Background: Recent studies provide strong evidence for a key role of skeletal muscle pathophysiology in myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS). In a 2021 review article on the pathophysiology of ME/CFS, we postulated that hypoperfusion and ischemia can result in excessive sodium and calcium overload in skeletal muscles of ME/CFS patients to cause mitochondrial damage. Since then, experimental evidence has been provided that supports this concept.
New review paper from Scheibenbogen and Wirth: βIf ionic disturbance and mitochondrial dysfunction is severe enough the patient may be captured in a vicious circle. This energy deficit is the most likely cause of exertional intolerance and PEM.β
onlinelibrary.wiley.com/doi/10.1002/... #MECFS
28.12.2024 02:04 β π 25 π 7 π¬ 1 π 2
YouTube video by Long Covid: We Want To Be Seen
We Want To Be Seen: Visualizing 44 Long Covid Patient-Led Data Stories
youtu.be/ixroy2Xsbyg?...
27.12.2024 18:58 β π 0 π 0 π¬ 0 π 0
1) In the process of reviewing the most interesting ME/CFS-studies of 2024.
I think this one ranks top of the list: Beentjes et al.
26.12.2024 11:17 β π 44 π 15 π¬ 1 π 2
Dr Davis and Janet Ph.D.mp4
Here is a link to a video about Ron Davis and Rob Phairβs work on the itaconate shunt with the scientists at the University of Utah. We spoke to the Bay Area MECFS support group and it was recorded over Zoom. drive.google.com/file/d/1rKf1...
06.12.2024 09:21 β π 71 π 24 π¬ 7 π 1
Thanks for the warm welcome Sarah and hope youβre well too :) cautiously exploring the scene over here
20.11.2024 19:17 β π 0 π 0 π¬ 1 π 0
Nice summary of Rob Phairβs recent presentation (ME/CFS Roadmap Series: Physiology, Dec 8). Includes several findings that support their hypothesis and 3 proposed therapeutic targets: www.reddit.com/r/cfs/s/hdek...
25.12.2023 01:11 β π 6 π 2 π¬ 0 π 0
Last chance to sign up for the 2-day NIH ME/CFS conference: web.cvent.com/event/efc45a...
06.12.2023 02:50 β π 4 π 0 π¬ 0 π 0
Blue skies, smilin' at me
Nothin' but blues skies do I see
Bluebirds singing a song
Nothin' but bluebirds all day long
πΆβπ«οΈ π βοΈ π¦
06.11.2023 23:21 β π 1 π 0 π¬ 0 π 0
Illustrator, motion designer, spicy salmon enthusiast
kelseyrobinsondesign.com
instagram.com/kelseyrobinsondesign/
ο£Ώ Apple Evangelist on the Web Developer Experience team for Safari & Webkit. #PwME
Long COVID patient-researcher
@ Scripps Research & Patient-Led Research Collaborative
Scientist (PhD she/her), writer, cartoonist. π¦ Blogging & Newsletter: Living With Evidence https://hildabastian.wordpress.com/ Mastodon enthusiast: @hildabast@mastodon.online
Mum, Carer, Myalgic Encephalomyelitis (ME) Advocate, Educational Psychologist
US ME patient advocate. Mother of a son and his wife who have ME and Long COVID. My other focus is on US politics and what's coming
𧬠The worldβs biggest study of genetic causes of #MECFS. Launched September 2022. 𧬠decodeme.ed.ac.uk
ME/CFS patient advocate and caregiver. Mom to Whitney. Spouse of Ron Davis. Child Psychologist.
Waitress turned Congresswoman for the Bronx and Queens. Grassroots elected, small-dollar supported. A better world is possible.
ocasiocortez.com
physician-researcher, paediatrician, ME/CFS since 2016. This account is about science, esp. CFS
Surviving MyalgicE, AAG & CVID to tell the story, patient & advocate w/ a JD. Into MEdical, Social & Climate Justice & Arts. Human neutrino/ PwME = MEdical apolide/ Gnarled pacer. MEssLand Worldwide https://www.tandfonline.com/doi/pdf/10.2217/fmb-2022-0031
Severe ME patient currently on a 10% battery, the gas goes out more than I do. I also compile ME/CFS Awareness videos.
https://linktr.ee/abrokenbattery
Translational MD-scientist, mom, πΆ | Bklyn born + bred
Pathogen/microbe-host interactions + π§ outcomes across the life course | gut-immune-π§ axis
#ASD #ADHD #PANS/#PANDAS #OCD affective disorders/#TRD Alzheimerβs #MECFS #LongCOVID
All posts = my views
Neuroscientist & neuroimager focused on traumatic brain injury. Associate Prof at Univ of Utah, PI of the ENIGMA TBI working group, and director of ENIGMA-U
Animagus. Hearty but not hale. Celebrant of beautiful action. Likes bicycles. Note: The only time I post with my real name is in scientific journals. Kaurna Country. She/Her.
#MECFS #POTS #Fibro patient/atteinte dβEM/POTS/Fibro- since 2008 π¨π¦
New caregiver of my 19yr old son with severe #LONGCOVID/ME #POTS π’π
Former veterinarian
Membre comitΓ© scientifique AQEM-
post infectious illness interest
#TeachMETreatME #hEDS #MyalgicEncephalomyelitis #MESpine #CCI #POTS #longCovid #AuDHD #endo β’ Capitol Hill, AFL-CIO, and AFT alum β’ She/her
Here for the latest research + advocacy for Long Covid, ME/CFS, dysautonomia, connective tissue disorders, etc + disability justice community. Former HCP.
PharmD, MS in Biophysics, PhD in BioChem
I like taking photos of weird things inside the brain π¬
Cure #LongCovid
βͺLong Covid Advisory Team: https://whn.global/long-covid-advisor.
daniellebeckman.com
