This is Azine's mom, helping out since I'm so close to extreme burnout. I beg you to help her. /literal
11.10.2025 03:19 β π 6 π 7 π¬ 1 π 1@roomcmoo.bsky.social
Research in Connective tissue/Osteoimmunol. Strive to apply Baha'i Faith. Bird app projects: @eds_hub @smbsltpodcast being moved here eventually roomcmoo at universeodon dot com as well
This is Azine's mom, helping out since I'm so close to extreme burnout. I beg you to help her. /literal
11.10.2025 03:19 β π 6 π 7 π¬ 1 π 1Since Link is banned, his mutual aid Fridays have gone with him. This was one of the most altruistic things Iβve seen anyone on this site do.
In light of this, Iβm gonna try to fill the gap.
Drop your mutual aid requests under this thread and I will repost them for as long as I can.
Repeated text that reads "help Jhordin escape abuse" with a cutout image of Marlene Clark smelling a rose from the movie Ganja & Hess in front of the text, a black line border, and a white background.
Help free Jhordin of the familial abuse they've been facing for years.
14% of progress has been made so far. Please contribute:
β’ gfm: gofund.me/8fc4a39f
β’ ca: cash.app/$discobops
β’ pp: paypal.me/br4tzcore
β’ vm: venmo.com/urdream333
Did you know it's possible to heal so slowly, ordinary activities cause injury because your body can't compensate for wear & tear?
I've been learning this firsthand recently.
#NEISVoid
Yep though I would wonder about incidental discovery of underlying chiari or worsening "*mild*" or previously thought to be negligible chiari presentation
06.10.2025 07:29 β π 3 π 0 π¬ 1 π 0ID: A pond with a duck trailing ducklings on the water & a fox on the shore. Surrounding the lake is a forest of evergreen trees and a snowy landscape. The words are in white with black borders. Transcript: Azine's Story Azine travels the world to meet people dear to her. That is her reason for living, as she doesnt know how much time she has left. This goes for everyone, especially with how the world is today. Goes extra for her because of heart-lung disease from birth + a series of embolisms in 2016. Embolisms are kept at bay by medication, due to having had more than one. Dystonia and seizures, were made worse by Lyme disease (tick bite 2009). MCAS, probably from birth, is made a lot worse by environmental toxins. She takes 4 antihistamines including compounded ketotifen (expensive) in very high doses to keep her skin from peeling off & to keep limited food down. "I dont have access to health insurance, even though that is mandatory where I was born.Because people with Lyme and ME/CFS are routinely denied healthcare, persecuted, and jailed in psychiatric hospitals. That is why I became a traveler/refugee. That is why my mom, who still lives there, is deep in debt. Because there was never gov. support or funding for me, not even welfare." I've done all I can out of my own resources. We need your help. Please, boost & share her story, & if you can afford to, donate any amount* you can spare to her mom's PayPal: MadeleineWedemeijer@gmail.com *Literally $1 helps. Fundraisers with more activity, regardless of the size of the donations, are more successful overall as it motivates people to pitch in. And if you include an encouraging message in the memo line, you'll help to lift the severely flagging spirits of all those involved.
Azine's informal free housing arrangement is about to end abruptly. We don't know when; it could be at any time. We need to raise money to get her into an Airbnb as quickly as we can manage.
We don't have the resources for long-term solutions, so I'm just keeping her alive as long as I can.
I've been struggling financially since September due to the tariffs.
My business Bibipins is in trouble. Not only am I making less sales and with smaller amounts. But people have been refusing their orders (which I don't get back) due to the tariff costs & wanting full refunds.
I'm excited by any progress - but right now "bone glue" is my hyper fixation π€£
02.10.2025 02:52 β π 4 π 0 π¬ 1 π 0dear friends
azine is in big need from medications from pharmacy
she is extra ill now because in a home without running water
pls help ..emergency
pp
madeleinewedemeijer@gmail.com
From Azine:
www.simplythebasics.org/blog/2022/6/... "this article is well written, and not stigmatizing
Describes the medical risks, especially of infection
I already have an ulcer on my foot, and circulation is impacted even with hot&cold water to regulate my temperature&circulation"
π¨We need help so Azine doesn't land on the street, which *would* kill her. And she'll need supplies, meds, etc. - the total cost will be high.π¨
Let's start by making sure she has access to shelter after she gets kicked out.
Let's call it $0/150
PP: madeleinewedemeijer@gmail.com
Amanda is one of the best of us. An organizer disabled by Long COVID who's helped a bunch of others get housed. I helped her get housed after she first became disabled, at no small cost to myself.
Remember, it's MUCH less expensive to prevent homelessness than it is to reverse it.
Azine needs about $20 urgently for food and medical supplies. More would be better.
PP: madeleinewedemeijer@gmail.com
#MutualAid #HelpSky
Accurate. Unicorn assassins
13.09.2025 07:10 β π 1 π 0 π¬ 0 π 0For months, the job market has been awful. Start firing thousands of federal employees (that's me, y'all), this is a disaster.
