Abigail Johnston

ReBlog: Journeying Beyond Breast Cancer’s Weekly Round-Up

As a lawyer, I have lots of concerns about AI — although most of what is available now is more machine learning than true AI. Patients absolutely need to be part of the conversation at all levels.

Finding Clinical Trials: A Patient’s Guide During the 2025 San Antonio Breast Cancer Symposium (SABCS), I had the privilege of participating a panel discussion that was a collaboration between the Alamo Breast Cancer Foundation, the Metastatic Breast Cancer Alliance (MBCA), the American Association of Clinical Research (AACR) and the Advanced Breast Cancer Global Alliance (ABCGA). Dr Fatima Cordoso and Teri Pollastro were the moderators, Dr. Mariana Chavez MacGregor from MD Anderson was the keynote speaker, and in addition to myself, Kirstin Spencer from METUPUK was a panelist. The title of our discussion was, in part, Demystifying Clinical Trials.

Finding Clinical Trials: A Patient’s Guide

During the 2025 San Antonio Breast Cancer Symposium (SABCS), I had the privilege of participating a panel discussion that was a collaboration between the Alamo Breast Cancer Foundation, the Metastatic Breast Cancer Alliance (MBCA), the American…

ReBlog: Weekly Round-Up from Journeying Beyond Breast Cancer

Navigating Life’s Turmoil: A Call for Connection and Action When we add up all of the chaos, only exacerbated by the perpetual news cycle, the burden of trying to find truth when no one gives us everything, it is entirely reasonable to feel paralyzed, to feel as though all hope is lost, to not know where to turn. Whenever I turn on the news, I am bombarded by the different events, by rhetoric and opinions, by shocking videos, by big changes to systems we rely upon. It feels so big, it feels so chaotic, it feels overwhelming. I find it hard to look away, I find it hard to keep looking.

Navigating Life’s Turmoil: A Call for Connection and Action

When we add up all of the chaos, only exacerbated by the perpetual news cycle, the burden of trying to find truth when no one gives us everything, it is entirely reasonable to feel paralyzed, to feel as though all hope is lost, to not…

A Terrible Strength by Kemi Doll, MD, MSCR: 9780593977477 | PenguinRandomHouse.com: Books Black women are facing a systemic gynecological health crisis. This book gives them the tools needed to unlearn the medical normalization of their suffering and offers a path forward to healing—by...

BIG NEWS! #gynca expert @kemidoll.bsky.social has written a book on Black #womenshealth, esp Black maternal health & the ONGOING systemic gyn health crisis killing Black women. #endo #cancer #blackwomb #CanSky @enddisparities.bsky.social

Pre-order here:👇
www.penguinrandomhouse.com/books/775526...

I’ve been over and over the raw data with a statistician. It’s mind boggling to me (only had two stats courses in college a few decades ago), but trust his interpretation and he showed me how he got there.

#Cansky

I wrote something here. It was a bit too long to post so refer to the photos please 🫶🏻.

Data from SEER is actually that 30% of people diagnosed with an early stage diagnosis progress to Stage IV and this hasn’t changed. Everyone needs to be supported and informed differently.

I miss Beth so much. She was a kind, generous, lovely gem of a person.

No #cancer screening means those w/cancer will be diagnosed later when the disease is #metastatic, which means their options (and lives) will be limited. Lack of access 2 screening is often why underserved populations die from cancer at a higher rate than those w/access. #screeningsaveslives #CanSky

WHO Analysis Finds No Causal Link Between Vaccines and Autism An analysis from the World Health Organization (WHO) Global Advisory Committee on Vaccine Safety (GACVS) concluded that there is no causal link between vaccines and autism spectrum disorder, according...

For those in the back who didn't hear it the first 500K times: there's no link between vaccines and autism. #IDSky #CanSky

jamanetwork.com/journals/jam...

Agreed!

Hanging in there. Boys are thriving! Thankful to be here for all of it.

Thank you! It’s been quite a few months. Appreciate your support.

When a door closes, open a window … but what about when you run out of windows?

Trying to get back to blogging this year! Appreciate you thinking of me.

ReBlog: Weekly Round Up by Journeying Beyond Breast Cancer Thankful to Marie at Journeying Beyond Breast Cancer for gathering up amazing blogs every single week and sharing her weekly round up. Sharing here so you can learn more about the various bloggers she brings together week after week — each of them is worth a follow! Warmly, Abigail

Reboot: Weekly Round up by Journeying Beyond Breast Cancer

Ty!

Medical updates, January 2026

Happy New Year, 2026 Entering 2026, the author reminisces about words selected previously and announces her word for 2026.

Happy New Year, 2026

Right up my alley!

Would love to help with this — I’m speaking tomorrow about “demystifying clinical trials,” and have recently enrolled in my 14th clinical trial.

Compliments can be just as dehumanising as insults if they are used to skate over the reality of the situation.

#cansky

1/5

I go back consistently to look for trends. Radiologists don’t always mention everything and some of us have too many Mets to make it easy so I also often ask for over reads when specific things aren’t noted consistently.

Happy to say that I will be on a panel for this event coming up this weekend on Saturday! Thrilled to be talking about all of the various issues that young adults with cancer face in today’s world!

There are many you might not think about!

#Cansky

You gotta be kidding me
#bcsm
#oncosky

Citing Trump Order on “Biological Truth,” VA Makes It Harder for Male Veterans With Breast Cancer to Get Coverage A Department of Veterans Affairs memo obtained by ProPublica erects new roadblocks to care for veterans with the rare but deadly cancer. The agency cites no new science but relies on an executive orde...

“'I don’t care if it’s toenail #cancer,' said Kirby Lewis, Dx'd w/#breastcancer ~12 yrs ago & now Stage 4. 'If exposure occurs, they shld take care of those ppl.' Lewis said the 🍊 admin’s decision risks further stigmatizing men w/#BC. 'There’s this machinismo aspect, [men] ..." 1/2 #CanSky #bcsm

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Live From Stage 4 | Join the Conversation – Empower Yourself A podcast providing insights, stories, and support for metastatic breast cancer patients and advocates. Join us to stay informed and empowered.

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👉 Listen here: www.livefromstage4.org or your favorite podcast streaming platform. #cansky #oncsky #oncosky