A little update. Skin expanders are in and so far so good had first saline injection and all went well. Just a slight finger infection on the knuckle. #burnsurvivor #tuneup #scartissue #plasticsurgery
12.08.2025 21:02 — 👍 0 🔁 0 💬 0 📌 0@jpouch-journey.bsky.social
UC ➡️ polyps ➡️Ileostomy ➡️J-Pouch. Still have PSC and pouchitis. Burn survivor. If you are an influencer or your posts are sponsored it's a hard No! Also, I have a really bad sense of humor.
A little update. Skin expanders are in and so far so good had first saline injection and all went well. Just a slight finger infection on the knuckle. #burnsurvivor #tuneup #scartissue #plasticsurgery
12.08.2025 21:02 — 👍 0 🔁 0 💬 0 📌 0Life is hard, but we are survivors.
26.07.2025 04:55 — 👍 0 🔁 0 💬 0 📌 0I am also a #burnsurvivor and every now and then I need to go for a little tune up. Shortened my pinky tendon, due to a break and a skin expander on arm to replace scar tissue. 2nd surgery on 6-8 weeks. This will be the last surgery, I am getting tired and need to accept what I have is what I got.
26.07.2025 04:52 — 👍 0 🔁 0 💬 0 📌 0A nutrient-rich #plant-based diet may reduce the risk of inflammatory bowel disease (#IBD) including #Crohn's disease and #ulcerative #colitis, and decrease the need for surgery in diagnosed patients. www.medicalnewstoday.com/articles/die...
25.03.2025 18:23 — 👍 10 🔁 7 💬 0 📌 2my partner has ulcerative colitis. next time he’s in the bathroom i’m gonna refer to that as his “space flight”
16.04.2025 03:58 — 👍 12 🔁 2 💬 0 📌 0I had to Google mayo scale. Would you believe I have never heard of that scale before. Things that make you go hmmm!
22.03.2025 04:37 — 👍 1 🔁 0 💬 1 📌 0Aww the good ole anal intrusion. Tell the doc to use lots of lube, we've taken it dry for too long. You might get a laugh or a really bad eye roll.
19.03.2025 03:51 — 👍 1 🔁 0 💬 1 📌 0Ulcerative colitis yes has potential to affect liver via primary schlorosing colongitis. Hardening of the liver bile ducts. And ya have cysts all over my internal body, shoulder, pancreas, stomach lining. Most likely find many more as time goes on. I just plan on outliving them.
14.03.2025 04:04 — 👍 1 🔁 0 💬 1 📌 0Start writing a pooping song. Make it a good jingle 😁
13.03.2025 04:44 — 👍 0 🔁 0 💬 0 📌 0You can do it!
13.03.2025 04:40 — 👍 1 🔁 0 💬 1 📌 0I underestimated the acid shits. One good thing is when you fart you know you are done. Kinda weird but mostly true. Ha ha ha. Whole new world. 😂
12.03.2025 01:14 — 👍 0 🔁 0 💬 0 📌 0Yep these surgeries mess with your sex life. Talk to your doctor about dick pills. Sorry, medication for erectile dysfunction. Just don't overdo it. If you are prescribed a med try a fraction of the pill first. They really do a thing in your body, make you dizzy etc.
12.03.2025 01:08 — 👍 1 🔁 0 💬 1 📌 0Yep that's it. You will never have a "normal" turd ever again, but you will adjust. Oh and dehydration will always be a thing. Grape G-Zero is my go to.
12.03.2025 00:58 — 👍 0 🔁 0 💬 1 📌 0There is a really awesome jpouch group on Facebook you might want to check out so you are prepared for your reversal. My recommendation is get a bidet.
11.03.2025 12:34 — 👍 0 🔁 0 💬 1 📌 0Have to admit your skin around it looks good.
11.03.2025 04:34 — 👍 0 🔁 0 💬 1 📌 0OMG! Love it 😂😂😂
08.03.2025 00:06 — 👍 0 🔁 0 💬 0 📌 0Oh and metamucil and water helps stop the explosions.
17.02.2025 03:28 — 👍 1 🔁 0 💬 1 📌 0I eat gluten free, a Banana a day when needed and rice as often as possible. Surprisingly Asian foods such as mild Curry's don't make my life hell. Oh and no sugar, sugar bad, stevia is where it is at and watch the other sweeteners that have complicated names.
17.02.2025 03:26 — 👍 1 🔁 0 💬 1 📌 0I destroy the bathroom at work pretty much daily, and I take full ownership. I also have a coffee mug that says one fart away from a shit.
17.02.2025 03:19 — 👍 2 🔁 0 💬 1 📌 0I do hope it helps. Just remember we are survivors!
15.02.2025 02:05 — 👍 1 🔁 0 💬 0 📌 0Rice and bananas are my friends. I don't have an ostomy anymore but a jpouch. Western food and I do not get along. A banana smoothie or a good curry, very mild spice and rice are my new best friends. Even a good Korean bulgogi beef and rice helps settle my stomach. Also try gluten free.
15.02.2025 02:00 — 👍 1 🔁 0 💬 1 📌 0Your liver and cirrhosis bad gut.org
Had my bi-yearly Hepatologist appointment yesterday. #psc is under control and my liver has been able to heal.
15.02.2025 01:53 — 👍 2 🔁 0 💬 1 📌 0Wow! I have had PSC for over 25 yrs and liver transplant has never been discussed .
11.02.2025 16:45 — 👍 1 🔁 0 💬 1 📌 0I guess each person is different. I have been on ursodiol on and off for years and it keeps my PSC at bay.
11.02.2025 16:43 — 👍 0 🔁 0 💬 1 📌 0Had it most my life. Was prescribed ursodiol and my blood work was good. One GI took me off it my liver tests too a nice dive. Back on ursodiol and results looking better. In my situation It means I can't drink alcohol, if I do I turn into a girl drink drunk. Half a glass and I am spent.
11.02.2025 16:31 — 👍 1 🔁 0 💬 1 📌 0Wow! Things that make you go hmmm!
11.02.2025 16:25 — 👍 0 🔁 0 💬 0 📌 0Been there done that bought the T-shirt. Don't recommend.
11.02.2025 16:21 — 👍 0 🔁 0 💬 0 📌 0Hey, elites, politicians, and those in power!
Dystopian novels are 𝘄𝗮𝗿𝗻𝗶𝗻𝗴𝘀, not 𝗵𝗼𝘄-𝘁𝗼 𝗴𝘂𝗶𝗱𝗲𝘀 for building the perfect state!
You’re not supposed to read "1984" or "The Handmaid's Tale" and think, “𝘎𝘳𝘦𝘢𝘵 𝘪𝘥𝘦𝘢𝘴, 𝘭𝘦𝘵’𝘴 𝘪𝘮𝘱𝘭𝘦𝘮𝘦𝘯𝘵 𝘵𝘩𝘦𝘴𝘦.” 🙃
Appears religion is all cock and balls.
08.02.2025 18:50 — 👍 1 🔁 0 💬 0 📌 0