rFSGS Initiative

As #KidneyMonth2025 ends, we want to hear from you all on what continues to inspire you and provide hope for a future where a cure for #rFSGS exists! Let us know your thoughts and experiences in the comments below. ⬇️

#rFSGSConference #KidneyTransplant #nephsky #medsky #skyneph

Help us understand why!

If you or someone you know has #rFSGS and you are interested in learning how you can help and provide a biosample, email us at mb5150@cumc.columbia.edu.

#KidneyMonth #KidneyMonth2025 #rFSGSConference #KidneyTransplant #nephsky #medsky #skyneph

Focal segmental glomerulosclerosis impacts the kidneys & is a major cause of kidney failure requiring dialysis or a #KidneyTransplant. When receiving a transplant, patients with FSGS experience recurrence of disease in up to 40% of cases—called recurrent FSGS.

#KidneyMonth #rFSGS #rFSGSConference

Happy Thursday! Less than a month left to register for the IgAN Diagnosis & Treatment Updates 2025 on April 4th. Feel free to register using the following link: www.eventleaf.com/e/...

Once FSGS reoccurs after a #KidneyTransplant, there are limited treatment options & currently no definitive cure. Follow us to stay updated on the latest news about #rFSGS research & join our Facebook group: www.facebook.com/groups/57871...

#KidneyMonth #rFSGSConference #nephsky #medsky #skyneph

Building a biobank is key to finding new treatments for Recurrent Focal Segmental Glomerulosclerosis. If you or someone you know has #rFSGS and you want to learn how you can help by providing a biosample, email mb5150@cumc.columbia.edu.

#KidneyMonth #KidneyTransplant #nephsky #medsky #skyneph

It’s #WorldKidneyDay! We want to spread hope & encouragement to those impacted by #rFSGS. The rFSGS Initiative is connected to doctors all over the world who are uniting with the community to find a cure.

#KidneyMonth #KidneyMonth2025 #rFSGSConference #KidneyTransplant #nephsky #medsky #skyneph

Stay connected with attendees from the past #rFSGSConference, meet others who have been impacted by #rFSGS, and share your experiences in our Recurrent FSGS Community Facebook group: www.facebook.com/groups/57871...

#KidneyMonth #KidneyMonth2025 #KidneyTransplant #nephsky #medsky #skyneph

Flashback to our #rFSGSConference in December! We brought together patients, researchers, physicians, & representatives who share a common interest in fighting against #rFSGS. Stay tuned! #KidneyMonth #KidneyMonth2025 #KidneyTransplant #nephsky #medsky #skyneph @genetickidneydoc.bsky.social

Happy National #KidneyMonth! We're shining a light on Recurrent Focal Segmental Glomerulosclerosis (rFSGS)—a #RareDisease that impacts the kidneys. If you or someone you know has #rFSGS, follow us for news & updates.

#rFSGSConference #KidneyTransplant #KidneyMonth2025 #nephsky #medsky #skyneph

Thank you for joining us for the wonderful #rFSGSConference last week in Washington, DC! We look forward to being in touch with you all soon! #rFSGS

At today's #rFSGSConference, we're connecting patients, families, doctors, researchers, funders, & political leaders to raise awareness of #rFSGS.

The engaging stories told by patients & caregivers have inspired hope for many attendees. 💙💚

It’s wonderful that the @rfsgsinitiative.bsky.social conference has two sessions dedicated to stories from patients & families. We are so grateful to hear the perspectives of these courageous & generous individuals @genetickidneydoc.bsky.social @opeyemiolabisi.bsky.social @gbadegesinlab.bsky.social

A clear and stirring mission statement for the @rfsgsinitiative.bsky.social from an inspiring video that opened the session @genetickidneydoc.bsky.social

The epitome of a Physician-Scientist. @gbadegesinlab.bsky.social swoops in to DC this morning from being on call last night in North Carolina to moderate an early session here at @rfsgsinitiative.bsky.social

@gbadegesinlab.bsky.social
@kidneyomicsamps.bsky.social
@opeyemiolabisi.bsky.social
@alessiafornoni.bsky.social
@genetickidneydoc.bsky.social
#rFSGS
#rFSGSConference
#KidneyTransplant
#RareDisease
#nephsky
#medsky
#skyneph

