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eucatastrophie

@eucatastrophe.bsky.social

severe #myalgicencephalomyelitis , #longcovid. Interrupted artist. Existing somewhere between life and death.

22 Followers  |  115 Following  |  14 Posts  |  Joined: 18.08.2023  |  2.0662

Latest posts by eucatastrophe.bsky.social on Bluesky

Defend the Internet Archive.
Protect the Wayback Machine.
Tell the music labels: Drop the 78s lawsuit.
Sign our open letter on change.org

Defend the Internet Archive. Protect the Wayback Machine. Tell the music labels: Drop the 78s lawsuit. Sign our open letter on change.org

πŸ“’ The Internet Archive needs your help.

At a time when information is being rewritten or erased online, a $700 million lawsuit from major record labels threatens to destroy the Wayback Machine.

Tell the labels to drop the 78s lawsuit.

πŸ‘‰ Sign our open letter: www.change.org/p/defend-the...

πŸ§΅β¬‡οΈ

17.04.2025 16:51 β€” πŸ‘ 19840    πŸ” 15974    πŸ’¬ 128    πŸ“Œ 468

Time to give Palantir the Tesla and Target treatment. Make it shameful to work there. Organize rallies at their offices.

17.04.2025 16:28 β€” πŸ‘ 8573    πŸ” 4170    πŸ’¬ 417    πŸ“Œ 194
National Center for Emerging and Zoonotic Infectious Diseases
The Budget discontinues funding for the Lyme Disease,. Prion Disease, Chronic Fatigue Syndrome and the Harmful Algal Bloom programs to prioritize funding for core infectious disease and surveiIlance activities. The Budget also includes $25 minion for the wastewater surveillance program within the Emerging Infectious Diseases PPA."

National Center for Emerging and Zoonotic Infectious Diseases The Budget discontinues funding for the Lyme Disease,. Prion Disease, Chronic Fatigue Syndrome and the Harmful Algal Bloom programs to prioritize funding for core infectious disease and surveiIlance activities. The Budget also includes $25 minion for the wastewater surveillance program within the Emerging Infectious Diseases PPA."

Some bad news for people living with #MECFS.

Under the 2026 "passback", the "reorganization" of HHS and CDC would cut all ME/CFS funding from CDC.

I think this is a 'scoop', since I'm unaware of anyone having reported on it, yet.

Let's talk about what a passback is, and what it means for us. 🧡πŸ§ͺ

17.04.2025 15:53 β€” πŸ‘ 214    πŸ” 105    πŸ’¬ 14    πŸ“Œ 13
Preview
Heartwrenching: The End of A 25-Year Career A contributor shares a touching essay about her life international development and the payback for doing God's work.

Another real story from a USAID worker. This is who we are. Don't look away.

open.substack.com/pub/scaan/p/...

21.02.2025 00:49 β€” πŸ‘ 272    πŸ” 62    πŸ’¬ 6    πŸ“Œ 2
Myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) patients and healthy volunteers needed for study
Stanford University

Logo Image
We are recruiting individuals with ME/CFS and healthy volunteers
Share study
Age:
18-95
Sex:
Any
Healthy Volunteers:
Yes
Keywords:
Myalgic encephalomyelitis, Chronic Fatigue Syndrome, ME/CFS, Healthy Controls
Investigator
Ronald W Davis, PhD profile pic
Ronald W Davis, PhD
Stanford Genome Technology Center
View profile

Myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) patients and healthy volunteers needed for study Stanford University Logo Image We are recruiting individuals with ME/CFS and healthy volunteers Share study Age: 18-95 Sex: Any Healthy Volunteers: Yes Keywords: Myalgic encephalomyelitis, Chronic Fatigue Syndrome, ME/CFS, Healthy Controls Investigator Ronald W Davis, PhD profile pic Ronald W Davis, PhD Stanford Genome Technology Center View profile

Recruiting study for people with ME/CFS & healthy controls who can get to Palo Alto, CA, USA (along with the possibility of home visits for some nearby).
studypages.com/s/myalgic-en...

Janet Dafoe @janetdafoe.bsky.social plugged it today.

#MEcfs #CFS

13.02.2025 22:30 β€” πŸ‘ 23    πŸ” 10    πŸ’¬ 1    πŸ“Œ 0

One thing Democratic leadership could do right now is to name an alternate HHS secretary--someone to provide ongoing public updates and health information. And do it for other departments too. Start showing voters what a Democratic government would look like--press conferences, speeches, all of it.

