Ethical Implications of Study Terminations
As of July 2025, the National Institutes of Health has terminated approximately 4700 of the grants it awarded for scientific research, training, and infrastructure.1 Very little of the public discours...
mass grant terminations might be over for now, but their impact still harms people who were in the studies, including kids & teens. @knelphd.bsky.social @amyknopf.bsky.social and I wrote about ethical implications of abruptly ending studies for political reasons publications.aap.org/pediatrics/a...
07.10.2025 19:32 β π 4 π 2 π¬ 0 π 0
ETHICAL IMPLICATIONS OF STUDY TERMINATIONS
As of July 2025, the National Institutes of Health has terminated approx-
imately 4700 of the grants it awarded for scientific research, training, and
infrastructure.1 Very little of the public discourse regarding the grant ter-
minations has focused on their implications for research participants who
were or would have been enrolled in the trials the grants supported. The
terminated awards are linked to 200 active registered clinical trials, which
had a total planned enrollment of more than 689 000 human subjects,
approximately 20% of whom are infants, children, and adolescents.1
Nearly all the aο¬ected trials that included children and adolescents
focused on stigmatized health issues (eg, HIV, substance use, depression),
and/or persons with marginalized identities (eg, sexual and gender minor-
ity; Black or African American and LatinΓ©). Individuals with marginalized
identities are underrepresented in clinical research,2 even when they are
at greater risk for the illness under study. The issue of underrepresenta-
tion in research is especially relevant for minor adolescents (those youn-
ger than 18 years old) because of ethical and legal barriers to their
participation. Barriers include concerns about minorsβ capacity to consent,
confidentiality of sensitive information (sexual behavior, substance use)
when parental consent is required, and researcher and institutional con-
cerns about liability when waivers of parental consent are granted for
minorsβ enrollment.3
As adolescent health researchers, we have each invested over a decade
of work to address the complex ethical and legal issues that prevent ado-
lescents from participating in research, especially on sensitive or stigma-
tized health issues. Through meticulous eο¬orts to engage and build trust
with adolescents, parents or guardians, and regulatory personnel, we have
enrolled thousands of adolescents in our studies...
Amelia Knopf, @karmacap.bsky.social and @knelphd.bsky.social write in Pediatrics about how the terminations of clinical trials of children and adolescents represent cracks in the foundation of ethical research, and the moral responsibility to repair them: doi.org/10.1542/peds...
07.10.2025 15:35 β π 12 π 9 π¬ 0 π 1
Come cross the finish line with us this morning in our quest to save AIDS research. We have some terrific speakers to end our marathon! Go to saveaidsresearch.org or join the livestream now on You Tube: www.youtube.com/watch?v=C3wx....
17.09.2025 11:28 β π 36 π 10 π¬ 0 π 1
RADLab - Graduate Applicants
Is the RADLab a good fit for my career goals?
Our lab is very research oriented. Our primary goal is to train doctoral students to make outstanding, substantive, and meaningful contributions to the sc...
I'm reviewing applications for the University of Washington's PhD program this fall.
Applicants interested in the Clinical Psychology, Social-Personality (emphasis on personality), or Quantitative programs are welcome to apply.
More information here: sites.google.com/uw.edu/radla...
04.09.2025 21:49 β π 44 π 43 π¬ 0 π 1
So excited to be launching this new program!! Please help us spread the word!!!
24.08.2025 15:57 β π 1 π 0 π¬ 0 π 0
14 teens. 10 weeks. 1 powerful mission: save lives. π
OβBryant High School students in @bostonschools.boston.gov teamed up with @busph.bsky.social and @bmchealthsystem.bsky.social to create a peer-led #overdoseprevention program. Please share their work!
More info at: bit.ly/3Jlo3Jb
19.08.2025 17:37 β π 1 π 1 π¬ 0 π 0
N.I.H. Workers Denounce Trumpβs βHarmfulβ Health Policies
I stand strong with the civil servants at NIH who are not only doing science but defending science by demanding that the administration not abandon lifesaving research mandated by law. Putting NIH research on hold puts peopleβs lives at risk.
17.06.2025 13:30 β π 1216 π 252 π¬ 29 π 4
Today, my NIH colleagues and I did something scary but really important. We spoke up about egregious harms we are seeing happen to research participants and public health through thoughtless and politicized policies at NIH. π§΅1/3
apnews.com/article/nih-...
10.06.2025 04:10 β π 1044 π 255 π¬ 36 π 20
Bethesda Declaration β STAND UP FOR SCIENCE
Support NIH Staff Now!
The Bethesda Declaration: A Call for NIH and HHS Leadership to Deliver on Promises of Academic Freedom and Scientific Excellence
www.standupforscience.net/bethesda-dec...
10.06.2025 00:55 β π 4 π 4 π¬ 0 π 0
Microsoft Forms
Data request: any APHA or UAW members impacted by NIH grant terminations are encouraged to visit the link below by MONDAY 5/19. The goal is to provide the court with info about which grants have been affected and the number of people impacted if the judge issues relief in the matter of APHA v NIH.
17.05.2025 02:24 β π 59 π 42 π¬ 1 π 1
The NIH Is Requiring Grantees to Follow Trumpβs Anti-Trans Executive Order
At least two institutions have been directed to comply with the order as a condition of getting NIH funding, marking a new front in the administrationβs efforts to reshape the scientific ecosystem.
