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LynchSyndromeUK

@lynchsyndromeuk.bsky.social

Providing information and support for people with Lynch Syndrome. Raising awareness of this genetic condition.

56 Followers  |  15 Following  |  6 Posts  |  Joined: 23.11.2024  |  1.7436

Latest posts by lynchsyndromeuk.bsky.social on Bluesky

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Low aspirin dose 'reduces cancer risk in some patients', Newcastle University-led study says A Newcastle University-led study looks at how the painkiller can help people with Lynch syndrome.

www.bbc.co.uk/news/article...
Great news today that just the baby aspirin, 75mg is enough for bowel cancer prevention for people with Lynch Syndrome. Thanks CaPP3 and all who took parti this trial

24.06.2025 10:06 β€” πŸ‘ 2    πŸ” 3    πŸ’¬ 0    πŸ“Œ 0
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Grab a ticket and support LSUK with Lions Mak & Min don't forget to share your photos x

02.06.2025 07:25 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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Today as well as it being our annual conference it's also Lynch Syndrome awareness day
Thanks to Fiona Lomas for these

22.03.2025 14:12 β€” πŸ‘ 3    πŸ” 1    πŸ’¬ 0    πŸ“Œ 0
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Today is #LynchSyndromeAwarenessDay, it affects 175,000 people in England but only 5% know they have it.

ICR's Professor Clare Turnbull
@clare-turnbull.bsky.social highlights the vital role of routine genetic testing to prevent cancer cases.

Read more here ⬇️
icr.ac.uk/about-us/icr...

22.03.2025 10:37 β€” πŸ‘ 6    πŸ” 5    πŸ’¬ 1    πŸ“Œ 0
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More morning information at Lynch Syndrome Conference

22.03.2025 11:52 β€” πŸ‘ 5    πŸ” 3    πŸ’¬ 0    πŸ“Œ 0
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What progress have we made in diagnosing Lynch Syndrome?
Dr Adam Shaw

22.03.2025 09:07 β€” πŸ‘ 2    πŸ” 2    πŸ’¬ 0    πŸ“Œ 0
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Royal College of Physicians, 11 St Andrews Pl, London, NW1 4LE

Lynch Syndrome and Hereditary Colorectal Cancer for Colorectal MDT, BCSP and Beyond - registration now open! An educational event organised by ⁦β€ͺ@BritSocGastro‬⁩ at ⁦β€ͺ@RCPhysicians‬⁩ London 14th May for Colorectal Cancer MDTs and BCSP teams www.bsg.org.uk/Events/Lynch...

07.01.2025 13:56 β€” πŸ‘ 3    πŸ” 3    πŸ’¬ 0    πŸ“Œ 0
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Let's talk Stomach Cancer on #LessSuvivableCancersDay

πŸŽ—οΈ6500 people diagnosed each year in the UK
πŸŽ—οΈOnly 25% will live for 5 years
πŸŽ—οΈSurvival improves to 65% if diagnosed at stage 1

#GEMStudy is working to improve the early detection of stomach cancer through biomarkers

13.01.2025 16:58 β€” πŸ‘ 1    πŸ” 1    πŸ’¬ 0    πŸ“Œ 0
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As Open As Possible, As Closed As Necessary: Fostering a Culture of Open Qualitative Research at the University of Leeds Sharing research data is increasingly standard practice to facilitate transparent and reproducible research. It is an expectation of all major research funders including UKRI and...

πŸ“’ Next Open Lunch Webinar!

πŸ—“οΈ Date: 22nd Jan 2025
πŸ• Time: 1-2pm (UK time)

Join Dr. Matthew Hanchard (University of Sheffield) & Sally Dalton (University of Leeds) to discuss sharing of qualitative data & FAIR principles.

πŸ“Œ Register: leeds.libcal.com/event/4299757

#OpenResearch #DataEthics

14.01.2025 11:02 β€” πŸ‘ 10    πŸ” 11    πŸ’¬ 0    πŸ“Œ 0

Happy New Year
From all at LSUK
Here's to another year of amazing advances for all things Lynch ❣️
Thank you to everyone who fights the Lynch Syndrome corner
Happy 2025 πŸ₯‚

31.12.2024 21:28 β€” πŸ‘ 2    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
Acceptability of aspirin for cancer preventive therapy: a survey and qualitative study exploring the views of the UK general population Objectives Aspirin could be offered for colorectal cancer prevention for the UK general population. To ensure the views of the general population are considered in future guidance, we explored public ...

Firstly, the fellowship enabled me time to publish my final PhD study, which was a mixed methods study looking at acceptability of aspirin for cancer preventive therapy among the UK general population:

bmjopen.bmj.com/content/13/1...

11.11.2024 09:52 β€” πŸ‘ 1    πŸ” 1    πŸ’¬ 1    πŸ“Œ 0
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Congrats to @pebsedwards.bsky.social for winning the John Nicholls Prize 2024 at St Mark’s Frontiers…
And giving a brilliant presentation about our work in #LynchSyndrome

23.11.2024 07:38 β€” πŸ‘ 7    πŸ” 2    πŸ’¬ 0    πŸ“Œ 0

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