Lindsay Skipper

Collage graphic, including a portrait of UK Work and Pensions Minister Sir Stephen Timms, a photo of Sheffield Hallam University’s campus, and a photo of advocates from Not Recovered UK raising awareness about ME and Long COVID. The collage also includes screenshots of web pages about disability benefits. The text reads, “The Sick Times. Left without care: Many Long COVID clinics are closing down in the U.K. By Hannah Buttle.”

“How are you meant to live? You’re not able to work because you’re sick, you’re not being offered any healthcare to get better, and you’re scared about losing the benefits that help you survive.” - Karen Hargrave, Co-founder of the #ThereForMe Campaign

The U.K. government set aside funding for #LongCOVID clinics in 2020, but funding is now up to local health boards. Fewer than half of Long COVID clinics will remain open across the U.K. through this year. Read more from @han-written.bsky.social‬: bit.ly/4eR6f4a

We’re recruiting a fixed term (3 years) researcher in clinical exercise science and Long COVID. If you want to join a team that is at the forefront of the pathophysiology/lived experience research then please get in touch.

Please share with your network!

www.derby.ac.uk/jobs/current...

#LongCovid

@profmarkfaghy.bsky.social
@lindsayskipper.bsky.social
@sarahbarleymc.bsky.social
@longcovidadvoc.com
@mikster-derby.bsky.social
@michaeltikus.bsky.social

Suzanne O‘Sullivan describes POTS as ‚a condition where change of posture provokes a fall in blood pressure that causes fainting or dizziness‘. She is wrong. In POTS, change of posture causes tachycardia without a drop in BP. She has not even bothered to inform herself about that!

#LongCovid
#POTS

A graphic containing a slightly longer version of the statement in the tweet, with a ribbon, and Carla's photo

On #LongCovidAwarenessDay I want to draw attention to the fact that many people are still living with the effects of Covid, and they often struggle to get the support they need. Government must do much more on research, support, and prevention.

Oxygen uptake kinetics during postexercise recovery are impaired in long COVID-19 patients: a cross-sectional study

From Spain:

Oxygen uptake kinetics during postexercise recovery are impaired in #longCOVID -19 patients: a cross-sectional study

www.sciencedirect.com/science/arti...

"After peak exercise, V̇O2 recovery rates were significantly impaired in long COVID-19 participants compared with controls"

#PASC

‘Living with chronic illness is tough. But navigating a complex, novel illness is exceedingly arduous, more so for children. We had questions, doctors had no answers; we needed relief, medicine offered none’

thewire.in/health/press...

#LongCovid #LongCovidKids

It’s been 1,233 days for me suffering from a bedridden to homebound existence. For many others it’s been 5 years. We need help. #LongCOVIDAwarenessDay
#LongCOVIDAwarenessDay2025

Today our family supports Long Covid Awareness Day. Long Covid has changed family life beyond recognition. My wife and son have been living with Long Covid for almost 5 years since covid came into our home in April 2020. Since then we have been desperately searching for a cure.
#longcovidawareness

4 yrs & 11 months ago my career as a clinical physiotherapist was ended by catching covid.

23 years of clinical experience & dedication lost- just like that.

How many more people have to have their lives turned upside down like this?

#LongCovidAwareness

Scientists are investigating whether anti-viral drugs could provide an effective treatment for LongCovid

“It is vital research for the people who are living with LongCovid now but also the people who will go on to develop LC in the future” @profmarkfaghy.bsky.social

t.co/kfLzV0B0fy

Photo titled “invest in Long Covid & ME research and care” with link to QR code to petition

On #LongCovidAwarenessDay we stand in solidarity with our clients calling for change, research and to #fundourfuture Sign petition you.38degrees.org.uk/petitions/in...

YouTube video by Long Covid Kids Long Covid & Me | Understanding Long Covid In Children And Young People

NEW

Long Covid and Me: Understanding Long Covid in Children.

In this video, children and young people with Long Covid share their experiences to help others understand the reality they face every day.

#LCandME #LongCovidKids #LongCovidAwareness

www.youtube.com/watch?v=e0U7...

A teal gradient background fades into black at the edges. White text in an serif font reads: Today, we honour Ondine. Every post we share this Long Covid Awareness Day is dedicated to our co-founder, friend, inspiration, and relentless advocate, Ondine Sherwood. Her passion, determination, and unwavering fight for recognition and support have left an indelible mark on the Long Covid community. Without her, Long Covid would be far less recognised. Without her, countless people would not have found the solidarity, hope, and strength they needed. And without her, our world feels immeasurably smaller. We miss you Ondine, so very much. Today, and always, we continue her fight. For Ondine. For all of us. In the bottom right corner, the Long Covid SOS logo appears in white.

Today, we honour Ondine.

Every post we share on #LongCovidAwarenessDay is dedicated to our co-founder, friend, inspiration & relentless advocate, Ondine Sherwood. Her passion, determination, & unwavering fight for recognition & support have left an indelible mark on the world.

Today Saturday 15 March 2025 is #LongCovidAwarenessDay. Today, people living with Long Covid and allies come together to raise awareness about Long Covid
For some of us, the Day has already started, depending on the time zone. Seeing already the first advocacy initiatives ongoing, like in Australia!

