Amanda Jones @missysmatters

Latest posts by missysmatters.bsky.social on Bluesky

Cripping Breath colleagues have shared this amazing blog about being involved in the arts with exciting theatre to come soon.

sheffield.ac.uk/cripping-bre...

#crippingbreath #breathing #respiratory #disabledarts

21.10.2025 10:23 — 👍 0 🔁 0 💬 0 📌 0

Cripping Breath - Participatory Photography Training - PhotoVoice - Projects, Training, Photography and Consultancy for Social Change "We had open, often moving conversations, and experienced first-hand what truly participatory photography can offer."

Jen and Suzanne who have had a blog post republished on the PhotoVoice website!

PhotoVoice is a UK based non-profit organisation that promotes the use of ethical photography and community engagement for social change.

photovoice.org/crippingbrea...

#crippingbreath #photovoice

14.10.2025 13:27 — 👍 0 🔁 0 💬 0 📌 0

A latest blog post from working with the wonderful Cripping Breath team, all about rare disease. sheffield.ac.uk/cripping-bre...

#RareDisease #RelapsingPolychondritis

05.08.2025 13:18 — 👍 0 🔁 0 💬 0 📌 0

05.08.2025 13:17 — 👍 0 🔁 0 💬 0 📌 0

On #WorldCaringDay a shout out to my book about caring for Mum.

#type1diabetes #childcarer #DisabilityAwareness

07.06.2025 21:47 — 👍 1 🔁 0 💬 0 📌 0

My Venus flytrap in flower.

#venusflytrap

19.05.2025 15:54 — 👍 0 🔁 0 💬 0 📌 0

Dunnock singing in my garden, don’t normally see them. But blackbirds, robins, bullfinch, house sparrows, a gorgeous mini murmuration of starlings in the oak trees, plus more. Fresh frogspawn in my pond. All reported to BTO weekly.

06.02.2025 21:10 — 👍 0 🔁 0 💬 0 📌 0

Today is #nationalkathleenday and my book about caring for my Mum Kathleen is available to honour amazing people like her and live through disability.

www.thebridgetowncafebooksshop.co.uk/2024/04/kath...

#Kathleen #disabilitybook #disabilityawareness

13.01.2025 12:29 — 👍 3 🔁 0 💬 0 📌 0

Kathleen my book about caring for Mum as a child was published last year.

Here is the cover with my other titles.

#books #kathleen #childcarer #disability

08.01.2025 20:50 — 👍 0 🔁 0 💬 0 📌 0

@missysmatters is following 20 prominent accounts

Genomics England
@genomicsengland

We’re working to enable faster and deeper genomic research, to bring genomic healthcare to all who need it.

Progress Educational Trust (PET)
@pet-bionews

PET is an independent charity that provides impartial and accurate information to people affected by infertility and genomic conditions.

Centre for Applied Respiratory Research Innovation & Impact
@carriiuk

The Centre for Applied Respiratory Research, Innovation, and Implementation (CARRii) is dedicated to revolutionising respiratory healthcare across the UK. University of Oxford University of Edinburgh Queen Mary University London

The Policy Institute
@policyatkings

Working to solve society’s challenges with evidence and expertise. Based at King's College London 🔗 kcl.ac.uk/policy-institute Event invites & updates ➡️ https://kcl.us14.list-manage.com/subscribe?u=1fbc849719098ca1a31f3263e&id=9ba63cb1ff

Tina Leonard 🧡💙
@leonard3tina

Retired research biochemist. Quaker. Climate activist. Co-founder Quaker Support for Climate Action (QS4CA), Networker, Green. #NotMyKing #TogetherWithRefugees

@crippingbreath

Transition Together
@transitiontog

We support the Transition movement across Britain to develop & grow. Currently not very active here (time constraints) Do check out: https://bsky.app/profile/transition-network.bsky.social https://transitiontogether.org.uk/

Transport for All
@transportforall.org.uk

The disabled-led group breaking down barriers and transforming the transport system so disabled people can travel with freedom, dignity, ease and confidence. Join our community for transport justice: https://www.transportforall.org.uk

Disability Rights UK
@disrightsuk

We one of the UK’s leading Disabled People's Organisation run by and for Disabled people, working for justice and equality for all. https://linktr.ee/disabilityrightsuk

Meaghan Kall
@kallmemeg

Epidemiologist, public health trainee, mom, wife. Formerly @UKHSA. Disability advocate. Born 🇺🇸 Migrated 🇬🇧. 🏳️‍🌈 Personal account.

Alice Wong
@sfdirewolf

Author, editor, activist, cat lover. Founder of the Disability Visibility Project. #DisabilityJustice feed I created: https://bsky.app/profile/did:plc:65kss3ewg5ida5mjyuk73v5r/feed/aaaba7ikg4sho More about me https://linktr.ee/disability_visibility

Peter Morley ♿️
@petermorley

Patient Advocate (morethanmySLE from Twitter) *Disability & Chronic Illness Activist. *♿️, Cancer Survivor & #Lupus Warrior. *Testified 3x for Congress. *Anjelika is my #servicedog YouTube Congress Videos: https://www.youtube.com/@petermorley_sle/videos

Quakers Australia
@quakersaustralia

Quakers Australia is a faith community grounded in simplicity, peace, integrity, community, equality, and care for the Earth. We seek to live out our spiritual values through worship, service, and advocacy for social justice and peace.

Quakers in Ireland
@quakerireland

Quakerism is rooted in Christianity. We are formally known as the Religious Society of Friends. Registered Charity Number CHY:8033 CRA:20019273.

Quakers in Britain Peace Team
@peace-campaigns.quaker.org.uk

We support #Quakers to live out their deep commitment to #Peace. RTs not an endorsement. Quakers in Britain, Friends House, NW1 2BJ

Quaker Social Action
@quakersocialaction

Charity taking practical action against poverty. https://quakersocialaction.org.uk/ From homelessness to funeral poverty, food security to financial wellbeing. We help people on low incomes to seek solutions to the issues affecting their lives.

National Trust
@nationaltrust.org.uk

All kinds of spaces. All sorts of feelings. All at the National Trust.

RSPB England
@rspbengland

Restoring habitats, saving species and connecting people to the wonder of nature, across England. Together, we fly.

RSPB
@rspb

Filling these blue skies with birds, and saving nature while doing it. 🦅🦆🦉🐦🐤🐧 Our Website: https://brnw.ch/21wQQ1O Cover photo: Michael Sanders 📷

@gillyj