Barbi

SEIZE JOY FROM THE JAWS OF PAIN. DO YOU HAVE SOMEONE YOU CAN TALK TO?

For some reason, I thought you weren't on BlueSky yet. SO glad you are.
And...I relate SO much.

Sucks that we can't click on this and have the topic we choose brought to us through it.

When ppl say they're in a bad spot,

u DON'T leap OFF social media w some complex abt IT

& ignore ur friend.

You investigate their posts,
so that ur neglect doesn't make them worse.

Fucking care.

#MECFS #pwME #PTSD #cPTSD
#ISOLATION #Neglect #Breadcrumbing #Abuse
#Spoonies #ChronicIllness #NEIS

I wander here,
frantically searching.

But you see,
I am dead already.

Without the pleasure of death.

.

#MECFS #EBV #Mono #IACC #SEID #pwME #PTSD
#ChronicIllness #Disability #Disabled #Spoonies
#Viral #Death #SI
#NEIS #NEISvoid

You're making up words now.. 😖

It's a
babyyyyy.

🐆 😥 💘 🥲

#Cats #Cat #CatsOfBlueSky #CatsOfTikTok #NotMyCat
#Memes #Meme
#EasyLikeSundayMorning #Lionel #Cosmo
#Classic #Songs #Singing #Music

Where are ALL the #SPOONIES?

The ones w/ #ChronicIllness?

The #MECFS babes?

Please show yourself w/ a hi!

#LongCOVID #ME #CFS #SEID
#MILLIONSmissing
#EBV #EpsteinBarr #Mono
#POTS #Dysautonomia
#HSD #Hypermobility #EDS
#DisabledByVIRUS #Disabled #Disability
#Sick #NeverGotBetter
#NEIS #NEISvoid

It's a
babyyyyy.

🐆 😥 💘 🥲

#Cats #Cat #CatsOfBlueSky #CatsOfTikTok #NotMyCat
#Memes #Meme
#EasyLikeSundayMorning #Lionel #Cosmo
#Classic #Songs #Singing #Music

EXACTLY!
It makes some of us Night Owl-y
...or work off something other than a 24-hr rhythm...to lengthen the end of our day.
More than subconscious for me.

Why would I wanna cut SHORT
the BEST time of my day, physically, mentally, emotionally, creatively, productively.......??

#MECFS #Spoonies

EXACTLY!
It makes some of us Night Owl-y
...or work off something other than a 24-hr rhythm...to lengthen the end of our day.
More than subconscious for me.

Why would I wanna cut SHORT
the BEST time of my day, physically, mentally, emotionally, creatively, productively.......??

#MECFS #Spoonies

RELISH IN THE SCREAMS OF YOUR ENEMIES! ARE YOU HYDRATED?

If you think
about it hard enough,
we're nothing but
a collection of
trauma responses. Cheers! 🍻

Sometimes you don't know
HOW fucking badly
you need the
'thank you, that's really sweet
of you, same!'

...until you're not getting it enough times

...where it used to be,
or where you yourself
usually often can add it in.

*whispers quickly n' softly*
I want you

Same here 😴

Not completing Conversation,
being interrupted/ignored
= lil' Deaths to me
every time

Same!

Well hey!

Hi there, Jacqueline!
MECFS/EBV/POTS/HSD etc etc.
Solidarity! 🫂

I feel like I'm dying inside.
It's loud. It's so loud.
With my closed mouth.

I am a HUMAN.
I need touch, affection,
hugs, eye contact,
and in person interaction.
Connection.

Like everyone else.
I've never not deserved that.

The more of it you're privileged to have, the more you're annoyed by it.
The more you need it, the more out of reach.

Where are ALL the #SPOONIES?

The ones w/ #ChronicIllness?

The #MECFS babes?

Please show yourself w/ a hi!

#LongCOVID #ME #CFS #SEID
#MILLIONSmissing
#EBV #EpsteinBarr #Mono
#POTS #Dysautonomia
#HSD #Hypermobility #EDS
#DisabledByVIRUS #Disabled #Disability
#Sick #NeverGotBetter
#NEIS #NEISvoid

I don't WANT to
ONLY have
technology for conversation. 😢
Tech
that people come to devalue.

That's how connecting gets
CUT...so short
...RIGHT as (I think) we're getting started
...RIGHT when I'm excited

...for ANYthing in life

that is just
...REAL.

🕳
#NEIS #Isolation
#Disabled #MECFS

I feel
soooooooo
unbelievably
fucking
SUPPRESSED.

And kept...
from
FULL CONVERSATIONS...
daily.

😥
#NEIS #Spoonies

The Daily Show was incredible, thank you, Jon Stewart!

^ ^ #ChronicIllness #Spoonie #Spoonies #NEIS #NEISvoid
#Disability #Disabled
#MillionsMissing
#MECFS #MyalgicE #LongCOVID #EBV #Mono

How do you keep sanity
when your most dear connections
are mostly just avail online,
online landscapes change,

closest friends are distant or deprioritize "online",
and health makes you stuck at home?

Where do you go when a hug is annual at best,
invites are none,
and messages go...more quiet? 😨

Yesterday
started out too well.

Of course it has to burst
into flames
and me into tears.

A great deal of our problems result from not holding those who tried to destroy our democracy accountable for their actions.