Abigail Johnston's Avatar

Abigail Johnston

@amjohnston.bsky.social

Daughter, sister, wife, mom, lawyer and shenanigator living out loud with MBC since 2017.

1,629 Followers  |  6,046 Following  |  225 Posts  |  Joined: 19.09.2023  |  2.1114

Latest posts by amjohnston.bsky.social on Bluesky

Iโ€™ll be sharing my cancer-related thrombosis story at this webinar. If you are a cancer patient, or are caring for one, please register for free. Info ๐Ÿ‘‡

23.10.2025 16:46 โ€” ๐Ÿ‘ 6    ๐Ÿ” 2    ๐Ÿ’ฌ 1    ๐Ÿ“Œ 1
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A Podcast About Podcasts: Podcasts as Educational Tools for Providers (and Patients) | Podcast | ASCO Publications Dr. Chino welcomes Dr. Vivek Patel and Dr. Eleonora Teplinsky to discuss a recent article in JCO OP that reported a podcast-based curriculum could improve knowledge and comfort with common education t...

I am happy to welcome 2๏ธโƒฃ guests to discuss the role of podcasts to improve information sharing. They are both podcast hosts, making this @ascocancer.bsky.social 's 1st podcast about podcasts.
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๐ŸŽ™๏ธDrs Patel The Fellow on Call & @drteplinsky.bsky.social Interlude Podcast

23.10.2025 14:19 โ€” ๐Ÿ‘ 7    ๐Ÿ” 3    ๐Ÿ’ฌ 1    ๐Ÿ“Œ 0

#CanSky

19.10.2025 20:24 โ€” ๐Ÿ‘ 11    ๐Ÿ” 3    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 1

Today would have been Gwenโ€™s birthday. She was stolen from us by MBC.

20.10.2025 12:16 โ€” ๐Ÿ‘ 2    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 1
Graphic showing Metavivor is participating in the Community Resource Village at the American Cancer Society breast cancer walk at Soldier Field in Chicago on October 18

Graphic showing Metavivor is participating in the Community Resource Village at the American Cancer Society breast cancer walk at Soldier Field in Chicago on October 18

Start your Saturday with @metavivor.bsky.social at the @americancancersoc.bsky.social walk at Chicagoโ€™s Soldier Field! Come on down, rain or shine #cansky

18.10.2025 11:00 โ€” ๐Ÿ‘ 3    ๐Ÿ” 1    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0

Hope you will consider participating! @thankscancer.bsky.social #oncosky #oncsky #bcsm #cansky 3/3

18.10.2025 10:27 โ€” ๐Ÿ‘ 0    ๐Ÿ” 1    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0
This Is My MBC

Interested in sharing about yto consider participating. You can learn more here: www.mbcalliance.org/this-is-my-m.... There's also a place to sign up to receive information as people add their stories and sharing has begun. 2/3

18.10.2025 10:27 โ€” ๐Ÿ‘ 1    ๐Ÿ” 1    ๐Ÿ’ฌ 1    ๐Ÿ“Œ 0

Interested in sharing about your experience of living with MBC? The Metastatic Breast Cancer Alliance has launched a new initiative designed to educate the public on the experience of living with MBC and I would like to invite anyone who is living with MBC or their person is living with MBC 1/3

18.10.2025 10:27 โ€” ๐Ÿ‘ 5    ๐Ÿ” 5    ๐Ÿ’ฌ 1    ๐Ÿ“Œ 0
2025 Metastatic Breast Cancer: From Surviving to Thriving This is a free, educational event for patients with metastatic breast cancer & their caregivers hosted by Fred Hutch.

Just Dx'd w/#metastatic #breastcancer & looking 4 support, #clinicaltrials, new treatments? Check out this FREE pt event Sat, Nov 1, 8-3:15 PDT at @fredhutch.org. Topics include: financial health, sexual health, new #MBC treatmnts, nutrition, exercise, CTs & more! #CanSky @thankscancer.bsky.social

17.10.2025 17:12 โ€” ๐Ÿ‘ 3    ๐Ÿ” 3    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0
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MBC BCAM awarenessย #2 Good morning! Picking up where I left off last week with Breast Cancer Awareness month educational tiles from Metavivor: In 2017, I was 38 and had never had a mammogram because I did not yet meet the criteria for screening. I received my first mammogram in the process of my de novo diagnosis and if I had been getting mammograms, the density of my breast tissue and the fact I was breastfeeding would have affected the results. Every person needs to know their individual risk and which screening and diagnostic testing is the best for their body.

