jones8science.bsky.social

It isn't always a lack of cognitive resources that prevent masking though. It can be sensory-motor differences which prevent masking.

For Whose Benefit?: Evidence, Ethics, and Effectiveness of Autism Interventions - Autistic Self Advocacy Network There are many therapies for autism, along with a significant amount of funding for research, development, and implementation of these therapies. However, it often remains unclear whether these therap...

Remember: We should be more cautious about claiming interventions are "proven effective" #ActuallyAutistic #AutismResearch

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I enjoy Derek's work, and have pulled out my tweed blazer, vests and ties.

I agree, Ben.

This might just be my favourite, Tania.

Sorry Ben. Hopefully those trolls will be removed.

Square graphic with a red textured paper background. At the top, white all-caps text reads, "Today in Hell Yes, Research!" In the center, a piece of the paper has been ripped out, showing an off-white background containing black text reading, "Despite decades of use on non-speaking autistics, research shows that ABA therapy has never been even SLIGHTLY useful to them" At the bottom of the page, white text reads, "@ThinkingAutism tinyurl.com/ABAdoesNotWork."

Today in Hell Yes, Research! Despite decades of use on non-speaking autistics, research shows that ABA therapy has never been even SLIGHTLY useful to them.

A damning article by Gary Shkedy, Dalia Shkedy & Aileen H. Sandoval-Norton.

link.springer.com/article/10.1... #BetterWaysThanABA #autism

When autism researchers disregard harms: A commentary

Too often autism researchers "fail to adequately monitor adverse outcomes or even consider them a possibility—[meaning] harms of any kind are unlikely to be detected & reported as such, even when they are both prevalent & important." S. Fletcher-Watson/M. Dawson:
pmc.ncbi.nlm.nih.gov/articles/PMC...

Listening to Autistic Voices - AANE The saying “nothing about us without us” is common in the Autistic community and the disability community more broadly. But rather than allowing this idea to become a platitude, it’s important to real...

The more you familiarize yourself with the wide range of Autistic experiences, the better chance of finding perspectives that might resonate. Then check with your autistic family member [however works for them]: Is this what autism is like for you or is it different?

aane.org/autism-info-...

Natalia Speaks and the Struggle for Disability Representation Natalia Speaks addresses important issues about parents’ legal over-reach, rights of the disabled, and what we deserve from stories about us.

The hit docu-series Natalia Speaks "addresses important issues about parents’ legal over-reach and the rights of the disabled. It also raises the question of what we who are disabled deserve from the stories about us." By Anne Borden King, at TPGA.

Yes, definitely. And also sometimes autistic traits like repetitive behaviors can devolve into self-harm, or preference for routines can turn into rigidity that becomes anorexia or other disorders—due to lack of informed supports. All intermingled and we need research on THAT, not "treating autism."

On the Problems with "Science of Reading" “Science of Reading” particularly and #ResearchEd more generally, remind many of us in neurodiversity and disability communities of this from Alfie Kohn. The underpinnings of that ideology include...

A fundamental problem with “Science of Reading” is also a problem with autism research. Scientism begets epistemic injustice. The behaviorist bent of ed. repeatedly churns out these monsters of ed-tech that steal the credibility of science to rationalize ableism.

stimpunks.org/2023/11/22/o...

So true. My son learned to reliably type at age 14, and was finally able to demonstrate his much higher receptive understanding (many years above his age). Can't wait for A. W.'s results!

Firstly, there's an inadequate evidence base to support judgements about the receptive language abilities of the nonspeaking autistic population. This demographic simply hasn't been a priority for researchers. It's something the Woolgar lab in Cambridge is trying to address.

Indeed! Also, does the nonspeaking individual have sensory-motor challenges which may mean initiation and planning of intentional movement are barriers to skillfully using AAC if they do have access?

When I read the writings of these grievance parents, I can't help but think they're begging people to disrespect and/or fear their children--which implicitly justifies mistreatment. It's as if they don't even want to understand their children.

My son’s disabilities require full-time support, which means he and I live the very lives grievance parents tend to portray as horror shows. But unlike grievance parents, I believe my son deserves respect and understanding—not grievance parents’ relentless exploitation of their children as burdens.

Dangerous Assumptions There is this thing that happens sometimes. Parent has an autistic child. Autistic child doesn’t speak, or their speech isn’t an accurate window into what they are thinking. Autistic child is pres...

"Profound autism" lobbyists claim autistic advocates advocates deny intellectual disability. This is SPIN.

Autistic advocates like Julia Bascom have been pointing out—for nearly a decade—how the problem is that those lobbyists don't treat their kids like humans UNLESS they have "intact minds":

Most autism research does not consider the relationship between parts and the whole - the whole being an autistic person. It investigates particular parts (genes, neural networks, etc) and assumes they are describing what is responsible for the whole.