So while yes, there is definitely some "sus" to that statement, there is also SOME truth to it too. I only say this because I don't want someone to disregard it thinking that it's just patriarchy hogwash. There is some truth to it all. But there is likely just as much manure in how some mean too (6)
30.01.2025 14:41 โ ๐ 0 ๐ 0 ๐ฌ 0 ๐ 0
Started attending @rsdsa.bsky.social conferences in hopes to get hints of what I needed to know about what causes it, what symptoms to look for. And I found it. I know how to keep myself in remission 90% of the time when I get there. I'm on my 6th. But it took retraining my self and my brain. (5)
30.01.2025 14:37 โ ๐ 0 ๐ 0 ๐ฌ 1 ๐ 0
I spent 3 years pushing myself to work full time to keep from letting it take my life. Switched to nights. Convinced myself that the pain was not going to stop me. Was sleeping 30 minutes a night, working upwards of 20 hours a day since I couldn't sleep anyway. (4)
30.01.2025 14:36 โ ๐ 0 ๐ 0 ๐ฌ 1 ๐ 0
Changing the brain does have some effect but not in changing the bodies nervous system. It will do as it will do, however, the brain can change your perception of how much you feel like CRaPS. (3)
30.01.2025 14:35 โ ๐ 0 ๐ 0 ๐ฌ 1 ๐ 0
That being said, some observations #1 many places do not have forced enrollment into the army, #2 men in many parts of the world are emasculated if they admit they are in chronic pain, #3 women in Korea are culturally less likely to be interacting with strangers from foreign countries. (2)
30.01.2025 14:33 โ ๐ 0 ๐ 0 ๐ฌ 1 ๐ 0
Actually, scary fact, that is not true. Women in the US are diagnosed more then men, however in Korea 8 men to each 1 woman have been diagnosed with it.
30.01.2025 14:31 โ ๐ 0 ๐ 0 ๐ฌ 2 ๐ 0
My friend has already had significant improvement since starting InterX. His #CRPS redness and swelling in his foot has decreased. He can now put weight on his foot and walk in his home without assistance to go to the bathroom, and has even be able to put a shoe on after 2 weeks of treatment.
30.01.2025 14:26 โ ๐ 2 ๐ 0 ๐ฌ 0 ๐ 0
Moving myself over from Twitter (falsely representing itself as X now)
Soon I'll export everything there, move it to my website & blow up that account. I will not support ANYONE who thinks the Nazi salute is a joke. Not arguing if he did it or not, but he has JOKED about it & that's NOT OK.
30.01.2025 14:03 โ ๐ 4 ๐ 0 ๐ฌ 0 ๐ 0
RSDSA's mission is to provide support, education, and hope to everyone affected by #CRPS / #RSD while we drive research to develop better treatment and a cure.
board games, cooking, food, heavy lifting, mmos (current: #ashes), my catahoula #waldenthefosterfail, pilates, politics๐๐ณ๏ธโ๐๐ณ๏ธโโง๏ธ๐บ๐ฆ๐ด๓ ญ๓ บ๓ ง๓ ฟ, reading, rucking, theatre, travel, urbanism, yoga | my best friend & SO is @dasnerdly.bsky.social
Brooch Warfare, Story Time, and the occasional designer overview and so forth. Writer, knitter, trying-to-be artist. I run on art supplies and yarn.
#CRPS late stage. I had a support group I'd love to replicate.
Do no harm, take no shit.
โWeโre driving in the dark with our sunglasses on!โ
#RLS #ME #PEM
Retired lecturer/therapist
Open University, CCCS Bโham, feminism, politics, culture, disability, science, music, languages. Woke AF
meownersclub@bsky.social
Maker of #FanningTheFlames
PMR physician. Dance in my bones. Dedicated to better patient care outcomes. #spasticity #cryoneurolysis UBC and Island Health. www.arcryo.ca https://youtube.com/shorts/oZFd-oOjyQU?si=XubZtoL7pPzSX3BJ
gender queer muppet thing (they/he)
chronically ill
PNES, fibro, arthritis, POTS, probably more
๐ณ๏ธโ๐๐ณ๏ธโโง๏ธ
Professor & consultant: teach about communication, psychology, persuasion, & relationships. Tend to think Iโm at least a little wrong. Sincerely centrist. Conquering CRPS & autoimmune ๐ช๐ผ. Youโll always have problems - learn to enjoy life while solving them.
A disabled, bi woman living on Wiradjuri land in Australia - Spend way too much time on social media - Definitely lean to the left - #LongCovid #POTS #MECFS #MCAS #CRPS #Fibromyalgia #SmallFibreNeuropathy #PTSD #OCD #Depression #Anxiety
DMs are turned off
Vegan Hippie Bunny Lover
๐ฅโฎ๏ธ๐๐
I share #ChronicIllness, #ChronicPain, #disability & #MentalHealth info from VARIOUS #perspectives. #Lupus #Sjogrens #AntiphospholipidSyndrome #epilepsy Open to constructive chat, will block overly opinionated people.
https://achronicvoice.com/
Primarily Housebound Spoonie Living Vicariously Through the Lives & Adventures of TV & Film Characters. No shame in a good imagination ๐
Hallmark & Horror!
#PsychOs #Hallmarkies #Sleuthers #POstables #WritingCommunity #HorrorFam #ChronicIllness #Diversity
Official Bluesky of Paul Wenzel
lead singer of WIREHOUND
www.wirehound.com
severely disabled with CRPS
https://www.nhs.uk/conditions/complex-regional-pain-syndrome/symptoms/
trying to show my boys you can still do anything
he/him/any
Born in 97 - Agender - They/Fae
I can also be found as TamaPawchi on Twitch!
๐งกCRPS Survivor๐งก
Chronic Illness Warrior
My healing journey
๐คAlso AUDHD๐ค
Health and Disability Advocate
80s fanatic #INXS ๐ธโ๏ธ๐ผ | Horror Lover ๐ป | Avid reader ๐| Pom Mom ๐พ| Chronic pain warrior #CRPS ๐งก #pudendalneuralgia #POTS #fibro disabled โฟ๏ธ | Total nerd ๐ค
Blue spot in red county ๐๐๐๐
No DMs ๐ซ
PhD in Natural Law Theory, not a medical doctor. #SSCE
Green Party (views are my own & don't necessarily represent GPEW policy)
#CRPS
Aka Jax
โก She Rides Podcast
โก LOKO fan
~ #crpswarrior
๐จ saardereu.contact@gmail.com
https://ko-fi.com/saardereu
Mom of a millennium child; Adopts socially acquired friends
6 fur children
Chronically ill, but in CRPS remission #6