We've kicked off the first-ever #rFSGSConference! We look forward to an impactful day by and for #rFSGS patients. #RareDisease #KidneyTransplant

This guy, @genetickidneydoc.bsky.social, with a great help, has put together a wonderful program for the inaugural @rfsgsinitiative.bsky.social meeting. Looking for to tomorrow’s big day #kidneyomics #NephSky

@gbadegesinlab.bsky.social
@kidneyomicsamps.bsky.social
@opeyemiolabisi.bsky.social
@alessiafornoni.bsky.social
@genetickidneydoc.bsky.social
#rFSGS
#rFSGSConference
#KidneyTransplant
#RareDisease
#nephsky
#medsky
#skyneph

We look forward to seeing you tomorrow for the Recurrent Focal Segmental Glomerulosclerosis (#rFSGS) Conference!
🔹7:30 a.m.–5:30 p.m.
🔹Hyatt Regency Washington on Capitol Hill
🔹Washington, DC

View our program to see what's in store: www.scgcorp.com/rFSGS2024/Ag... #rFSGSConference

@gbadegesinlab.bsky.social
@kidneyomicsamps.bsky.social
@opeyemiolabisi.bsky.social
@alessiafornoni.bsky.social
@genetickidneydoc.bsky.social
#rFSGS
#rFSGSConference
#KidneyTransplant
#RareDisease
#nephsky
#medsky
#skyneph

📣REGISTRATION DEADLINE EXTENDED📣

There's time to reserve your spot for the #rFSGSConference coming up on Monday, Dec. 9 in Washington, DC. We hope to see you there! Register today to participate in this #rFSGS event: www.scgcorp.com/rFSGS2024/Re...

#KidneyTransplant
#RareDisease
#nephsky
#skyneph

@gbadegesinlab.bsky.social
@kidneyomicsamps.bsky.social
@opeyemiolabisi.bsky.social
@alessiafornoni.bsky.social
@genetickidneydoc.bsky.social
#rFSGS
#rFSGSConference
#KidneyTransplant
#RareDisease
#nephsky
#medsky
#skyneph

🚨 #rFSGSConference registration closes today! 🚨

Don't miss out! If you want to take part in the first-ever conference on #rFSGS with patients, accomplished researchers, political leaders, and more, register now: www.scgcorp.com/rFSGS2024/Re... #KidneyTransplant #RareDisease

@gbadegesinlab.bsky.social
@kidneyomicsamps.bsky.social
@opeyemiolabisi.bsky.social
@alessiafornoni.bsky.social
@genetickidneydoc.bsky.social
#rFSGS
#rFSGSConference
#KidneyTransplant
#RareDisease
#nephsky
#medsky
#skyneph

We have 1⃣ WEEK until the Recurrent Focal Segmental Glomerulosclerosis (#rFSGS) Conference!

Check out the latest #rFSGSConference program to see a day full of inspiring talks & groundbreaking research: www.scgcorp.com/rFSGS2024/Ag...

➡️Don't forget to register: www.scgcorp.com/rFSGS2024/Re...

@gbadegesinlab.bsky.social
@kidneyomicsamps.bsky.social
@opeyemiolabisi.bsky.social
@alessiafornoni.bsky.social
@genetickidneydoc.bsky.social
#rFSGS
#rFSGSConference
#KidneyTransplant
#RareDisease
#nephsky
#medsky
#skyneph

At the upcoming #rFSGSConference, you can meet 150+ attendees including patients, researchers, members of congress, senators, and more! 🤝

If you want to participate, check out more info on the first-ever conference all about #rFSGS! www.scgcorp.com/rFSGS2024/De... #RareDisease #KidneyTransplant

@gbadegesinlab.bsky.social
@kidneyomicsamps.bsky.social
@opeyemiolabisi.bsky.social
@alessiafornoni.bsky.social
@genetickidneydoc.bsky.social
#rFSGS
#rFSGSConference
#KidneyTransplant
#RareDisease
#nephsky
#medsky
#skyneph

You're in luck! It's not too late to register for the Recurrent Focal Segmental Glomerulosclerosis (rFSGS) Conference. Visit our website and submit your registration today to join us on Dec. 9: www.scgcorp.com/rFSGS2024/Re... #rFSGS #rFSGSConference