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ellie

@autismstims.bsky.social

hello my name is ellie :) i use she/her pronouns. i have autism, adhd, tourettes and schizophrenia. i am an AAC user, an NDIS participant and am on the DSP

64 Followers  |  222 Following  |  61 Posts  |  Joined: 01.11.2023  |  1.6931

Latest posts by autismstims.bsky.social on Bluesky

this looks really delicious :) it is so satisfying when i can make something myself or with support worker rather than buying it ready made ! i hope you can feel the same way, it looks like you did a awesome job :D

26.05.2025 21:20 β€” πŸ‘ 2    πŸ” 0    πŸ’¬ 1    πŸ“Œ 0

this is a good article. i have schizophrenia and i take the same medication as the one he was taken off of and every time it is mentioned by name in the news i wince

24.05.2025 02:18 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
screenshot of a TD snap board showing the steps i need to take to clean off my balcony

screenshot of a TD snap board showing the steps i need to take to clean off my balcony

i was BIG stress because i got a notice that i had to move everything off my balcony by end of weekend so workers could do repairs and most of my supports and my parents were away and i cannot do by myself. but my parents are coming back a bit early and they helped me make a board to plan every out

23.05.2025 02:48 β€” πŸ‘ 1    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
screenshot of my AAC app TD snap. it shows my main board which has folders like morning and night time routines, about me, and communication.

screenshot of my AAC app TD snap. it shows my main board which has folders like morning and night time routines, about me, and communication.

i have a new app for my visual routines and AAC !!! it is TD snap !!!

21.05.2025 23:45 β€” πŸ‘ 1    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
screenshot of my AAC app Cboard showing a shopping list of labelled icons. the aldi section has cucumber, basil, lettuce, spinach, avocado, corn chips, and tomato paste. the butchers section has pork mince 200g.

screenshot of my AAC app Cboard showing a shopping list of labelled icons. the aldi section has cucumber, basil, lettuce, spinach, avocado, corn chips, and tomato paste. the butchers section has pork mince 200g.

shopping list for today with support worker :)

03.05.2025 21:55 β€” πŸ‘ 1    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
screenshot of my AAC app Cboard's meal plan board. it shows labelled icons of foods for breakfast, lunch, and dinner from friday to thursday. some examples of foods are nacho bowl, puttanesca and cobb salad.

screenshot of my AAC app Cboard's meal plan board. it shows labelled icons of foods for breakfast, lunch, and dinner from friday to thursday. some examples of foods are nacho bowl, puttanesca and cobb salad.

hello again :) i thought i would try using bluesky more again. today i made a meal plan for the week πŸ‘©β€πŸ³

03.05.2025 00:41 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0

i forgot tags again xD #AutChat A4

23.02.2025 22:04 β€” πŸ‘ 2    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0

i have sections in my AAC/visual routines and lists app that is helpful for this. i plan out my morning and night time routines because i find it difficult to transition from daytime mode to nighttime mode specifically. so i have planned out every step and it takes a long time to go through them all

23.02.2025 22:03 β€” πŸ‘ 3    πŸ” 1    πŸ’¬ 0    πŸ“Œ 1

this way if for example we do not get to doing the laundry with one worker and i have someone else the next day i can put in the chat i want to do laundry tomorrow so there is continuity between shifts, and accountability for me to actually do my laundry xD

23.02.2025 21:41 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0

had a galaxy brain level (very good) idea with one of my support workers yesterday !! she suggested i could make a group chat with all my support workers in it so it can make communication and coordination of shifts and tasks better. i am going to ask everyone if they are ok to do it

23.02.2025 21:41 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 1    πŸ“Œ 0

but instead i just sat on my bed in my school uniform for several hours fidgeting with a coathanger rather than changing into the other clothes that were on it. i desperately wanted to be doing something else but could not make myself do it #AutChat

23.02.2025 21:34 β€” πŸ‘ 2    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0

A3 #AutChat i am not sure as i am not good at comparing two times together but i do remember having very similar experiences when i was very young and it happened so consistently i had a name for it. one example i remember was i had gotten home from school and wanted to get changed into home clothes

23.02.2025 21:34 β€” πŸ‘ 3    πŸ” 0    πŸ’¬ 1    πŸ“Œ 0

yes a lot of the time i will hyperfocus on something on my computer or tablet and will not look away for it for hours and get a headache and eye strain #AutChat

23.02.2025 21:30 β€” πŸ‘ 3    πŸ” 0    πŸ’¬ 1    πŸ“Œ 0

yes it can be very troublesome because i can get into the zone of doing something and then realise 6 hours later i have not gotten up, eaten, drank anything, or gone to the bathroom etc. also sometimes even without that the hyperfocus can cause overwhelm because it is Too intense #AutChat

23.02.2025 21:29 β€” πŸ‘ 2    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0

that it does not have to necessarily be all encompassing of every autistic experience for it to be a valid thing for people to relate to and find useful. i like caveats like that. i find people's experiences are generally too diverse and complex to be covered by one theory to end all other theories

