Rouha G's Avatar

Rouha G

@roomcmoo.bsky.social

Research in Connective tissue/Osteoimmunol. Strive to apply Baha'i Faith. Bird app projects: @eds_hub @smbsltpodcast being moved here eventually roomcmoo at universeodon dot com as well

385 Followers  |  1,045 Following  |  120 Posts  |  Joined: 04.07.2023  |  2.434

Latest posts by roomcmoo.bsky.social on Bluesky

This is Azine's mom, helping out since I'm so close to extreme burnout. I beg you to help her. /literal

11.10.2025 03:19 β€” πŸ‘ 6    πŸ” 7    πŸ’¬ 1    πŸ“Œ 1

Since Link is banned, his mutual aid Fridays have gone with him. This was one of the most altruistic things I’ve seen anyone on this site do.

In light of this, I’m gonna try to fill the gap.

Drop your mutual aid requests under this thread and I will repost them for as long as I can.

10.10.2025 17:05 β€” πŸ‘ 1879    πŸ” 1267    πŸ’¬ 176    πŸ“Œ 34
Repeated text that reads "help Jhordin escape abuse" with a cutout image of Marlene Clark smelling a rose from the movie Ganja & Hess in front of the text, a black line border, and a white background.

Repeated text that reads "help Jhordin escape abuse" with a cutout image of Marlene Clark smelling a rose from the movie Ganja & Hess in front of the text, a black line border, and a white background.

Help free Jhordin of the familial abuse they've been facing for years.

14% of progress has been made so far. Please contribute:

β€’ gfm: gofund.me/8fc4a39f
β€’ ca: cash.app/$discobops
β€’ pp: paypal.me/br4tzcore
β€’ vm: venmo.com/urdream333

02.10.2025 23:31 β€” πŸ‘ 62    πŸ” 110    πŸ’¬ 7    πŸ“Œ 77

Did you know it's possible to heal so slowly, ordinary activities cause injury because your body can't compensate for wear & tear?

I've been learning this firsthand recently.

#NEISVoid

06.10.2025 07:18 β€” πŸ‘ 19    πŸ” 4    πŸ’¬ 1    πŸ“Œ 1

Yep though I would wonder about incidental discovery of underlying chiari or worsening "*mild*" or previously thought to be negligible chiari presentation

06.10.2025 07:29 β€” πŸ‘ 3    πŸ” 0    πŸ’¬ 1    πŸ“Œ 0
ID: A pond with a duck trailing ducklings on the water & a fox on the shore. Surrounding the lake is a forest of evergreen trees and a snowy landscape. The words are in white with black borders.

Transcript: Azine's Story
Azine travels the world to meet people dear to her. That is her reason for living, as she doesnt know how much time she has left. This goes for everyone, especially with how the world is today. Goes extra for her because of heart-lung disease from birth + a series of embolisms in 2016. 

Embolisms are kept at bay by medication, due to having had more than one. Dystonia and seizures, were made worse by Lyme disease (tick bite 2009). MCAS, probably from birth, is made a lot worse by environmental toxins. She takes 4 antihistamines including compounded ketotifen (expensive) in very high doses to keep her skin from peeling off & to keep limited food down.
     "I dont have access to health insurance, even though that is mandatory where I was born.Because people with Lyme and ME/CFS are routinely denied healthcare, persecuted, and jailed in psychiatric hospitals. That is why I became a traveler/refugee. That is why my mom, who still lives there, is deep in debt. Because there was never gov. support or funding for me, not even welfare."

I've done all I can out of my own resources. We need your help. Please, boost & share her story, & if you can afford to, donate any amount* you can spare to her mom's PayPal: MadeleineWedemeijer@gmail.com
*Literally $1 helps. Fundraisers with more activity, regardless of the size of the donations, are more successful overall as it motivates people to pitch in. And if you include an encouraging message in the memo line, you'll help to lift the severely flagging spirits of all those involved.