13.02.2025 17:33 β€” πŸ‘ 13362    πŸ” 3353    πŸ’¬ 539    πŸ“Œ 706
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Thank goodness for the American Medical Association. Here is their YouTube page. Please share far and wide. Right now bird flu is spreading throughout our country and most people have no clue. Please stay updated and bookmark this page for your health and well-being.

www.youtube.com/@americanmed...

12.02.2025 20:45 β€” πŸ‘ 28875    πŸ” 12416    πŸ’¬ 507    πŸ“Œ 418
Preview
How white nationalism infiltrated the wellness industry - ABC listen A deep dive behind the scenes in the wellness industry in the United States and the UK has uncovered a strange connection between a number of soap, tea and other wellness products, and companies suppo...

I heard a very interesting radio interview on the Australian national broadcaster about the intersection of the wellness industry and white supremacism.
www.abc.net.au/listen/progr...

13.02.2025 22:39 β€” πŸ‘ 5    πŸ” 4    πŸ’¬ 1    πŸ“Œ 0

A lot of chronic illness is post viral. People are healthy until they get flu, mono, covid etc

It only takes one infection to upend your life & leave you with severe disabilities

RFK Jr says he wants to end chronic illness epidemic & yet will make avoiding viruses harder

Get boosted. Wear a mask.

13.02.2025 21:06 β€” πŸ‘ 777    πŸ” 233    πŸ’¬ 22    πŸ“Œ 10

How much Elon Musk makes from the government a day: $8 million.

How much a senior on Social Security gets a day: $65

Note: In 2024 alone, Musk’s enterprises were awarded approximately $3 billion across nearly 100 federal contracts, averaging about $8 million per day.

13.02.2025 21:23 β€” πŸ‘ 8292    πŸ” 2543    πŸ’¬ 142    πŸ“Œ 102

It's even worse, they literally said to test EMFs for chronic disease. Those bullshit sticker grifts are about to boom. I hate this so much

14.02.2025 01:10 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0

NEW: My office is hearing that DOGE is now at the IRS. That means Musk's henchmen are in a position to dig through a trove of data about every taxpayer in America. And if your refund is delayed, they could very well be the reason.

13.02.2025 19:01 β€” πŸ‘ 12500    πŸ” 4654    πŸ’¬ 1492    πŸ“Œ 568
Preview
Establishing the President's Make America Healthy Again Commission By the authority vested in me as President by the Constitution and the laws of the United States of America, itΒ isΒ hereby ordered: Section 1.

"assess the prevalence of and threat posed by the prescription of selective serotonin reuptake inhibitors, antipsychotics, mood stabilizers, stimulants, and weight-loss drugs"

good time time become an antipsychiatry grifter in the US

www.whitehouse.gov/presidential...

13.02.2025 21:37 β€” πŸ‘ 1771    πŸ” 529    πŸ’¬ 329    πŸ“Œ 1769

I think that it's interesting to have this borderline spiritual experience around something that is very modern/scientific/aspiritual. You don't think about religion at the phlebotomist or filling out surveys, usually. And yet. Reminds me of a unit I took on medical anthropology/religion- med ritual

07.02.2025 03:07 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0

To be clear I mean vocation in the Eastern Orthodox sense.

But yeah. I don't know that I'd describe disability itself as a calling, but I do feel pretty strongly about my contributions to the disabled community and scientific research as a lab rat. And I think that's a spiritual vocation, for me.

07.02.2025 03:05 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 1    πŸ“Œ 0
Ham radio license 101 *Please see safety note added to the end of this post. The Cost: Exam is $14. If passed, the license fee is $35. Optional classes and study materials vary in cost. (How much are Ham Radios? You caοΏ½...

Curious about getting a ham radio license? Don't know where to start or feel intimidated?

Check out this "ham radio license 101" blog post.

If you have trouble accessing it for some reason, let me know.

www.tumblr.com/disastertras...

#HamRadio #AmateurRadio

05.11.2023 03:22 β€” πŸ‘ 8    πŸ” 5    πŸ’¬ 1    πŸ“Œ 0

And by "today" I mean for the last five minutes when it flew into my funnel.

07.02.2025 03:01 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
The Discovery of Shakti: Mark Dyczkowski
YouTube video by Science and Nonduality The Discovery of Shakti: Mark Dyczkowski

Here's Mark Dyczkowski in action, expounding the core teachings of nondual Saivism.
www.youtube.com/watch?v=tdWG...

03.02.2025 12:13 β€” πŸ‘ 21    πŸ” 5    πŸ’¬ 0    πŸ“Œ 0

I am thinking about the intersection of disability and spirituality today. Spoke to someone about kink as vocation - their thoughts are resonating with me and I'm thinking about how that might apply to disability. Obviously it's not a choice- but forming ones identity around one's illness can be.

