It’s all good I’ve recovered, thanks

LongHaulersRecovery Only posts about chronic illness RECOVERY allowed. DM poofycade for help.

There’s a great forum where people share their recovery stories, and only that. It’s where I learnt to recover.

www.reddit.com/r/LongHauler...

FWIW I had long COVID (ME/CGS) with scores of symptoms and they all resolved once I recovered. Permanent? No.

Silly doctors. They’re so full of bias. They need to listen to patients much better.

Erm... It’s common knowledge among long COVID patients that the severity of illness doesn’t really matter. I.e. you can have a mild acute phase then get LC.

Is this what you found?

If it makes you feel any better, after recovery my sound sensitivity (ie what you’re describing, I had the same) completely went away, back to normal again.

They’re struggling with long COVID, mostly me/cfs. Know much about it? It’s life-destroying. I understand their rationale, they are worried about getting more sick.

I just love this. You’re doing all the troupes.

Denial of patient-supplied evidence ✅

Devout belief in a widely discredited paper ✅

Complete void of compassion for the patients you purport to serve ✅

So many people I know have no trust in doctors, I wonder why?

Ah, yes. This is what I’m talking about. Medicine in denial about the mind-body connection.

There’s an evidence-based renaissance happening under your fields nose, and because of your rigid beliefs you refuse to see it. Dinosaurs will die, as they say.

I’m just sick of doctors sharing harmful information. Do you know people with long COVID look at this and decide to give up? Are you even slightly aware of this? Do you have an ounce of empathy?

By the way, I’ve fully recovered.

Tell me how devout your belief is I the PACE trial, that science?

Why go to all the effort to study this and not ask the people who have recovered what they did to recover? Then scientific medicine would actually learn something

Is this an affiliate link?

Did they ask what those who have recovered did to recover? Kind of crucial. Otherwise not very useful.

Amazes me how a doctor can post a paper without reading and understanding it. It’s almost like they don’t have the time to think and deduce

It is staggering how wrong he is, so confidently.

I don’t think treating long COVID with stimulants is a good idea. Give us false energy, leading to overexertion and crashes.

Patients with long COVID take a look at content like this and just shake their heads.

It’s almost as bad as the “glucose goddess” saying a savoury breakfast cured her chronic fatigue.

Just…. No words…

I’ve recovered and am in Australia. Can I help?

Treat the long Covid and the POTS goes away by itself.

That’s not exactly news.

Very true. So many useful recovery stories from healed patients.

Case studies are still evidence. It’s wild how many people get offended when I suggest this.

Of course there is no big evidence sets yet, because medical science has ignored ME patients for decades.

1000% true. If a doctor recommends this, get another doctor!

bsky.app/profile/snuf...

Mind-body connection techniques are far more effective than any drug treatment. Go on, tell me of a single drug that has case study level evidence of curing long COVID?

But what do those stories say? I am sick, this is what I did to stay sick? Not super useful. Do they deserve compassion? Absolutely. But it’s not helpful for those trying to recover.

I’m really sorry to upset sufferers of ME. I had it myself.

Again, qualitative vs quantitative. Really important. Both are evidence.

The problem with a lot of medical science is it ignores-
1- qualitative evidence (esp from patients)
2- mind-body connection medicine

Med sci won’t save us. We do

Lastly I just read your profile. Sorry to hear you’ve had ME for years, I know what it’s like. Anyone who has dealt with this for years has my admiration.

Also. Sorry I can’t read the whole post for context, I’ve been blocked from it (I wonder why!).

I’ve been told by many doctors that my illness was permanent. Many patients believe this too, told by doctors. Are you telling me you’ve never encountered this from the medical system?!

I seem to be coming across this belief a lot, that recovery isn’t possible. I’m fully recovered from what I learnt. I’m literally giving you a link to all the proof. Read a bunch of these stories.

Do you know the difference between qualitative and quantitative evidence?

So true. Have you heard of the 3 bucket model? Physical, cognitive, emotional. Limited capacity in each of those, compared to a healthy person. Go over your limit leads to a crash. So gotta learn the limits. Limits gradually get better over time.