ID: A pond with a duck trailing ducklings on the water & a fox on the shore. Surrounding the lake is a forest of evergreen trees and a snowy landscape. The words are in white with black borders. Transcript: Azine's Story Azine travels the world to meet people dear to her. That is her reason for living, as she doesnt know how much time she has left. This goes for everyone, especially with how the world is today. Goes extra for her because of heart-lung disease from birth + a series of embolisms in 2016. Embolisms are kept at bay by medication, due to having had more than one. Dystonia and seizures, were made worse by Lyme disease (tick bite 2009). MCAS, probably from birth, is made a lot worse by environmental toxins. She takes 4 antihistamines including compounded ketotifen (expensive) in very high doses to keep her skin from peeling off & to keep limited food down. "I dont have access to health insurance, even though that is mandatory where I was born.Because people with Lyme and ME/CFS are routinely denied healthcare, persecuted, and jailed in psychiatric hospitals. That is why I became a traveler/refugee. That is why my mom, who still lives there, is deep in debt. Because there was never gov. support or funding for me, not even welfare." I've done all I can out of my own resources. We need your help. Please, boost & share her story, & if you can afford to, donate any amount* you can spare to her mom's PayPal: MadeleineWedemeijer@gmail.com *Literally $1 helps. Fundraisers with more activity, regardless of the size of the donations, are more successful overall as it motivates people to pitch in. And if you include an encouraging message in the memo line, you'll help to lift the severely flagging spirits of all those involved.

Azine's informal free housing arrangement is about to end abruptly. We don't know when; it could be at any time. We need to raise money to get her into an Airbnb as quickly as we can manage.

We don't have the resources for long-term solutions, so I'm just keeping her alive as long as I can.

22.09.2025 02:11 β€” πŸ‘ 18    πŸ” 21    πŸ’¬ 2    πŸ“Œ 22

I've been struggling financially since September due to the tariffs.

My business Bibipins is in trouble. Not only am I making less sales and with smaller amounts. But people have been refusing their orders (which I don't get back) due to the tariff costs & wanting full refunds.

02.10.2025 01:30 β€” πŸ‘ 244    πŸ” 161    πŸ’¬ 17    πŸ“Œ 20

I'm excited by any progress - but right now "bone glue" is my hyper fixation 🀣

02.10.2025 02:52 β€” πŸ‘ 4    πŸ” 0    πŸ’¬ 1    πŸ“Œ 0

dear friends
azine is in big need from medications from pharmacy
she is extra ill now because in a home without running water
pls help ..emergency

pp
madeleinewedemeijer@gmail.com

28.09.2025 21:48 β€” πŸ‘ 4    πŸ” 4    πŸ’¬ 2    πŸ“Œ 0

From Azine:

www.simplythebasics.org/blog/2022/6/... "this article is well written, and not stigmatizing
Describes the medical risks, especially of infection
I already have an ulcer on my foot, and circulation is impacted even with hot&cold water to regulate my temperature&circulation"

25.09.2025 18:28 β€” πŸ‘ 2    πŸ” 3    πŸ’¬ 1    πŸ“Œ 1

🚨We need help so Azine doesn't land on the street, which *would* kill her. And she'll need supplies, meds, etc. - the total cost will be high.🚨

Let's start by making sure she has access to shelter after she gets kicked out.

Let's call it $0/150
PP: madeleinewedemeijer@gmail.com

22.09.2025 02:21 β€” πŸ‘ 16    πŸ” 22    πŸ’¬ 1    πŸ“Œ 1

Amanda is one of the best of us. An organizer disabled by Long COVID who's helped a bunch of others get housed. I helped her get housed after she first became disabled, at no small cost to myself.

Remember, it's MUCH less expensive to prevent homelessness than it is to reverse it.

18.09.2025 00:13 β€” πŸ‘ 34    πŸ” 36    πŸ’¬ 1    πŸ“Œ 0

Azine needs about $20 urgently for food and medical supplies. More would be better.

PP: madeleinewedemeijer@gmail.com

#MutualAid #HelpSky

15.09.2025 15:01 β€” πŸ‘ 4    πŸ” 5    πŸ’¬ 1    πŸ“Œ 0

Accurate. Unicorn assassins

13.09.2025 07:10 β€” πŸ‘ 1    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
Preview
Click here to support Amanda Finley's story *RentAndRxForAmanda *spotfund is the easiest place to create beautiful and free online fundraisers. It takes just minutes to start raising money today.

For months, the job market has been awful. Start firing thousands of federal employees (that's me, y'all), this is a disaster.

