Haley

Every time I lift the wheelchair into the trunk I hear myself asking people to please care enough to not get me sick so I can do this sort of thing in my head on repeat. They did not care but this wheelchair won’t lift itself so here we are.

I wonder if we go to the same doctors lol. I went for my Xolair injection Monday and thought the same about a very similar sign.

Photo shows a brass drawer pull before and after being polished.

Slowly starting to revive some of the furniture I inherited. 100 or more years of gunk, gone.

Why are there doors in the hospital without a button that opens it? It’s annoying for me to navigate as a caregiver. I can’t imagine how frustrating it is for a wheelchair user. This post was brought to you by the ecg section of the dech.

By progress I mean physical progress. I have carefully crafted a life that keeps my heart from racing. I am totally and completely unwilling to mess with that.

Apple health screenshots showing 2hrs and 8 minutes of rem

My nightmare med jacked my hr up to 140 so back to hell I go. Last night I was racing to get all of the things I wanted from my grandparents house before the floor collapsed from under me. This is the most mild of my nightmares. How do I make this stop without ruining the progress I’ve made?

It’s been two years since Nathan had his bracing done at SCCR and he still asks if he’s going for another cast every single time we put our socks on. We all know I’m an SCCR fangirl, and now we know he is too.

I don’t think that we see this version of NB without NB twitter. That world is gone now, and this place is less cohesive, and less goofy, but for the few who remain and will see this I want to say thanks. I want to say thanks to those who have moved on too, but were so instrumental in fighting.

Most of us who are covid conscious understand that widespread masking is not returning.

But masking in healthcare facilities should be an easy ask.

Getting folks to mask when they’re sick should be an easy ask.

Cleaning the air should be an easy ask.

It’s time we adapt!

Sounds expensive and annoying. Can’t we just disable everyone instead?

All this time and they still haven’t come up with something new.

I’m not sure who the high profile guy complaining is but I’d love to make it worse for him by getting masks out to you all.

As always, the link for free masks is in my pinned post.

More bloodwork. More doctors. More medicine. This time for nightmares. Round and round we go.

If you ever see me saying something about “power” just know I instinctually typed hydro first and deleted it. You can take the girl out of the Ottawa Valley …

I’m just a girl weighing two scary bad options because novavax isn’t a thing we can get. Clinging to my baseline for dear life and every choice feels wrong.

It’s been 8 days since I got my first shot of Xolair. The pressure in my head is better. I had fun this weekend which is good because I had even stopped listening to music. I am less itchy. I feel WAY less restless. I am way MORE nauseous. Food still sucks. Headed in the right direction tho.

The drugs are fine to take together.

I had to figure that out on my own and I’ve been largely managed until yesterday.

It’s been over a year since I’ve seen them. They do not even manage my meds. There is a sign on their door that says “call your gp for refills” I didn’t call them this time because last time they said water and compression. What was actually happening was that I was taking stimulants accidentally.

I think they do. Chapter 1 is specifically about shutting down people they see who take ssris. Yeah my dudes I’m depressed as hell. One snack sent me to the ER lmao.

I started a medication that in theory, if it works, could return my heart to a normal rate. I’m still taking beta blockers. I don’t know if this is a concern because no one is following this. Not the dr who prescribed it, not my cardiologist, not my GP. Just me and my gc girlies against the world.

Where do we go for acute issues that are caused by our chronic illnesses? The ER doesn’t manage our issues. Well neither do our doctors. So where do we go. What do we do? We sit at home and hope it’s not fatal.

I would love @susanholtnb.bsky.social and the minister of health to weigh in on this.

Are they not tired of this game? It was fixed the same day it was called out. They know, they’re just hoping someone will stop reminding them. I’m tired of this game.

I started my biologic to help with my food intolerances, incredible itching and other MCAS symptoms. P is taking excellent care of me. “So, what are your side effects or symptoms now?” Still feeling sea sick on land little dude. 🤢

Sure it’s unfair because it’s another job offloaded to the public.

They’re still trying to placate anti maskers. That’s the problem. They are so belligerent that they can’t enforce it for some.

There is a mandate in the sense that they are supposed to be wearing masks in patient facing spaces. But no one enforces it. Even last winter the ER door person was telling people they only needed one if they wanted it.

Congratulations!!

Please don't forget that we have 4 CR boxes available to lend out in the Fredericton area to make your gatherings safer. The link to book one is in my pinned post.

Screenshot from the link. Image shows a graph of wastewater levels in one NB community, Sackville. The recorded levels from the most recent sample are the highest for Sackville since wastewater testing started being reported there.

#nbpoli #nbpooli
Please share the wwater.ca/New_Brunswic... wastewater site with friends outside of Bluesky. Link to it on your other socials. That link is directly to Sackville which is having a massive COVID surge. Read on for other observations. /1