Before and Now by Julie The park looks so different to me now It seems bigger than before I used to go running in here most days But I can’t do that anymore I remember at school being last in the sprint Every. Single. Year. I never imagined that I would ever Hold running so very dear I was thrilled to achieve my first 5k And then to run for a solid hour! I can’t tell you how much I hadn’t believed That my body and mind held such power But they did I saw it and felt it too Month after month it sustained I almost forgot how far I had come And took for granted what I’d obtained

The last day I was able to run in the park Isn’t one I remember at all If only I’d known it was the final time I could have stored up for later recall Every. Single. Detail. What was my heart rate? How far did I go? Did it rain? Was it bright? I don’t know The park looks so different to me now Though it welcomes me just like before I sit in here with my coffee some days Since I can’t run anymore By Julie

Today we will also post some powerful poems written by Long Covid patients, carers and advocates.

#LongCovid #LongCovidAwarenessDay2025 #LongCovidAwareness #LongCovidAwarenessMonth
#LongCovidAwarenessDay
#Ireland #Irish #poetry #Covid #IrishPoetry

Header text on image is Long Covid: 5 years on Further text on image: Ann, age 44 -Life on hold for 1095 days - €500,000+ spent on healthcare - 1080 days bedbound -395 days hospitalised - 310 days fed via tube - 0 quality of life Alt text-additional image description Graphic contains a photo of a hospital room. A patients arm, patient lying in bed,is visible on right side of the frame. The focus of the photo is multiple drip stands and other medical equipment. LCAI logo appears on bottom right corner of the image

#LongCovidAwarenessDay2025
#LongCovidAwarenessDay #LongCovid #Ireland #LongCovidAwarenessMonth

15th March 2025 Take Action On Long Covid Awareness Day Today Dear Friend Today is Long Covid Awareness Day, a day for us to stand together, raise our voices, and push for the change we desperately need. With millions still suffering and thousands of children le...

#Newsletter #LongCovidAwarenessDay

Today is Long Covid Awareness Day, a day for us to stand together as a community, raise our voices, and push for the change we desperately need.

longcovidkids.org/so/5fPMKw8Uv...

#LongCovid #LongCovidKids #LCandME #FundOurFuture #FundThePlan

Header text on image is Long Covid; 5 years on. Other Text on image; Chloe, 29 years old Life on hold for 1095 days -730 days relying on my mom as my carer -€3000 spent on health care. -8 moments of wanting to end my life -2 failed attempts at working again. Alt text additional image info: The image includes a photo of a young woman, dark hair, slight smile. LCAI logo appears on bottom right corner of the image.

#LongCovidAwarenessDay2025
#LongCovidAwarenessDay #LongCovid #Ireland #LongCovidAwarenessMonth

'UK doctor says Britain is failing children with Long Covid' a mother and daughter sit at a table holding mugs of tea.

'UK doctor says Britain is failing children with #LongCovid' @emmabatha.bsky.social
Pulmonologist @binitakane.bsky.social helped set up a Long Covid clinic after struggling to get treatment for her daughter.

www.context.news/socioeconomi...
#LongCovidAwareness #LongCovidKids #PaediatricLongCovid

Light fixture shining a teal light for International Long Covid Awareness

Reflecting on 5yrs of Long Covid: Those who have lost their lives to Long Covid, the suffering of those still sick, & all loss in this pandemic
We mourn, we remember, we continue to fight for our lives & for people's health around the world
#LongCovidMakesUsOne
#CureLongCovidNow

Huge thank you to all at @longcovidphysio.bsky.social
For all you have done and continue to do #Solidarity #LongCovidAwarenessDay2025

A heartbreaking insight into our reality.

So grateful to everyone involved with this project and in International Long Covid Awareness day
#LongCovidAwareness

bsky.app/profile/long...

5 years have passed and millions are affected globally

All are still waiting for a cure

#LongCovidAwarenessDay

CVF are deeply saddened by the heartbreaking news of the loss of Ondine Sherwood, co-founder of Long Covid SOS, a fierce advocate and a true force for good.

Her dedication to protecting health will not be forgotten.

The world has lost a wonderful human being. There are not adequate words to describe the loss & pain so many of us feel today. She did so much for the long covid community & was such an important friend & ally to so many of us. We send love to her family & all who will miss her.

Heart felt condolences from the Bhatt Murphy team to Ondine’s family and @longcovidsos.bsky.social. Ondine was our wonderful inspiring client who fought tirelessly for Long Covid to be part of the Covid Inquiry. She is huge loss to us all.

A black background with centered white text. The heading reads, “In Honour of Ondine Sherwood.” The message states that Long Covid SOS is heartbroken to share the loss of their co-founder, CEO, and beloved friend, Ondine, who passed away on Tuesday, 11th March. It expresses love and condolences to her family. A small horizontal line is placed at the bottom.

A black background with centered white text. The message describes Ondine as the driving force and heartbeat of the Long Covid SOS team, a dear friend, and a profound loss to the community. It expresses devastation at her passing but also a commitment to continuing her legacy. The final line states, “We will miss her every day.” A small horizontal line is placed at the bottom.

We are heartbroken to share the loss of our co-founder, CEO, and beloved friend, Ondine, who passed away on Tuesday 11th March.

Longcovidsos.org/post/ondine-sherwood

1 March starts the beginning of #LongCovidAwarenessMonth. A thought for all patients, sufferers, advocates, patient-researchers, and allies coming together to raise awareness about #LongCovid 💙 Thanks

The role of masks and respirators in preventing respiratory infections in healthcare and community settings The covid-19 pandemic saw frequent changes and conflicts in mask policies and politicization of masks. On reviewing the evidence, including studies published after the pandemic, the data suggest respi...

Anyone want to see our latest paper on #masks?
#healthpolicy 🧪

www.bmj.com/content/388/...