: What counts as evidence, and how is it shared?
#PeprPartnership #ChronicPain #PatientVoices #PatientEngagement #LivedExperience #KnowledgeMobilization
03.07.2025 19:39 β π 1 π 0 π¬ 0 π 0
YouTube video by PEPR Partnership
Living Proof: Experience as Evidence in Pain Research (PEPR PODCAST TRAILER)
www.youtube.com/watch?v=Ow21...
π§ Living Proof: Experience as Evidence in Pain Research. This is the trailer for PEPR's new podcast exploring connections and opportunities to integrate #livedexperience in #chronicpainresearch.
π Please subscribe to our channel to hear about our first episode!
03.07.2025 19:39 β π 2 π 0 π¬ 1 π 0
30.06.2025 13:27 β π 0 π 0 π¬ 0 π 0
Co-Creating Ireland's Public Involvement in Open Research Roadmap
ENGAGED is building a national roadmap to shape public involvement in open research in Ireland. We believe that research can and does play an important role in tackling societal challenges.
Giving voice to the humanities and social sciences across Canada | Porte-parole des sciences humaines dans l'ensemble du Canada
Canada's Conversation. Award-winning independent journalism, fact checking, and national ideas-focused events. Stay connected: http://thewalrus.ca/newsletters
We're the SWCC! We foster quality #scicomm & provide a community for science writers across #Canada. Become a member today!π¬βοΈ
Awards 2025 Submissions: https://sciencewriters.ca/bookawards/submissions
Website: https://sciencewriters.ca/
News by experts. Free, independent and based on evidence.
This is a placeholder account - we're active on our national editions, which you can see on our pinned post.
The Faculty of Social Sciences focuses on the dynamics of social interaction in contexts ranging across culture, markets, politics, and society, exploring how we live together and in relation to the world around us. #climate #health #Indigenous #uvic
A trusted voice at the intersection of research, society and public policy, convening expertise and assessing knowledge to advance evidence-informed decision-making in Canada and internationally
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We are the Office of the Vice-Principal, Research and Innovation at #UTM. Our mission: to support our vast and exceptional research community.
Learn more at www.utm.utoronto.ca/research-innovation.
We take pride in cultivating the next generation of thoughtful, empathetic and effective citizens and leaders who will make the world a better β and brighter β place.
https://criticalpainscholarship.ca/
CAPS Research Network (formerly CASPR) is an international community of practice devoted to critical scholarship approaches to (chronic) pain research.
https://sshrc-crsh.canada.ca
A rogue neuroscientist fighting for medicine based on SCIENCE; NOT BIAS. β‘οΈHealth scams & dodgy science β‘οΈPatient rights & power dynamics. β‘οΈOur strength is in our numbers, friends. #NEISvoid #MedicalGaslighting
We are a #co-production community where everyone is welcome! Together we learn, connect and champion co-production for lasting change.
www.coproductioncollective.co.uk
TC3 is an interdisciplinary research network that brings together and supports researchers and trainees engaged in cannabis & cannabinoid research at the University of Toronto & Toronto Academic Health Sciences Network.
Patient partner in research, quality improvement, standards development and governance initiatives with particular interest in AI, virtual care, digital health, and complex chronic illness. (all/any)
PhD Candidate @UAlberta researching pain experiences of equity-deserving kids. patient partnership & co-creation | knowledge mobilization | justice. she/theyπyeg π³οΈβπ Mom to πββοΈππππ
I'm a physician, scientist, teacher, YouTuber and author. I try to help the person that has chronic pain, not just the pain they have (opinions my own)π¨π¦π§π·