Two Faces of MS 💋

She has been covering for them for over 20 years.

Keeping in mind that all of the agencies that oversee HC in NY report into the DoH. They finally did a hard reset on my account & pushed it through. We need single payer. Because if someone like me can’t do it, muggles have no chance. 2/2

I’ve worked in healthcare for 30 years, lived with MS for 16, & am a board certified patient advocate. NY screwed up my ins so bad this year (exchange) that it took me & three other ppl, including 1 from my state assembly member’s office, four months & about 100 hours, to fix it. 1/2

Coming soon…watch this space 👀

#Patients #Engagement

No Decisions for Us, Without Us: Why Patient Advocacy Matters in Market Access, Erica Bersin? Quickly and easily listen to MAP - Market Access Podcast for free!

As a precursor to launching my podcast, Patient to Purpose, next month, I was recently on my co-host's show; a soft launch as it were. Give a listen when you can. I'm still getting used to my recorded voice, so be kind. It's also available on a podcast platform near you.
#NoDecisionForUsWithoutUs

Tell your senators to act now to lower healthcare costs Health insurance premiums are doubling for more than 22 million Americans, and up to six-million people have already, or will soon, lose coverage because Republicans made Affordable Care Act tax credi...

Tell your senators to act now to lower healthcare costs act.indivisible.org/sign/tell-yo...

Meet Bob - Bob was a Chanukah gift from a family member

I’ve reported ads to the FDA for over stating the manufacturers label. It’s fairly easy to do, though not sure this admin will do anything about it.

Two new subtypes of MS found in ‘exciting’ breakthrough Exclusive: Scientists uncovered biological strands using artificial intelligence and hope discovery will revolutionise treatment

@brandon-beaber.bsky.social STILL waiting for them to make nFL commercially available for MS 🤦🏼‍♀️

www.theguardian.com/society/2025...

And yet nFL is still not available for commercial use in MS.

What my MS fatigue looks like

Whopper of the Week: RFK Spreads Disinformation Again about Vaccines and Food Allergies | Defend Public Health In 2024, the National Institute of Allergy and Infectious Diseases (NIAID) concluded that over 70% of peanut allergies could be prevented through early consumption of peanut allergens by infants and c...

It’s Wednesday and that means it’s time for Defend Public Health’s Whopper of the Week!

This time we cover RFK Jr.’s false claims that vaccines cause allergies.

Great work by the team as always!

@defendpublichealth.bsky.social

MS fatigue

NYC mask up on public transit and in crowded places. The flu isn't what any of us want for the holidays this year.

The Business of Health Insurance in America | Defend Public Health Because the Congress has not acted to extend Affordable Care Act subsidies, millions of Americans are about to be hit with massive increases in health insurance premiums -- unless Congress shifts cour...

I wrote a piece for @defendpublichealth.bsky.social about the “business of healthcare.” If it resonates, please give it a like & share. And if you’re passionate about public health, come join our National (all volunteer) group bc everyone deserves access to healthcare.

The Business of Health Insurance in America | Defend Public Health Because the Congress has not acted to extend Affordable Care Act subsidies, millions of Americans are about to be hit with massive increases in health insurance premiums -- unless Congress shifts cour...

I wrote a piece for @defendpublichealth.bsky.social about the “business of healthcare.” If it resonates, please give it a like & share. And if you’re passionate about public health, come join our National (all volunteer) group bc everyone deserves access to healthcare.

NYC mask up on public transit and in crowded places. The flu isn't what any of us want for the holidays this year.

Norovirus lives on surfaces and is HIGHLY contagious. It’s called the poopy virus, not because of what happens to you as a result, but rather a high percentage of the public does not wash their hands after going to the bathroom. 2/2

Why I don’t “cruise.” With people in such close contact and how fast they turn the ships around re: not being able to deep clean. 2/2

I wrote to MIT's ethics folks, as well as the chair of his dept.

Griffin specifically referenced "illegal immigrants!"

as a mathematician 🤦‍♀️

I would like to see the data on her patients.

www.google.com/search?clien...

The xenophobia is wild.

I think that's Evelyn Griffin?

I need a shower after spending the day agreeing with Meissner

It pains me to agree with Meissner