Amber - About IBD

🪞Body image issues are common in #IBD. Symptoms change our bodies & stigma doesn’t help with dating and intimacy.

On #AboutIBDPodcast Ep 195, sex coach Dr Stacy Friedman shares how to build a better relationship with your body & your partner.

Listen, watch, or read on my website: bit.ly/AIBD195

💟 63% of women, 34% of men & 75% of LGBTQ+ people with IBD struggle w/ intimacy. If you are dissatisfied with your intimate life, please know help is available! Learn from #intimacy coach @drstacyfriedman.bsky.social how you can bring sexy back on #AboutIBDPodcast ep. 195: bit.ly/AIBD195

I feel like it should be “MY foot” 😆

💭 I’m inspired by the idea of leaving people better than we find them.

On Episode 193 of #AboutIBDPodcast, Lisa Zawrotny of Positively Productive Systems shares her philosophy: improve the things and people she touches. Find this episode in any podcast app, on the YouTubes, or here: bit.ly/AIBD193

🚨Reminder for all the #chronicillness besties to get some labs or med refills done now, before the end of the year, to take advantage of any flexible spending dollars, or if you've met your deductible for the year! #IBD

🌟 She makes a good point! We're not talking about denying reality. It's about going into a situation with optimism. Because the truth is that most of the things we worry about never happen. 🧠 Kinsey explains it best on episode 191 of About IBD: bit.ly/AIBD191

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My newsletter is cued up. Usually I send in the morning, but having IBD means I need to be flexible! In this edition: links to content from The Global Healthy Living Foundation, IBD Connect, Badass With a Bad Ass, and The Job Hopper. Get it by only providing your email: aibdnewsletter.aboutibd.com

⚡Katryna, my guest for About IBD Podcast Ep 190, points out how life with #IBD is distracting. After #colectomy with #ileostomy placement, she was more present in her relationships. Get the whole episode (audio, video, transcript) with more wisdom (plus some laughs) on my website: bit.ly/AIBD190

🍾 #IBD shows up even on our biggest days. In Episode 190 of #AboutIBDPodcast, Katryna Loewen shares how she navigated #UlcerativeColitis, flare-ups, a colectomy, and an ileostomy during major life milestones. Her courage, creativity, and community spirit shine through. Get it here: bit.ly/AIBD190

See episode 189 of #AboutIBDPodcast to get more perspective on this topic and how the #gastroparesis and #IBD communities can support one another. In your podcast app, on YouTube, or use my episode homepage for easy access to everything here: bit.ly/AIBD189

5. Find Community Support

Support groups, both online and in-person, can help you feel less isolated and give you resources, tips, and a social connection with people who understand your experience.

4. Don’t Compare to Others

People with gastroparesis or IBD have individual journeys, so comparing symptoms, treatments, or eating plans with others can lead to frustration.

3. Prioritize Quality of Life

It’s okay to advocate for symptom management, like treating nausea, even without a diagnosis. Medications, lifestyle support, or nutritional advice can make a big difference in symptoms.

2. Recognizing Overlapping Symptoms

Gastroparesis, other motility disorders, and IBD have similar symptoms. If your symptoms aren’t explained by your diagnosis, talk to your team about other potential causes.

1. Advocating for Yourself

If you’re not being heard, seek another opinion. You deserve to be taken seriously and to find providers who listens to your concerns.

🚽 New symptoms are frustrating. Whether it’s brand new or something your team hasn’t diagnosed yet, getting help takes time. But ignoring it risks an emergency. On #AboutIBDPodcast, Samantha Sauer of G-PACT reminds us: keep advocating! 🌟 Ep 189 is out now! bit.ly/AIBD189

🌼 You deserve respect, answers, & proper care. On #AboutIBDPodcast: Samantha Sauer, BCPA of G-PACT, shares why self-advocacy is key for people with digestive conditions. If you're not being heard, keep pushing & seek other opinions. Episode 189 is live now in podcast apps, YouTube, & bit.ly/AIBD189

🍽️ Gastroparesis can cause nausea, fullness, and vomiting. Samantha Sauer, BCPA, president of G-PACT, helps us understand gastroparesis, how it differs from #IBD, and whether it's common to have both. 💕

Episode 189 of #AboutIBDPodcast is in your podcast app, on YouTube, or at bit.ly/AIBD189.