MBC BCAM awarenessย #2

Good morning! Picking up where I left off last week with Breast Cancer Awareness month educational tiles from Metavivor: In 2017, I was 38 and had never had a mammogram because I did not yet meet the criteria for screening. I received my first mammogram in the process of myโ€ฆ

13.10.2025 11:01 โ€” ๐Ÿ‘ 5    ๐Ÿ” 1    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0

Such a great way to put it! I did a few decades as a trial attorney and had too many medical malpractice cases to think any doctor gets it right all the time. Iโ€™m up to 42 medical mistakes that I have caught in the 8 years Iโ€™ve been living with MBC. We all do our best.

11.10.2025 00:19 โ€” ๐Ÿ‘ 0    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0

Thatโ€™s probably the best place to start and then a genetic counselor will be your guide if there are results you need to address.

10.10.2025 20:45 โ€” ๐Ÿ‘ 0    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0
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What you need to know about lobular breast cancer Dr. Cassann Blake, a breast surgical oncologist at the Cleveland Clinic, on lobular breast cancer.

Great 2C #lobular #breastcancer coverd by @cbsnews.com but it wld have been helpful 2 mention:

*Lobular #BC dsn't usually make lumps
*So it's often not felt or seen on mamms
*Esp in dense breast tissue
*It's abt changes, not lumps!
*More info @lobularbca.bsky.social
#CanSky #MedSky #CancerBS #bcsm

10.10.2025 15:18 โ€” ๐Ÿ‘ 4    ๐Ÿ” 2    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0

I donโ€™t trust any medical provider absolutely and regularly get second opinions to obtain different pieces of the puzzle so I can make the best decision. Oncology isnโ€™t black and white and there are many gray areas. No one has all the answers.

10.10.2025 20:44 โ€” ๐Ÿ‘ 2    ๐Ÿ” 0    ๐Ÿ’ฌ 1    ๐Ÿ“Œ 0
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Spotlight on lobular breast cancer: What patients, PCPs & oncologists need to know Hear from Fred Hutch experts about lobular breast cancerโ€™s history, screening and surveillance challenges, new findings and clinical trials.

Just diagnosed w/#lobular #breastcancer & wondering what the heck that is? Join me & @fredhutch.org #ILC experts THIS Wed OCT 15 3-5pm in person or via Zoom 4 a breakdown of new research, #clinicaltrials & more. Register ๐Ÿ‘‡๐Ÿ‘‡
@thankscancer.bsky.social #CanSky #bcsm

www.fredhutch.org/en/events/sp...

09.10.2025 01:05 โ€” ๐Ÿ‘ 5    ๐Ÿ” 2    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 1

Have you had genetic testing to see if there is a genetic mutation in your family?

10.10.2025 01:31 โ€” ๐Ÿ‘ 0    ๐Ÿ” 0    ๐Ÿ’ฌ 1    ๐Ÿ“Œ 0
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Catching up on some MBC BCAMย awareness! Each October, Metavivor shares tiles of educational information and 2025 is no different. I'll be sharing information throughout the month as I have the time/bandwidth and today I'm catching up on the first week of tiles: Approximately 117 people in the United States die every day from Stage IV Metastatic Breast Cancer (MBC) -- that's the equivalent of a plane load of people falling out of the sky to their deaths every single day.

Catching up on some MBC BCAMย awareness!

Each October, Metavivor shares tiles of educational information and 2025 is no different. I'll be sharing information throughout the month as I have the time/bandwidth and today I'm catching up on the first week of tiles: Approximately 117 people in theโ€ฆ

06.10.2025 15:49 โ€” ๐Ÿ‘ 3    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0
MSN

www.msn.com/en-us/news/p... "Morality is not a buffet"....pope's words remind people that #pro-life means taking care of others, no killing, etc.

03.10.2025 14:18 โ€” ๐Ÿ‘ 2    ๐Ÿ” 1    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0

This and the funding cuts for cancer research could literally kill me.

I can't even describe what that feels like. ๐Ÿ˜Ÿ

#Cancer #Stage4 #Melanoma #Metastatic #CancerResearch #CanSky #DermSky

01.10.2025 23:52 โ€” ๐Ÿ‘ 2    ๐Ÿ” 2    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0
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Hey my #Cansky folks. Iโ€™m happy to announce Vanderbilt Ingram Cancer Center is hosting a young adults cancers symposium in November! Come join me.

