DecodeME: The Results announcement post. The graphic has a blue background with a DNA helix. In the centre of the graphic it says βWe have released our initial DNA results! We have discovered that your genes contribute to your chances of developing ME/CFS.β At the bottom left of the graphic is an image of a research paper.
Our initial DNA results! DecodeME have discovered that people with an ME/CFS diagnosis have significant genetic differences compared to the general population.
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Summary of our results: shorturl.at/pgsjk
Check out our full preprint paper: shorturl.at/VwN3s
06.08.2025 18:24 β π 223 π 129 π¬ 16 π 33
Because Americans are so thoroughly steeped in eugenicist thinking, they are unable to actually think about RFK.
You see people try to argue against his eugenicism by advocating that same eugenics just in different words.
06.08.2025 17:59 β π 174 π 34 π¬ 2 π 2
I must confess I blocked him before I could see any other gems heβs come up with, todayβs migraine didnβt need any extra fuel π
06.08.2025 18:27 β π 0 π 0 π¬ 0 π 0
Itβs a good day to bring this one back it seemsβ¦ Sending hugs to Disabled and Chronically Ill People, especially those of us who still mask to protect ourselves π©Ά
You are NOT to blame for your own oppression
06.08.2025 18:23 β π 8 π 2 π¬ 0 π 0
You mean we wonβt get to see his brilliant takes??? Whatever will we doooooo lol
06.08.2025 18:09 β π 0 π 0 π¬ 1 π 0
Thank you for putting all of my thoughts into words. Disabled people yet again are being blamed for our own oppression. Must be a day ending in Y again π«©
06.08.2025 18:04 β π 3 π 0 π¬ 1 π 0
It truly feels like a sick joke π΅βπ«
06.08.2025 05:44 β π 0 π 0 π¬ 0 π 0
In times like these, I hoped my friends would stand by me. Iβm not asking for much just kindness, just support. Your silence hurts more than the hunger we face. If you care, please donβt look away. My children deserve better than this.
β Vetted by Molly shahβ€οΈπ·
β gofund.me/c5afdabb
05.08.2025 08:58 β π 56 π 68 π¬ 5 π 64
Literalllllyyyyyy!!!!
06.08.2025 04:31 β π 1 π 0 π¬ 0 π 0
Ahhh yes the old game of βIs it Reinfection or is it PEM?β
Long COVID, the gift that keeps on giving π
06.08.2025 04:03 β π 15 π 1 π¬ 2 π 0
Same here βΉοΈ
06.08.2025 03:58 β π 1 π 0 π¬ 0 π 0
please. this hasnβt moved in days. iβm $412 towards meeting my goal. please share and uplift.
CA: $jpat10
PP: jdp5
VM: @ / patjdee
05.08.2025 13:10 β π 2 π 5 π¬ 0 π 0
i think it is hard for some people to really their heads around the reality that kennedy is staunchly anti-vaccine and thinks that people should suffer through disease and that those who die deserved it and that those who survive are a better order of human being
05.08.2025 22:54 β π 7553 π 1847 π¬ 152 π 134
It never stops sucking to have to cancel plans because your body is a jerk, fyi. It remains mortifying and depressing, many years in. Donβt get long covid.
03.08.2025 18:29 β π 268 π 28 π¬ 11 π 3
@meactionuk.bsky.social @meactnet.bsky.social please boost on other platforms. We are scrambling for lawyers to get the sister out as the top priority. I am speaking with national print media this morning.
31.07.2025 07:11 β π 121 π 71 π¬ 15 π 5
getting long covid is a surefire way to figure out which formerly benign people in your life are actually eugenicists and conspiracy theorists
26.07.2025 23:57 β π 158 π 33 π¬ 2 π 2
Presenting #LongCovid as a disease "without biomarkers" is a way to minimize the disease entity. Making it a "mystery", some "fatigue", "unexplained symptoms". Yet, everyone who reads the scientific literature knows that a rich palette of biomarkers are associated with LC
27.07.2025 17:03 β π 144 π 50 π¬ 5 π 2
Ugh thatβs terrible advice π IMO itβs better to tell the doctors so you can weed out the quacks and find the ones who will help! There are a lot of shitty docs out there, but it just takes one good one to make a world of difference
26.07.2025 18:32 β π 1 π 0 π¬ 0 π 0
Iβm so sorry. Itβs a nightmare of a disease π
26.07.2025 18:16 β π 2 π 0 π¬ 0 π 0
OH HEY ITS THE EUGENICS OF DISABLED PEOPLE WE ALL TOLD YOU WAS COMING
24.07.2025 22:39 β π 5102 π 2350 π¬ 32 π 37
I noticed a huge uptick in trolling the last few days aimed at people with disabilities.
Most of them were saying we deserve to be institutionalized.
Today Trump signs an executive order making it legal to institutionalize someone for mental health disabilities.
Feels awfully coordinatedβ¦
24.07.2025 23:10 β π 210 π 72 π¬ 11 π 4
Please donate or share
www.gofundme.com/f/donate-to-...