I'm not getting anywhere. Job leads welcome. I have long COVID and stopped driving. I'm glad to share my resume if you have solid leads.

Thanks.

spot.fund/qsrm8f8sc

06.09.2025 20:06 β€” πŸ‘ 11    πŸ” 9    πŸ’¬ 1    πŸ“Œ 1

The money for Azine's basic needs ran out again. She needs food, meds, and medical supplies, and my money is currently tied up in my own survival.

🚨Please send what you can! (and share, comment, etc).🚨

Madeleine's PayPal is madeleinewedemeijer@gmail.com

04.09.2025 04:30 β€” πŸ‘ 4    πŸ” 4    πŸ’¬ 0    πŸ“Œ 0
How to support your friend who lives with ME/CFS or long COVID
Home
/
MECFS Information
/
How to support your friend who lives with ME/CFS or long COVID
Emerge Australia has put together this guide to help you understand what someone with ME/CFS may be experiencing, and to provide some tips to help support them to stay connected.

How to support your friend who lives with ME/CFS or long COVID Home / MECFS Information / How to support your friend who lives with ME/CFS or long COVID Emerge Australia has put together this guide to help you understand what someone with ME/CFS may be experiencing, and to provide some tips to help support them to stay connected.

🧡
It would be great if friends of people with ME/CFS or long COVID would take the time to read this. These conditions are very socially isolating and lonely and patients would love to maintain friendships

www.emerge.org.au/how-to-suppo...

#LongCovid #MEcfs

1/

25.04.2025 18:46 β€” πŸ‘ 203    πŸ” 111    πŸ’¬ 11    πŸ“Œ 13
ID: A pond with a duck trailing ducklings on the water & a fox on the shore. Surrounding the lake is a forest of evergreen trees and a snowy landscape. The words are in white with black borders.

Transcript: Azine's Story
Azine travels the world to meet people dear to her. That is her reason for living, as she doesnt know how much time she has left. This goes for everyone, especially with how the world is today. Goes extra for her because of heart-lung disease from birth + a series of embolisms in 2016. 

Embolisms are kept at bay by medication, due to having had more than one. Dystonia and seizures, were made worse by Lyme disease (tick bite 2009). MCAS, probably from birth, is made a lot worse by environmental toxins. She takes 4 antihistamines including compounded ketotifen (expensive) in very high doses to keep her skin from peeling off & to keep limited food down.
     "I dont have access to health insurance, even though that is mandatory where I was born.Because people with Lyme and ME/CFS are routinely denied healthcare, persecuted, and jailed in psychiatric hospitals. That is why I became a traveler/refugee. That is why my mom, who still lives there, is deep in debt. Because there was never gov. support or funding for me, not even welfare."

I've done all I can out of my own resources. We need your help. Please, boost & share her story, & if you can afford to, donate any amount* you can spare to her mom's PayPal: MadeleineWedemeijer@gmail.com
*Literally $1 helps. Fundraisers with more activity, regardless of the size of the donations, are more successful overall as it motivates people to pitch in. And if you include an encouraging message in the memo line, you'll help to lift the severely flagging spirits of all those involved.

ID: A pond with a duck trailing ducklings on the water & a fox on the shore. Surrounding the lake is a forest of evergreen trees and a snowy landscape. The words are in white with black borders. Transcript: Azine's Story Azine travels the world to meet people dear to her. That is her reason for living, as she doesnt know how much time she has left. This goes for everyone, especially with how the world is today. Goes extra for her because of heart-lung disease from birth + a series of embolisms in 2016. Embolisms are kept at bay by medication, due to having had more than one. Dystonia and seizures, were made worse by Lyme disease (tick bite 2009). MCAS, probably from birth, is made a lot worse by environmental toxins. She takes 4 antihistamines including compounded ketotifen (expensive) in very high doses to keep her skin from peeling off & to keep limited food down. "I dont have access to health insurance, even though that is mandatory where I was born.Because people with Lyme and ME/CFS are routinely denied healthcare, persecuted, and jailed in psychiatric hospitals. That is why I became a traveler/refugee. That is why my mom, who still lives there, is deep in debt. Because there was never gov. support or funding for me, not even welfare." I've done all I can out of my own resources. We need your help. Please, boost & share her story, & if you can afford to, donate any amount* you can spare to her mom's PayPal: MadeleineWedemeijer@gmail.com *Literally $1 helps. Fundraisers with more activity, regardless of the size of the donations, are more successful overall as it motivates people to pitch in. And if you include an encouraging message in the memo line, you'll help to lift the severely flagging spirits of all those involved.