NEW: At least two institutions have been directed to comply with Trumpβs anti-trans executive order as a condition of getting NIH grants, according to letters I've seen. The policy marks a new front in the administration's efforts to reshape the science ecosystem.
www.chronicle.com/article/the-...
09.05.2025 19:54 β π 99 π 77 π¬ 5 π 9
the word alert is in a purple circle
ALT: the word alert is in a purple circle
ACTION ITEM-----ACTION ITEM
Implementation of Schedule F
This is what a lot of us have been worried about.
This allows for many civil service positions to replaced with political appointees. This could include NIH institute directors and even POs.
BUT THERE IS A COMMENT PERIOD...
1/n
23.04.2025 18:03 β π 363 π 449 π¬ 18 π 59
Science Organizations Should Protest Loudly against Trump Cuts
Similar to other professions, science has organizations that represent scientists and the research they do. Too many are staying silent as Trump dismantles research
βI urge you to ask: What is my professional society actively doing to protect science right now?
And if the answer is βnothing,β perhaps itβs time to rethink your membership.
Because silence isn't neutrality. Itβs complicity. And science deserves better.β
www.scientificamerican.com/article/trum...
18.04.2025 01:40 β π 12 π 6 π¬ 1 π 0
π¨ BREAKING: I'm suing #RFKJr @ #HHS & #JayBhattacharya @ #NIH
Canceling medical research grants threatens innovations benefiting ALL Americans, no matter your politics! πΊπΈ
Thanks to my lawyers @aclu.org @aclum.bsky.social @protectdemocracy.org & @cspi.bsky.social
Long π§΅ on why I'm suing π
1/
02.04.2025 19:52 β π 9427 π 1975 π¬ 191 π 75
βOne of the darkest daysβ: NIH purges agency leadership amid mass layoffs
In shock move, four institute directors at the US biomedical agency are removed from their posts.
βThis will go down as one of the darkest days in modern scientific history in my 50 years in the business,β says Michael Osterholm, an infectious-diseases epidemiologist at the University of Minnesota in Minneapolis. βThese are going to be huge losses to the research community.β
01.04.2025 20:37 β π 3734 π 1408 π¬ 105 π 71
Airtable | Everyone's app platform
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π Big reveal! Introducing our interactive table on NIH grant terminations, supercharged from the original Google tracker! ππ
Help us uncover which NIH grants are tagged for termination and why! π΅οΈπ
1 / π§΅
#HealthEquity #MedSky #PublicHealth
25.03.2025 10:21 β π 71 π 45 π¬ 8 π 4
Please take a second to read my statement on the termination of the Adolescent Medicine Trials Network for HIV Interventions. This is devastating to science but even more so to the youth impacted. Thank you
23.03.2025 22:06 β π 23 π 15 π¬ 0 π 0
Kill The Cuts
On Tuesday, April 8th, 2025 workers across the country are standing up and demanding NO cuts to education and life-saving research. www.killthecuts.org
22.03.2025 10:39 β π 150 π 46 π¬ 3 π 4
Itβs been a devastating 24 hours with 3 NIH grants terminatedβ¦all focused on the health and wellbeing of trans or intersex youth. If folks have any ideas of foundations that may be interested in supporting the completion of these projects so years of work arenβt wasted, please let me know. π
21.03.2025 23:46 β π 472 π 221 π¬ 14 π 9
Higher ed reeling from conservative crackdown - The Boston Globe
Universities have been one of the greatest engines of knowledge generation and upward mobility we have ever had. Plenty to critique and mock in academia, but if this mission to destroy universities succeeds, our kids will have fewer opportunities and our economy will be harmed for generations.
16.03.2025 12:31 β π 16 π 7 π¬ 1 π 0
if you've had an NIH grant terminated, I want to hear about it. Signal: katherinejwu.12
07.03.2025 14:17 β π 496 π 387 π¬ 3 π 7
Woman at the Stand Up for Science rally in Boston with sign that says βNobody puts science in the corner!β And the Pride flag on it.
Crowd at the stand up for science rally in Boston
@standupforscience.bsky.social rally in Boston!!
08.03.2025 01:20 β π 16 π 1 π¬ 0 π 0
Exclusive: NIH to terminate hundreds of active research grants
Studies that touch on LGBT+ health, gender identity and DEI in the biomedical workforce could be terminated, according to documents obtained by Nature.
NEW: The NIH has begun terminating grants for active projects studying gender identity, DEI, environmental justice, climate change, among other topics.
At least 16 termination letters have already been sent β and hundreds more are coming, people inside NIH tell me.
www.nature.com/articles/d41...
06.03.2025 02:17 β π 1312 π 897 π¬ 39 π 119
Just received notice that our grant was terminated. 5R24AG066599-03
TheRiseRegistry.org
01.03.2025 01:36 β π 504 π 276 π¬ 94 π 89
YouTube video by friendsofUSAID
Save Foreign Aid
Thank you to everyone who stands with USAID. Share far and wide. Unfortunately we donβt have $40 million to buy up ads during the Super Bowl. Even if we did, weβd use it to support the U.S. economy while feeding kids around the globe.
#StandWithUSAID
#SaveForeignAid
m.youtube.com/watch?v=PqUE...
09.02.2025 23:29 β π 694 π 258 π¬ 5 π 7
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