07.02.2025 02:59 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 2    πŸ“Œ 0
book cover: "Delinquent Elementals" edited by Phil Hine & Rodney Orpheus. Hardback with dustjacket showing two men and a woman sitting in a magical circle with a computer surrounded by a variety of demonic figures, plus political figures from the 1980s.

book cover: "Delinquent Elementals" edited by Phil Hine & Rodney Orpheus. Hardback with dustjacket showing two men and a woman sitting in a magical circle with a computer surrounded by a variety of demonic figures, plus political figures from the 1980s.

Out now, "Delinquent Elementals" edited by myself and @rodneyorpheus.bsky.social available from @strangeattractor.bsky.social
strangeattractor.co.uk/shoppe/delin...

06.02.2025 11:24 β€” πŸ‘ 126    πŸ” 27    πŸ’¬ 5    πŸ“Œ 2
Post image

If anyone wants to check out my PhD thesis, it's an analytic autoethnography about magick and music-making over a decade of shifting practice. It also has a chapter with a lot of West Yorkshire occulture/zine stuff in there! figshare.leedsbeckett.ac.uk/articles/the...

06.01.2025 19:04 β€” πŸ‘ 53    πŸ” 9    πŸ’¬ 3    πŸ“Œ 1
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Zines on the web! Archive org has a load of scans of influential UK Fortean/UFO/paranormal zine Magonia! archive.org/search?query...

12.01.2025 21:03 β€” πŸ‘ 47    πŸ” 13    πŸ’¬ 1    πŸ“Œ 1

oh man this one looks very cool

07.02.2025 02:52 β€” πŸ‘ 1    πŸ” 0    πŸ’¬ 1    πŸ“Œ 0
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Zines on the Web #6 - Sticking with subcultures intersecting with occulture, Tape-Mag also has some great stuff squirrelled away on the site... You may need to register to access some material IIRC: tape-mag.com

26.01.2025 23:58 β€” πŸ‘ 20    πŸ” 4    πŸ’¬ 0    πŸ“Œ 0
A purple and teal ombre image announces, "Update! Long COVID Essentials, new resources are live!
- ME/CFS, Severe ME, Fatigue & PEM
- Getting help- finding providers, tracking symptoms, meds to consider
- Understanding research, & more
- Long COVID in children & youth
- Long COVID in people living w/ HIV and trans people
- First set of resources in Spanish!
The footer reads, "The Sick Times x Long COVID Justice."

A purple and teal ombre image announces, "Update! Long COVID Essentials, new resources are live! - ME/CFS, Severe ME, Fatigue & PEM - Getting help- finding providers, tracking symptoms, meds to consider - Understanding research, & more - Long COVID in children & youth - Long COVID in people living w/ HIV and trans people - First set of resources in Spanish! The footer reads, "The Sick Times x Long COVID Justice."

We’re thrilled to release the next batch of resources in our Long COVID Essentials series, in partnership with @longcovidjustice.bsky.social! 32 new resource sheets! Our first batch of resources in Spanish! Please feel free to share far and wide! bit.ly/3BtGPKW

19.12.2024 18:44 β€” πŸ‘ 146    πŸ” 69    πŸ’¬ 7    πŸ“Œ 2

CDC is already struggling with being targeted and we kind of need them for public health and safety. Maybe don't.

07.02.2025 02:34 β€” πŸ‘ 1    πŸ” 0    πŸ’¬ 1    πŸ“Œ 0

Oh

06.02.2025 01:10 β€” πŸ‘ 5975    πŸ” 1643    πŸ’¬ 168    πŸ“Œ 119

Very nearly flooding the central valley too

07.02.2025 02:30 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0

EB makes an important point that i want to make sure is seen!

And advocating for a particular goverment service is a great lane to be in right now. The point I'm trying to make in this thread is that it does require focus and dedication.

You can't do everything but many people can each do 1 thing.

04.02.2025 01:30 β€” πŸ‘ 269    πŸ” 68    πŸ’¬ 1    πŸ“Œ 0

Y'all pick a lane. Then make a little progress in your lane each day.

Every serious, experienced organizer I know is Doing Their Thing. Instead of freaking out about each bit of bad news, we're in our lanes rapidly building dual power infrastructure and networks that don't rely on the goverment.

04.02.2025 01:13 β€” πŸ‘ 3897    πŸ” 1237    πŸ’¬ 48    πŸ“Œ 122

@eucatastrophe is following 20 prominent accounts