Such a powerful image in Le Monde.
(The writing on the plane says "Neutral athletes")
Cartoon by: Letton Gatis Sluka
@libri.bsky.social
ME-mamma, hageglad og grønn
Such a powerful image in Le Monde.
(The writing on the plane says "Neutral athletes")
Cartoon by: Letton Gatis Sluka
Da vi klaget inn et doktorgradsprosjekt for et år siden visste vi ikke at OUS over tid har tøyd regelverket så langt at de ikke lenger klarer å se forskjell på forskning og kvalitetssikring.
Kanskje den nasjonale komiteen for etikk i medisin og helsefag kan hjelpe dem å se tydeligere?
Always worth a reskeet. George Monbiot remains one of the few widely-read journalists in a mainstream news outlet to discuss #ME-CFS intelligently, compassionately, and with the appropriate amount of outrage.
#COVID #chronicillness #MillionsMissing #disability
Actually, poll some Americans, I bet this really is how big they think Greenland is. And it’s accurate!
13.01.2026 19:17 — 👍 6 🔁 3 💬 2 📌 0I can't believe I'm posting this video - but we actually have to have a conversation about the real world implications of America going to war over Greenland.
Let me walk you through it. It doesn't turn out well for us.
On Christmas Day, Moscow sent strategic bombers to Norwegian Sea
www.thebarentsobserver.com/security/on-...
Forskninga OUS har utført på transpersoner burde fått de etiske alarmklokkene til å ringe så høyt at Gondor kom til unnsetning. Hvorfor er forskerne FORTSATT inne og titter i journalene deres, senest i september? Her bør det komme følger både for forskninga & tilgang
www.forskning.no/forskningset...
Neurology Live: 'Multi-Arm Phase 2 Trial Fails to Show Efficacy for Cognitive Programs in Treating Long COVID'
'The RECOVER-NEURO trial tested three interventions for long COVID but found no efficacy in improving cognitive symptoms.'
www.neurologylive.com/view/multi-a...
Dette er en forskningsetisk skandale på svært høyt nivå!
19.11.2025 11:23 — 👍 51 🔁 13 💬 4 📌 0Det er bra at dette er ei offentleg sak no, men kjennes samstundes litt som at dei tok Al Capone på skatteunndraging. Ein viktig del av konteksten rundt dei etiske overtrampa er nettopp at dette spesifikke forskningsmiljøet er i konstant ideologisk opposisjon til si eiga pasientgruppe.
19.11.2025 15:40 — 👍 83 🔁 22 💬 2 📌 0a man standing in front of a blue background
a blue oval with white text
Big step for people with #mecfs & #LongCovid in Germany: the BMFTR announces a “National Decade on Post-Infectious Diseases” with long-term research funding and a focus on diagnostics & treatments. #mecfsresearch #research
14.11.2025 15:10 — 👍 32 🔁 13 💬 1 📌 1England’s top medical unions warn it’s unacceptable that Long COVID still isn’t classed as an occupational disease.
Three years after official advice, frontline health workers are still waiting for recognition and financial support.
www.bma.org.uk/bma-media-ce...
@annekiel.bsky.social -something for you?
06.11.2025 05:56 — 👍 2 🔁 0 💬 1 📌 0Book in my hand, with title "PSYCHOLOGY’S QUIET CONSERVATISM: How a Supposedly Woke Science Promotes Capitalism and Protects Privilege" and author name "Brian M. Hughes" (me)
Well, now, look what arrived in the post...
Delighted to share that my new book on psychology and the culture wars has now been published.
Writing it was a long, at times depressing, but ultimately satisfying journey for me. I hope you like it
Deets here: link.springer.com/book/10.1007...
Fin påminnelse! Hesplatre på min dialekt :-)
14.10.2025 19:40 — 👍 1 🔁 0 💬 0 📌 0🙏 @vladvexler.bsky.social this describes exactly the point being made by Justice4ME.uk.
7 days left to Judicial Review of (England and Wales) UK government Final Delivery Plan for ME. @ashleydaltonmp.bsky.social we want to help you get this.
www.youtube.com/watch?v=_6KS...
Sendte denne rett til crpd-ansvarlig på jobb, jeg, dette gjelder alle.
14.10.2025 19:06 — 👍 9 🔁 2 💬 0 📌 0Full Article - The Times
As my daughter died of ME, the state met in secret to blame me
Maeve Boothby O’Neill’s mother had no idea she was being accused in private of causing or fabricating the illness that would take her life aged 27
archive.ph/2025.08.09-2...
When an Old Weak Theory Leads a Field Astray
Here's yet another example of influential theory that led a field down the wrong path: "Running Records were pivotal in shaping a view of reading which mistook the behaviours of poor readers for the behaviours of all readers, which in turn led to…
Scientists find link between genes and ME/chronic fatigue syndrome
06.08.2025 18:15 — 👍 326 🔁 155 💬 11 📌 24Graphic 1 of 4. DecodeME: The Results graphic. The slide says: ‘The signals discovered are involved in the immune and nervous systems, indicating immunological and neurological causes to this poorly understood disease’.
Graphic 2 of 4. DecodeME: The Results graphic. The slide says: ‘At least two of the signals relate to the body’s response to infection’. Beneath this is an image of green germs.
Graphic 3 of 4. DecodeME: The Results graphic. The slide says: ‘Other signals point to the nervous system, one of which researchers previously found in people experiencing chronic pain, reinforcing neurological contributions to ME/CFS’. Beneath this is an image of a person curled up in bed feeling ill.
Graphic 4 of 4. DecodeME: The Results graphic. The slide says ‘All of these signals align with how people with ME/CFS describe their illness’.
(2/2)
06.08.2025 19:06 — 👍 119 🔁 58 💬 1 📌 5Graphic 1 of 4. DecodeME: The Results graphic. At the top in bold lettering, it says ‘Main Findings’. Beneath this it says ‘Your genes contribute to your chances of developing ME/CFS. Other key findings are on the following slides.
Graphic 2 of 4. DecodeME: The Results graphic. The slide says ‘People with an ME/CFS diagnosis have significant genetic differences in their DNA compared to the general population’. Beneath this is an image of a DNA helix and a magnifying glass.
Graphic 3 of 4. DecodeME: The Results graphic. The slide says ‘These lie in many places across the genome, and do not impact just one gene’. Beneath this is an image of a DNA helix and graphs.
Graphic 4 of 4. DecodeME: The Results graphic. The slide says ‘Eight genetic signals have been identified. As DNA doesn’t change with ME/CFS onset, these findings reflect causes rather than effects of ME/CFS’. Beneath this is a blue magnifying glass with a DNA helix.
(1/2) Key genetic differences found in people with ME/CFS > Swipe to find out more.
These findings reflect the lived experience of thousands of #pwME.
Thanks to all our participants & supporters who made this possible!
Read a summary of our results: shorturl.at/pgsjk
Today is the most dangerous time to be a journalist in CPJ’s history. At least 124 journalists and media workers were killed last year, nearly two-thirds of them Palestinians killed by Israel.
Read more in CPJ’s #2024KilledReport: cpj.org?p=451429
Hva har skjedd med pressen, egentlig?
Journalister har med rette hatt tradisjon for å bli opprørt, og gi klart uttrykk for det, når kollegaer har blitt drept - bare ikke i Gaza.
Hva skal til for at Europa vil gjøre noe som virker?
www.aljazeera.com/news/2025/8/...