24.07.2025 18:45 β π 5 π 7 π¬ 0 π 0
We only dream of a safe place⦠Help us protect my child from fear and bombs
Support our family to find safety and rebuild our lives
@zelixir.bsky.social @megclems.bsky.social
Each breath may be our last as starvation tightens its grip. π« We've passed exhaustion - we're in the territory of bodily collapse.
This gift is more than charity β itβs survival. Thank you. π₯Ή
https://kutt.it/Help_my_child
24.07.2025 14:11 β π 1 π 1 π¬ 0 π 0
It is BLEAK
24.07.2025 20:41 β π 3 π 0 π¬ 0 π 0
Man, the state of MECFS and long COVID patient care is dismal
24.07.2025 19:09 β π 61 π 6 π¬ 6 π 1
long covid is hell on earth
22.07.2025 12:16 β π 26 π 2 π¬ 0 π 0
Ableism is so nasty.
13.07.2025 02:03 β π 420 π 25 π¬ 8 π 1
Someone on here told me that it is necessary, in this fascist age, to βallowβ people to use the r-word if they wanted to to βbuild alliancesβ to βdefeat fascismβ as if the word itself isnβt a symptom of eugenics/fascism.
13.07.2025 14:59 β π 171 π 37 π¬ 10 π 7
This is Rowling-level brain rot. I wish someone would write a feature listing all of the Nazi billionaire-whisperers.
13.07.2025 17:39 β π 499 π 84 π¬ 10 π 0
Whatβs happening is eugenics.
Cutting Medicaid. Telling you COVID is mild. Blocking climate research. Rolling back trans rights. Police militarization and brutality. All of it.
Fascism is built on eugenics. So is racism, classism, transphobia, etc.
Any resistance must center disability justice.
01.07.2025 00:22 β π 780 π 304 π¬ 7 π 6
𧬠The worldβs biggest study of genetic causes of #MECFS. Launched September 2022. 𧬠https://www.decodeme.org.uk/
βWeβre driving in the dark with our sunglasses on!β
Retired lecturer/therapist - feminism, politics, music, culture, science, languages #LC. Woke AF
#ME (1987) π³οΈββ§οΈπ΅πΈ
Maker of #FanningTheFlames
π« OnlyFans, GoFundMe, DMs
@MEownersClub.bsky.social
Hello my friends, I am Ola from Gaza. I came here to be with your family and to help us get out of the war crises we are living. Please help us as much as you can.Support link belowπ
β
Verified by Molly shah
π tinyurl.com/Support-Lutfi-and-his-family
βvague, but excitingβ¦β
Long-COVID Survivor & Advocate.
π’ Enthusiast, βοΈ Geek, βοΈCancer
Cleveland, OH
Neuroscience MSc
π¦ dad
Founded Resolvve Inc to make therapy affordable for students
Science, health and tech journalist published in Being Patient, NYT, The Guardian's Scientific Observer, The Sick Times, and The Daily Beast
indie journalist
Signal: Lygia.65
(editor, producer, en ES & EN)
cover: Latine, LGBTQ+, health stories +more #DisabilityJustice.
disabled. queer. #LongCovid + #ME.
lygianavarro.com
contributing writer @discojourno.bsky.social & @thesicktimes.bsky.social
san francisco writer, reader, birder & beachcomber
here to meet marxists who read the FT & folks who care about clean air and masks π·
writing a book about pandemic & protest
http://brittashoot.com
Health/science + Arctic journalist. Stories for the Guardian, the New Republic, NPR, etc. Book enthusiast and sometimes reviewer.
Email: melodyschreiber@proton.me
Signal: melodyschreiber.06
Newsletter: notadoctor.news
Freelance science & medical journalist | Bylines in Nature, C&EN, Veritasium, ScienceAlert, The Guardian, ABC News, news.com, Croakey, The Medical Republic | http://frogsandstars.com (she/her)
Lawyer, writer, mother, dog lover, hoya, voter, straphanger. Here for books, birds, and banter without the hate. βKindness eases change, love quiets fear.β -Octavia Butler
author--science & arts journalism, fiction (children & adult), nonfiction (children & adult), poetry, essays.
Science writer, insect enthusiast, part-time pro runner and coach. (she/her)
πππ
https://joannathompson.work/
journalist @nyc.streetsblog.org, dmeyer@streetsblog.org π³οΈβπ
Co-Founder of Long COVID the Answers
Passionate Advocate of Long COVID awareness
Family Physician
The Pandemic is not over!
Author of the book βThey Killed Freddie Gray: The Anatomy of a Police Brutality Cover-Upβ (Arcade)
Iβm on twitter @jewstein3000
Confused to still be alive
Award-winning science reporter at KFF Health News. Bylines at Nature, New York Times, National Geographic & more. Covering inequality & public health. RTβ endorsement. www.amymaxmen.com & https://kffhealthnews.org/news/author/amy-maxmen
Award-winning freelance journalist and editor, Disability Review Magazine. Repβd by Artellus & WNF. https://lydiawilkins.substack.com/
Writing is my voice from a hidden world. Published in The Daily Telegraph and Open Democracy. Now focusing on my own website.
www.alifehidden.com