I meet with a new neurologist in the morning (the third so far). Now taking bets on whether sheβll be willing to treat me and my ultra-rare disease and liaise with my specialty team in Pittsburgh? Iβm going in with low expectations.
07.08.2025 03:55 β π 1 π 0 π¬ 2 π 0
Closeup of coral colored tumbled stone pendant, wrapped with gold-toned wire and strung on a white leather cord.
Closeup of dove gray tumbled agate stone pendant wrapped in silver wire and strung on a black leather cord.
Closeup of pink tumbled stone pendant with a silver spiral bead, wrapped in silver wire and strung on a white leather cord.
I made some new tumbled stone freeform wrapped pendants and Iβm really enjoying this medium. #disabledartist
07.08.2025 03:49 β π 2 π 0 π¬ 0 π 0
I know the disease I have. I know roughly how itβs going to progress. So what if I want to skip some of the pushing through the pain part if thereβs a better way to experience life while Iβm still at THIS level of function?
06.08.2025 06:04 β π 6 π 0 π¬ 2 π 0
Having big feelings tonight about how I reject the idea that I have to endure some sort of suffering threshold before Iβm allowed assistive devices or pain relief.
06.08.2025 06:02 β π 6 π 0 π¬ 1 π 0
The world is falling down but Cyndi Lauper remains an inspirational powerhouse and I got to share a very large βroomβ with her and her gorgeous stories and and powerful activism and incomparable art tonight and, just for now, my heart is full. Let this last a minute.
06.08.2025 05:20 β π 8 π 0 π¬ 0 π 0
[quoting a tweet by fractalcounty that reads, βtoday I learned that there are actual people irl who get genuinely upset if they catch you using chatgpt. like they view it as a serious moral failing in certain circlesβ]
If you're using AI to write essays, eulogies, a text to your wife, I do think less of you as a person. Ceding your mental and creative abilities to a machine is an embarrassing thing and people should be ashamed to admit doing it in public.
02.08.2025 18:19 β π 14438 π 4503 π¬ 233 π 304
Life with a rare neurological disease. "Let me see if the doctor is willing to see you for that."
I've already met with two neurologists who have no interests in treating somebody with a disease they don't understand and now I'm having trouble finding another, even with an urgent referral.
30.07.2025 17:03 β π 0 π 0 π¬ 0 π 0
Thankfully I didnβt have to yell at a person this time. That sounds incredibly frustrating.
28.07.2025 21:03 β π 1 π 0 π¬ 0 π 0
Even though every human on the phone was kind and helpful I'm still amped up and feeling very uncomfortable. Just staff your support centers. Allow people to speak to humans and ask for help. This is madness.
28.07.2025 19:57 β π 1 π 0 π¬ 1 π 0
Just called US Bank and they didn't give me a voice option to say what I needed, and they wouldn't recognize "Representative". I had to shout FUCKING REPRESENTATIVE and that worked. I **hate** when I have to be angry, even at a computer, to get somebody to listen. It doesn't have to be this way.
28.07.2025 19:56 β π 2 π 0 π¬ 1 π 0
I'll give this to the #GlowforgeAura, it handled the fire like a champ. I didn't even know it happened even though I was 15 feet away, and after a quick vacuum and a 1-minute wipe-down that I do after prints anyway, there's zero evidence the fire ever happened.
28.07.2025 17:12 β π 0 π 0 π¬ 0 π 0
YUP. I'm impressed that it contained it so much that I didn't even notice, but... yeeeeeeeah.
28.07.2025 17:01 β π 1 π 0 π¬ 0 π 0
So my Glowforge just burnt a piece of leather to ash, and that's why you don't leave a Glowforge unattended. Yikes.
28.07.2025 16:50 β π 1 π 0 π¬ 2 π 0
For women, the increase of AI use in the workplace may affect their careers: Harvard study
Women are using AI significantly less then men and itβs going to have a major impact on their careers, according to extensive research on the topic.
Every. Single. Story. about women not using AI as much as men portray it as bad for their future career prospects (without a shred of evidence) and a result of women being fearful little ladies rather than looking at AI's output and saying "this sucks, it's not going to help me."
26.07.2025 15:47 β π 5397 π 1375 π¬ 119 π 164
Am I organizing my studio just so I can share pictures? Yeah, probably.
26.07.2025 23:51 β π 1 π 0 π¬ 0 π 0
If Iβm going to run the thing I should at least be able to improve the curriculum and teach them new bloody songs!
26.07.2025 23:49 β π 2 π 0 π¬ 0 π 0
I have so many opinions about this and theyβre all the same as yours. Every one.
26.07.2025 23:48 β π 1 π 0 π¬ 0 π 0
WHY DO I ALWAYS HAVE TO KILL THE BEARS AND WILDCATS! Canβt we just agree not to bother one another?
26.07.2025 23:47 β π 1 π 0 π¬ 1 π 0
This troubles me to no end. I didnβt ask for these responsibilities. Iβm sure thereβs someone better suited to running the Bardβs College than I.
26.07.2025 23:42 β π 2 π 0 π¬ 1 π 0
Why am I just going to bed at 4am? Thatβs right, my version control nightmare just got SO MUCH WORSE.
25.07.2025 09:14 β π 0 π 0 π¬ 0 π 0
I've been in hurricanes less scary than the storm rolling through the Chicago burbs right now. Holy wow. We've lost power and the rain is flying down in heavy sheets of water. The massive tree across the street is not coping well with the wind. Holy smokes.
24.07.2025 20:11 β π 4 π 0 π¬ 3 π 0
ANDRE THE GIANT
"I don't like to speak badly of people. I have grown up thinking and being told that if you cannot say something nice about someone, you should not say anything at all. But I must break that rule in this case because I hate Hulk Hogan very much. He is a big ugly goon and I want to squash his face.
24.07.2025 16:06 β π 261 π 68 π¬ 2 π 2
Donβt do it Catie. Resist.
24.07.2025 16:08 β π 0 π 0 π¬ 1 π 0
And you better believe they donβt want me adding more to the budget. Iβm so mad.
24.07.2025 16:04 β π 1 π 0 π¬ 1 π 0
My client made all his changes to the original documents instead of my 250 slides and I donβt feel like working on it right now AMA.
24.07.2025 15:57 β π 1 π 0 π¬ 2 π 0
hell? yea, brother
24.07.2025 15:54 β π 9239 π 2343 π¬ 92 π 48
Iβm about $600 short on mortgage this month. I didnβt expect that Etsy closing my shop would be this destructive but Iβm in trouble and Iβm scared. I hate this. I have money coming in from this massive gig but I wonβt see it for 90 days because this client sucks for terms.
23.07.2025 18:55 β π 0 π 0 π¬ 0 π 0
I'm in a truly shit mental place tonight and with the deadline that I have tonight it isn't helpful. My poor spouse has been trying to guide me through it and I haven't been able to be receptive, which is just deepening the spiral. This sucks and honestly I just need like a lot of sleep.
21.07.2025 04:03 β π 2 π 0 π¬ 0 π 0
One of my favorites!! Donβt think too hard about the logistics and itβs just perfect.
21.07.2025 02:10 β π 1 π 0 π¬ 0 π 0
Game Designer & Producer, Cat Mom,80's Child.
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Human Rights Activist specializing in Housing & Disability policy. Queer, multiply disabled, formerly homeless, socialist, abolitionist, anti-Zionist Jew & son of immigrants. Antifa, always.
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