I'm not getting anywhere. Job leads welcome. I have long COVID and stopped driving. I'm glad to share my resume if you have solid leads.
Thanks.
spot.fund/qsrm8f8sc
The money for Azine's basic needs ran out again. She needs food, meds, and medical supplies, and my money is currently tied up in my own survival.
π¨Please send what you can! (and share, comment, etc).π¨
Madeleine's PayPal is madeleinewedemeijer@gmail.com
How to support your friend who lives with ME/CFS or long COVID Home / MECFS Information / How to support your friend who lives with ME/CFS or long COVID Emerge Australia has put together this guide to help you understand what someone with ME/CFS may be experiencing, and to provide some tips to help support them to stay connected.
π§΅
It would be great if friends of people with ME/CFS or long COVID would take the time to read this. These conditions are very socially isolating and lonely and patients would love to maintain friendships
www.emerge.org.au/how-to-suppo...
#LongCovid #MEcfs
1/
ID: A pond with a duck trailing ducklings on the water & a fox on the shore. Surrounding the lake is a forest of evergreen trees and a snowy landscape. The words are in white with black borders. Transcript: Azine's Story Azine travels the world to meet people dear to her. That is her reason for living, as she doesnt know how much time she has left. This goes for everyone, especially with how the world is today. Goes extra for her because of heart-lung disease from birth + a series of embolisms in 2016. Embolisms are kept at bay by medication, due to having had more than one. Dystonia and seizures, were made worse by Lyme disease (tick bite 2009). MCAS, probably from birth, is made a lot worse by environmental toxins. She takes 4 antihistamines including compounded ketotifen (expensive) in very high doses to keep her skin from peeling off & to keep limited food down. "I dont have access to health insurance, even though that is mandatory where I was born.Because people with Lyme and ME/CFS are routinely denied healthcare, persecuted, and jailed in psychiatric hospitals. That is why I became a traveler/refugee. That is why my mom, who still lives there, is deep in debt. Because there was never gov. support or funding for me, not even welfare." I've done all I can out of my own resources. We need your help. Please, boost & share her story, & if you can afford to, donate any amount* you can spare to her mom's PayPal: MadeleineWedemeijer@gmail.com *Literally $1 helps. Fundraisers with more activity, regardless of the size of the donations, are more successful overall as it motivates people to pitch in. And if you include an encouraging message in the memo line, you'll help to lift the severely flagging spirits of all those involved.
We managed to raise enough for Madeline's health insurance that she was able to make a deal, but Azine needs medical supplies & at this point I'm not only flat broke, but also in debt to her pharmacy.
$0/50
Might be too early to tell at this point, but the GI-Immune-Neuro-inflam connection is a crucial area of focus. The new ME/CSF genetic research might also help add more insights
07.08.2025 17:13 β π 1 π 0 π¬ 0 π 0Abscess that spread to my nose then eyebrow is now on the back of my neck. Agony.
Going to urgent care in the morning. I need dental care to survive, which is thousands I have to reraise.
linktr.ee/Wylder
PayPal.me/WyldWish
Cash.app/$WishMage
Venmo.com/u/WishMage
Help me be alive. Please??
The meds alone are $59.48 and needed urgently. I can't pay for it. Please help? π₯Ίπ₯
@bomper.bsky.social @publiusmaximus.bsky.social @medusaswink.bsky.social @morganwulf.bsky.social @roomcmoo.bsky.social @megaholt.medsky.social @rubyslippahs.bsky.social @liltristi.bsky.social @laknight89.bsky.social
π¨Azine needs meds & food ASAP again. About $65. Needs to be ordered ASAP, & I'm broke.
PP: madeleinewedemeijer@gmail.com
#HelpSky #MutualAid
Runs in our family. Then again so do a bunch of other autoinflam and autoimmune shenanigans ><
Biologics an option at all? Decent resource here to explore a little mypsoriaticarthritis.org.au/document/tests-treatments-medicines-biological-dmards-and-targeted-synthetic-dmards/things-consider
So, I agree with everything here, but I also want to add that there is a medication that can slow (and possibly prevent) the onset of T1DM in some patients.
That med is β$200k for a 14 day course of treatment, and that doesnβt include the cost of the infusion services necessary to administer it!
$0/950 (approximate dollar value of β¬800)
Azine's mom has been working several jobs in the Netherlands to help her daughter survive & make sure she has a place to go home to.
This is my family. Please do what you can.
PayPal: madeleinewedemeijer@gmail.com
#MutualAid #HelpSky
*reports picture*
Why? "I am in this picture and I don't like it"
I'm cry-laughing
14.06.2025 22:13 β π 1 π 0 π¬ 1 π 0π¨EMERGENCYπ¨
We have to get supplies delivered, so this needs taking care of within the next hour!