Would love to be added, I am a health advocate, art/technology human centered designer/researcher (by academic training) working in patient/public engagement in research at a health authority.
18.11.2024 23:01 — 👍 1 🔁 0 💬 0 📌 0
🌟 blog and paper. I can relate to the issues as a public contributor and also occasional PPI lead. Involvement isn’t a method, it’s about relationships not toolkits and frameworks. PPIE leads and public contributors are powerless within existing research culture that doesn’t see the need for change
01.11.2024 09:52 — 👍 8 🔁 4 💬 0 📌 0
Hello 👋 I do collaborative research to amplify advocacy for health equity, especilaly children and young people. I am a #PatientEngagement Specialist at BC SUPPORT Unit Fraser Centre with #FraserHealth, & #SFU. Completing my PhD involving #POR & #DigitalHealth to support youth with chronic illness.
18.11.2024 22:30 — 👍 6 🔁 1 💬 1 📌 0
Global health, medical anthropology, co-design for health equity. @Emory U, working in Guatemala and beyond. Loves sightings of the absurd and compassion.
The NIHR Applied Research Collaboration (ARC) West is one of 15 @nihrarcs.bsky.social funded by the National Institute for Health and Care Research (@nihr.bsky.social). We work with our partners in the West of England on applied health and care research
UK Covid-19 Inquiry Core Participant
Safe access to health, workplaces, education and beyond
Donate: http://bit.ly/CVFdonate
JOIN us on FB 📸cv_cev ❌️@cv_cev
www.clinicallyvulnerable.org
We want people to be able to share their experiences of health and care in ways which are safe, simple, and lead to learning and change.
Care Opinion CIC (non-profit) | https://www.careopinion.org.uk
Open access evidence base for patient experience, lived experience, patient/public involvement. www.patientlibrary.net
Professor at the UBC School of Nursing. Mainly doing #Qualitative research and #KnowledgeTranslation in the areas of caregiving, medical complexity, climate impacts on older people and people with disabilities. Also: dogs.
The Children's Hospital Research Institute of Manitoba is the research division of the Children's Hospital Foundation of Manitoba.
https://www.chrim.ca/
A place where you can share your experience of health or care services, and help make them better for everyone. Managed by Imagine Citizens Network.
Philosopher, cognitive scientist, writer
Books:
Linguistic Bodies (shorturl.at/bd5NS)
Denken over Liefde (shorturl.at/dH5Qt)
Participatory sense-making
Loving and knowing
she/her
masking
Cognitive neuroscience, affect and cognition, participatory sensemaking through food and dance
BC Children's Hospital Research Institute conducts discovery, translational and clinical #research to benefit the #health of children and their families.
The BC Children's Hospital MRI Research Facility is one of Canada’s top centres for pediatric brain mapping and imaging sciences research.
The Digital Health Innovation Laboratory at @BCCHresearch / @BCChildrensHosp and @UBC.
The International PPI Network connects individuals working in, involved with and interested in patient and public involvement across the globe. Join us at https://intppinetwork.wixsite.com/ippin
A shared voice for Public and Patient Involvement in health and social care research in Ireland. Every voice matters.
ppinetwork.ie
The Strategy for Patient-Oriented Research (SPOR) Evidence Alliance is a pan-Canadian research initiative designed to promote evidence-informed health policy and practice changes, with patient and public partner engagement embedded throughout.
Research development at a large children’s hospital research institute (UBC/PHSA)
Doctor, writer, Canadian Spice, lasso of truth, I speak for no one but me. 2X NYT bestsellers. More thoughts at TheVajenda.com
A network of Canadian experts in knowledge translation joining forces to tackle the greatest challenge in health care today.
@KTCanada
https://ktcanada.org/
We support a range of knowledge users in their quest to create improved health outcomes.
@kt_program on X
https://knowledgetranslation.net/
Also follow @KTCanada.bsky.social!