The Truth About Stigma and Acetaminophen Use During Pregnancy Featuring Mariah Leach, JD, MS - About IBD Amber and Mariah discuss how women with chronic illnesses cope with advice on medication use in pregnancy—especially in light of the confusion around acetaminophen. Mariah shares her experiences with ...

The haphazard comments regarding acetaminophen open pregnant women to stigma about medication use. Listen, watch, or read episode 188 of #AboutIBDPodcast with Mariah Leach, JD, MS of Mamas Facing Forward. See the show notes for info, incl the FDA letter & medical society statements: bit.ly/AIBD188

🪫 Staying active with #IBD is challenging, but it’s possible! Join me on #AboutIBDPodcast as I chat with Sean Lochran, an #ostomy fitness coach who shares practical tips for managing nutrition, hydration, and exercise. 🌿Listen, watch, or read here: bit.ly/AIBD187

I’m so excited to be at Mercy University today for the Bridging Autoimmunity: Patient Forum with IMIDeology! Lots of great talks and also innovative solutions coming out of this one of a kind event! #IMIDeology
www.imideology.com/event-detail...

Take care of yourself, Brian. 💜

IBD 101: Getting to the Bottom of Inflammatory Bowel Disease Featuring Katie Dunleavy, MB, BCh, BAO – About IBD Podcast Episode 183 - About IBD We get back to the basics of inflammatory bowel disease (IBD), including the differences between Crohn’s disease, ulcerative colitis, and how IBD is different than irritable bowel syndrome (IBS). IBDo...

🗝️ I am thrilled to share my About IBD Podcast with IBDologist Dr Katie Dunleavy! She covers how IBD differs from IBS, common symptoms, how #Crohns or #UlcerativeColitis are diagnosed, and what treatment looks like. In podcast apps, the YouTube, or get it all at: bit.ly/AIBD183

🫥 #IBD is invisible, so people don't understand. Stories like “The Mouse Who Couldn’t Eat Cheese,” help kids (& grown-ups) feel seen. 📖 Learn more about the book, who inspired it, and author MB Mooney on #AboutIBDPodcast 181! Get it any podcast app, or watch the VIDEO on the YouTube! bit.ly/AIBD181

Subscribe to the About IBD Newsletter! Sign up for the newsletter for About IBD and get updates each week!

My email newsletter goes out today (Tuesday)! In it is the latest from me and more from around the IBD community, including Lights, Camera, Crohn's, @crohnscolitisfdn.bsky.social, IMIDeology, and other folks not on this app. Get subscribed with only an email address: aibdnewsletter.aboutibd.com

🧐 Curious about IBD research? On #AboutIBDPodcast, I talk with Propel a Cure president & CEO, Angela Clark. Propel a Cure funds research into causes of Crohn's and updates the community on progress. Listen in any podcast app, see a video on YouTube, or use my website to choose either: bit.ly/AIBD180

🤩 I have a great podcast for you! I'm a big fan of Lisa Zawrotny and the Positively LivingⓇ Podcast, so we worked together to put together an episode of self-care tips that aren't trivial! Get it in your #podcast app or at my website: bit.ly/AJTPods #IBD #MentalHealth #Crohns #colitis #SelfCare

I can’t wrap my brain around this.

Be careful! I’ll be mad at you if you get heat stroke. 😂 It’s cooler up here tomorrow.

🎙️ On the latest About IBD Podcast, Dr Navidi of GI Psychology and I dive into the critical link between #mentalhealth and GI disorders like IBD. It's an eye-opening discussion you won’t want to miss! 💡 Get it here: bit.ly/AIBD178

Also, watch the whole video on YouTube!
youtu.be/k9TAupEcRtk