@fungrandpa6.bsky.social
27.03.2025 17:48 โ ๐ 2 ๐ 0 ๐ฌ 0 ๐ 0
I agree with that then! I just feel there should be expansion of care and services for other reasonsโฆsupport of the family caregivers and enhancing quality of life for LO. There are more important goals for families dealing with this than more time. support system for dementia in the us is pitiful.
18.03.2025 20:49 โ ๐ 0 ๐ 0 ๐ฌ 0 ๐ 0
I mean caregiver as in family which is often the deal unless there is wealth. Would argue few families are striving for more time in end stage. They are just trying to survive and take care of/keep lo comfortable as possible. Not sure what fixation on more time is. By end stages LOs are mostly gone.
18.03.2025 20:46 โ ๐ 0 ๐ 0 ๐ฌ 0 ๐ 0
Ya again I donโt think the focus for many caregivers at this stage is to get more time. I can only say that from personal experience with loved one who went through all the stages. The end was the absolute roughest. This is such an under-resourced area. Iโm happy the studied that all.
18.03.2025 18:08 โ ๐ 1 ๐ 0 ๐ฌ 1 ๐ 0
When loved ones are at this stage Iโd argue caregivers and family are not necessarily looking for โmore timeโ. They need support and focus should be improved qol. Respectfully your take is coming across a bit insensitive imo @altfda.altgov.info
18.03.2025 18:05 โ ๐ 3 ๐ 0 ๐ฌ 0 ๐ 0
I donโt think this is the takeaway. Reduced ED visits. That is a big deal for patient and caregiver quality of life. Know this from firsthand experience.
18.03.2025 18:02 โ ๐ 3 ๐ 0 ๐ฌ 2 ๐ 0
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