23.02.2025 21:27 β€” πŸ‘ 2    πŸ” 0    πŸ’¬ 2    πŸ“Œ 0

not a specific criticism of monotropism as i have not really studied it very much, just generally my experience of theories. it just means if something is all encompassing like that i am less likely to relate to it or look much further. i do like though that in an article i saw the authors said

23.02.2025 21:27 β€” πŸ‘ 2    πŸ” 0    πŸ’¬ 1    πŸ“Œ 0

i tend to have trouble with theories that aim to cover all aspects of something, because i feel they either will be too specific and miss certain aspects, or if they try to cover everything they get so general as to lose meaning. my thinking works in a very compartmentalised way.

23.02.2025 21:27 β€” πŸ‘ 2    πŸ” 0    πŸ’¬ 2    πŸ“Œ 0

A2 #AutChat my feelings about it maybe negative but also complex. i do not like the trouble i have & upset i get when i have to transition between things/start or stop something. but hyperfocus can be positive for me when i get really into something. but again also negative bc i neglect basic needs

23.02.2025 21:18 β€” πŸ‘ 6    πŸ” 0    πŸ’¬ 1    πŸ“Œ 0

hello ! :D

23.02.2025 21:15 β€” πŸ‘ 1    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0

A1 #AutChat i relate to autistic inertia but not so much to monotropism. i find it hard to start, stop and transition between tasks, situations, and internal states. i have not looked into monotropism that much, but for me inertia is not such an all encompassing thing but just one part of my autism

23.02.2025 21:12 β€” πŸ‘ 4    πŸ” 0    πŸ’¬ 1    πŸ“Œ 0

oops i forgot to tag with #AutChat

23.02.2025 21:10 β€” πŸ‘ 2    πŸ” 0    πŸ’¬ 1    πŸ“Œ 0

A0 hello my name is ellie :) ! i use she her pronouns. i experience autistic intertia a lot and it effects my life in many ways. i am interested to share and also hear what other people's experiences are like

23.02.2025 21:07 β€” πŸ‘ 5    πŸ” 0    πŸ’¬ 1    πŸ“Œ 1

i remembered >:)

23.02.2025 21:01 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0

obligatory disclaimers 🚨 weeoo weeoo

i am someone who would have been (and was !) diagnosed under old definitions so i do not have direct experience of this but hear it from many people

i am not crediting the autism orgs for self discovery movements' advances

i just think the irony is. Ironic

23.02.2025 21:00 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0

autism organisations: we need to make people more aware of autism, let us spend decades running autism awareness campaigns

autistic people who would have previously been not diagnosed: *are now aware they are autistic*

autism organisations: hey not like that

23.02.2025 20:57 β€” πŸ‘ 2    πŸ” 0    πŸ’¬ 1    πŸ“Œ 0
photo of a tablet with the screen showing my AAC app homescreen called the 'mega board'. the tablet has a green and purple case with bumpers for protection, and a strap to carry it with that is light blue with a pattern of white flowers on it.

photo of a tablet with the screen showing my AAC app homescreen called the 'mega board'. the tablet has a green and purple case with bumpers for protection, and a strap to carry it with that is light blue with a pattern of white flowers on it.

this is how my AAC device looks :) i recently got a new one because my old one was from 2014 and was getting very slow and glitchy. this one has a new case too and a strap for carrying it around that has flowers on it 🌼

23.02.2025 20:36 β€” πŸ‘ 2    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0

hello can i please be added to the list of accounts to be tagged in the reminder ? is there also one that goes off at the time it starts as well as one hour before ? thank you ! :)

23.02.2025 20:26 β€” πŸ‘ 1    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0

i am looking forward to #AutChat this morning :) hopefully i remember once it is on xD

23.02.2025 20:24 β€” πŸ‘ 2    πŸ” 0    πŸ’¬ 1    πŸ“Œ 0
screenshot of my AAC app SymboTalk showing my grocery shopping list, with labelled icons for foods like pastrami, leeks, basil etc.

screenshot of my AAC app SymboTalk showing my grocery shopping list, with labelled icons for foods like pastrami, leeks, basil etc.

and then here is my grocery list for this week :)

21.02.2025 20:48 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
screenshot of my AAC app SymboTalk, showing a meal plan arranged into rows of breakfast, lunch, dinner, and snacks. each meal has a labelled icon, like omelette, eggplant bake, and pea fritters.

screenshot of my AAC app SymboTalk, showing a meal plan arranged into rows of breakfast, lunch, dinner, and snacks. each meal has a labelled icon, like omelette, eggplant bake, and pea fritters.

meal plan πŸ™‚ i make meal plans and cook with my support workers and i really like choosing the pictures for each one. all this week we are making toasted sandwiches for lunch πŸ₯ͺ

21.02.2025 20:47 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 1    πŸ“Œ 0

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