tuttleturtle

Today is my kitty's birthday! He is 2 years old! Happy birthday kitty floof

Boston friends!

I never knew this was a thing and have been struggling with meds that are so less effective for me its dangerous

Is any of this "offensive"? No, but it's instructive. Notice the people blurting "waffles!" above aren't internet randos, like the reply gals that got Jay so upset to start with. They're operators of startups and journalists who were published in the economist, like, last week.

They're an ingroup.

The function of the waffles joke is an in-group signifier. Singal, Graber, and Oppiliappan are showing in-group solidarity; they're all in on a joke. The joke is they have institutional power, and you don't, and they feel contempt for you, that you still want to have opinions about how power's used.

As someone who has hypoxic brain damage from respiratory failure; the way a lot of you conflate any kind of brain injury and/or neurodivergence with immorality really fucking sucks.

Disability doesn't cause fascism. Colonialism, capitalism and white supremacy do.

You're telling ME and a lot of other people to deny our own disabilities, and not to bother seeing ourselves in kids like yours, and frankly, MY life would be worse and less sustainable if I did that.

...but you're trying to cut US off from the knowledge and experiences of kids like yours.

And I have learned AT LEAST as much about my own disability from autistic people w/ support needs much higher than mine, as I have from people whose lives look more like mine superficially.

SPECIFICALLY:
1. This is for dealing with a severe mast cell reaction but the benefits being great enough that its worth pre-med/post-med and flaring for months

2. I also have adrenal insufficiency

3. I am not new to the idea of pre-medicating, but need to be continuing to improve my protocol

People with #MCAS who have knowledge about pre-medication protocols what are things I might be overlooking if modifying mine? I forgot to talk to my allergist about dealing with reworking my pre-med protocol and he's real bad about replying to the patient portal.

of course the news at the hospital was on blah blah tylenol causes autism as well just to make it worse

fun times in spending all day dealing with medical malpractice because of the med pro being an anti-masker

/splat

But the key elements of the "polite request for reassessment" are:

1. Remind the doctor of your specific Weird;
2. Identify the link between your Weird and the symptoms;
3. Provide a (brief!) summary of why you think they should pay more attention to the thing they're ignoring;

Sedation dentistry is no longer weird. Phone cameras are really good. The price of solar panels has dropped by tens of thousands. Southern white rhinos, giant pandas, Arabian oryx and Stellar sea lions are no longer endangered.

And, I can testify, modern cancer treatments are fucking amazing.

It’s an Essential Part of Your Body. It’s Also Health TikTokkers’ Worst Nightmare. How Did We Get Here? I wish a $184 weighted pillow could cure me.

paywalled but slate.com/technology/2...

seriously can we stop demonizing cortisol, its necessary to survive.

I have more in common with any and every immigrant than I do with any billionaire and the fix to social security (which the undocumented pay into and cannot draw from) is to remove the wage cap on paying into it, clean simple beneficial restributive and doesn't make second-class non-citizens.

If you know you're sick and don't know why you're sick test for *all* the local tick born illnesses. It's worth the testing to see is this from a tick, especially with how climate change is rapidly increasing the rate of these.

When they say "AI will replace doctors" they mean "Instead of a doctor, you will have a chatbot and like it and if you die it's your tough break". The rich will continue to have regular doctors

I definitely can't keep track of what things people are saying are the news things and what are the satire things

Help Tuttle get a Service Dog By J M Animal Training and Rescue Inc

Sharing my service dog fundraiser again: givebutter.com/nhEnw1

She's doing incredibly well! It is always enjoyable to get texts about what she's working on and extra fun when I get to have her visit me to work on her getting to know me. I'm really looking forward to having a dog to help out!

Gerisuits and other age simulations are no better than disability simulations. They don’t have the outcomes they purport, and we could just, you know, listen to older and disabled people about their experiences and believe them?

pubmed.ncbi.nlm.nih.gov/28287757/

The needing to message when they forget is always so annoying

SO MANY KIDS used to die

Improvements in sanitation and vaccines were big, but pasteurization had a big impact too

Pasteurization wasn't mandatory in the US until after WWII (exact year depends on the state)

Was told by a doctor today that the risks of me getting vaccinated is too high even with the protocols we've been doing :(

I hate trying to navigate how severe of reactions and how many problems from medicating is worth vaccinating when fewer and fewer people around me are vaccinated

this is not to say that analyses of VAERS data can’t be useful – but those analyses need to be conducted by people with training in immunology/biostatistics/epidemiology, published in reputable publications, & have evidence besides VAERS data to support them if they’re going to guide health policy.

There is no route out of fascism that involves sacrificing the vulnerable. All that does is tell the fascists that we're willing to turn on each other for the illusion of safety.

Truthfully I can't even get through this story because of how much it doesn't read like it is written like its about someone who has restraint/seclusion/institutionalization/etc/etc trauma.

“Stay angry, little Meg,” Mrs Whatsit whispered. “You will need all your anger now.”

"Okay I get that," Meg whispered back, "but I've been angry for over a decade straight and my arteries are basically solid carbon fiber at this point. Do I ever get a freakin' break?"

Sometimes I think about of all of the response stories I've seen to Omelas none of them have been about the child. And about how much that on its own feels like it says.

Unconvincing reframings and renamings of PDA Those of you who follow me on other platforms know that I’ve been pretty openly critical of the label of PDA (for Pathological Demand Avoidance) and the ideas behind it. One common response to crit…

chavisory.wordpress.com/2025/08/22/u...

New blog post!