We managed to raise enough for Madeline's health insurance that she was able to make a deal, but Azine needs medical supplies & at this point I'm not only flat broke, but also in debt to her pharmacy.

$0/50

13.08.2025 15:03 β€” πŸ‘ 3    πŸ” 6    πŸ’¬ 1    πŸ“Œ 3

Might be too early to tell at this point, but the GI-Immune-Neuro-inflam connection is a crucial area of focus. The new ME/CSF genetic research might also help add more insights

07.08.2025 17:13 β€” πŸ‘ 1    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0

Abscess that spread to my nose then eyebrow is now on the back of my neck. Agony.

Going to urgent care in the morning. I need dental care to survive, which is thousands I have to reraise.
linktr.ee/Wylder
PayPal.me/WyldWish
Cash.app/$WishMage
Venmo.com/u/WishMage

Help me be alive. Please??

05.08.2025 04:34 β€” πŸ‘ 12    πŸ” 19    πŸ’¬ 3    πŸ“Œ 2

The meds alone are $59.48 and needed urgently. I can't pay for it. Please help? πŸ₯ΊπŸ˜₯

@bomper.bsky.social @publiusmaximus.bsky.social @medusaswink.bsky.social @morganwulf.bsky.social @roomcmoo.bsky.social @megaholt.medsky.social @rubyslippahs.bsky.social @liltristi.bsky.social @laknight89.bsky.social

04.08.2025 16:35 β€” πŸ‘ 3    πŸ” 4    πŸ’¬ 0    πŸ“Œ 4

🚨Azine needs meds & food ASAP again. About $65. Needs to be ordered ASAP, & I'm broke.

PP: madeleinewedemeijer@gmail.com

#HelpSky #MutualAid

27.07.2025 16:19 β€” πŸ‘ 4    πŸ” 7    πŸ’¬ 1    πŸ“Œ 2
Things to consider when taking a biologic | Psoriatic Arthritis (PsA) support program | Arthritis Australia Biologics are a type of medication that can be prescribed for PsA. MyPsA is designed to help people with Psoriatic Arthritis (PsA) seize control and become active participants in their journey with Ps...

Runs in our family. Then again so do a bunch of other autoinflam and autoimmune shenanigans ><

Biologics an option at all? Decent resource here to explore a little mypsoriaticarthritis.org.au/document/tests-treatments-medicines-biological-dmards-and-targeted-synthetic-dmards/things-consider

20.07.2025 05:19 β€” πŸ‘ 3    πŸ” 0    πŸ’¬ 1    πŸ“Œ 0

So, I agree with everything here, but I also want to add that there is a medication that can slow (and possibly prevent) the onset of T1DM in some patients.

That med is β‰ˆ$200k for a 14 day course of treatment, and that doesn’t include the cost of the infusion services necessary to administer it!

13.07.2025 08:52 β€” πŸ‘ 26    πŸ” 3    πŸ’¬ 1    πŸ“Œ 0

$0/950 (approximate dollar value of €800)

Azine's mom has been working several jobs in the Netherlands to help her daughter survive & make sure she has a place to go home to.

This is my family. Please do what you can.

PayPal: madeleinewedemeijer@gmail.com

#MutualAid #HelpSky

05.07.2025 20:50 β€” πŸ‘ 13    πŸ” 16    πŸ’¬ 4    πŸ“Œ 5

*reports picture*

Why? "I am in this picture and I don't like it"

26.06.2025 06:22 β€” πŸ‘ 2    πŸ” 0    πŸ’¬ 1    πŸ“Œ 0

I'm cry-laughing

14.06.2025 22:13 β€” πŸ‘ 1    πŸ” 0    πŸ’¬ 1    πŸ“Œ 0

🚨EMERGENCY🚨

We have to get supplies delivered, so this needs taking care of within the next hour!

11.06.2025 23:53 β€” πŸ‘ 4    πŸ” 7    πŸ’¬ 1    πŸ“Œ 4

@roomcmoo is following 17 prominent accounts