Itโ€™s FREE for patients. Would appreciate anyone spreading the word ๐Ÿซถ๐Ÿป #Oncsky #Medsky

29.09.2025 15:05 โ€” ๐Ÿ‘ 7    ๐Ÿ” 2    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 2
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Iโ€™m excited and honored to say I will be joining the Judy Nicholson Kidney Cancer Foundation Board of Directors in 2026.

I could never imagine when I was first diagnosed that I would dive headfirst into cancer advocacy. But here we are.

30.09.2025 20:24 โ€” ๐Ÿ‘ 8    ๐Ÿ” 1    ๐Ÿ’ฌ 1    ๐Ÿ“Œ 0
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Itโ€™s October Again โ€ฆย 2025 While we don't see the fall seasons so much here in Florida from the trees, the rising incidences of pink smothered whatever always reminds me that October has arrived. Similar to other holidays, retailers get a start earlier and earlier in the year to capitalize on a larger timeline for sales. And while some of the most egregious perpetrators of Pinkwashing have been confronted and some have adjusted their behaviors, it's still something that is pretty clearly happening more than it should.

Itโ€™s October Again โ€ฆย 2025

While we don't see the fall seasons so much here in Florida from the trees, the rising incidences of pink smothered whatever always reminds me that October has arrived. Similar to other holidays, retailers get a start earlier and earlier in the year to capitalize on aโ€ฆ

01.10.2025 11:03 โ€” ๐Ÿ‘ 2    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0
Navigating the Gray Areas of Cancerย Treatment Just popping in with a quick update as I've been remiss lately in keeping everyone updated. When so much is happening and changing in a short period of time, it's easy to forget that everyone else isn't doing this strange one foot in medical offices and the other in the real world existence. Periods of disruption to the routine/schedule are pretty consistent in this MBC experience and I have to say that it's a lot to handle when you have to juggle as much as is going on in our lives, but we persist.

Navigating the Gray Areas of Cancerย Treatment

Just popping in with a quick update as I've been remiss lately in keeping everyone updated. When so much is happening and changing in a short period of time, it's easy to forget that everyone else isn't doing this strange one foot in medical officesโ€ฆ

17.09.2025 11:06 โ€” ๐Ÿ‘ 2    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0

It IS a ridiculous policy and insurance companies take advantage.

11.09.2025 15:47 โ€” ๐Ÿ‘ 2    ๐Ÿ” 1    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0

Iโ€™m on the fence as to whether this would actually help. It seems to be adding unnecessary red tape to me but Iโ€™m also not a fan of fail first or step therapy generally. Why should anyone have to suffer through meds that wonโ€™t help when there is something that can?

11.09.2025 03:28 โ€” ๐Ÿ‘ 2    ๐Ÿ” 0    ๐Ÿ’ฌ 1    ๐Ÿ“Œ 0

Such a fascinating article.

11.09.2025 03:26 โ€” ๐Ÿ‘ 0    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0
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๐ŸŽ™๏ธ Exciting news! Our new podcast, โ€œLive from Stage 4,โ€ is here. Join us as we dive deep into the real stories.
๐Ÿ‘‰ Visit livefromstage4.org and follow us for updates! #cansky #oncosky #oncsky #mbc

09.09.2025 16:06 โ€” ๐Ÿ‘ 6    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0
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Pediatric Brain Cancer Group to Lose Federal Funding

Thank you @nytimes.com for featuring this upsetting news about the loss of #childhoodcancer funding for #braintumors. It was my pleasure to speak with #NinaAgrawal for this piece. But I wish circumstances were different and we didn't need this article at all.

www.nytimes.com/2025/08/28/w...

29.08.2025 18:36 โ€” ๐Ÿ‘ 13    ๐Ÿ” 4    ๐Ÿ’ฌ 2    ๐Ÿ“Œ 1

Let's get politics the f*ck out of #publichealth. #IDSky #CanSky

29.08.2025 00:35 โ€” ๐Ÿ‘ 11    ๐Ÿ” 2    ๐Ÿ’ฌ 1    ๐Ÿ“Œ 0
Post image 28.08.2025 08:01 โ€” ๐Ÿ‘ 4    ๐Ÿ” 1    ๐Ÿ’ฌ 1    ๐Ÿ“Œ 0

@amjohnston is following 19 prominent accounts