Bad Mad Autistic

And when things go wrong, the system leaves patients pretty much powerless to get any resolution, genuine help or justice.

The way so many people think you just go to the doctors and get some help.

Too often people are overlooked, ignored, dismissed (especially true for women), professional egos get in the way, and even at best you can be waiting years before you get any answers.

Table showing JRF’s indicative estimate of the amount needed to afford essentials for a single adult and couple in 2026/27. In total (rounded) this is at least £120 a week for a single adult and £205 for a couple. It also shows how this breaks down into different categories. For example, the total for a single adult includes weekly amounts of £42 for food, £24 for electricity and gas, £7 for water, £7 for clothes and shoes, £8 for communications (including phones, internet and postage), £21 for travel and £13 for sundries (such as toiletries, haircuts, cleaning materials, bank charges).

MPs will soon debate the annual benefits ‘Uprating Order' on how much benefits rise this year. But shockingly, support has never been set according to any logical calculation, like ensuring Universal Credit covers life's essentials - which @jrf-uk.bsky.social estimates cost £120 a week🧵1/4

Really sorry to hear this.

Our politics is dominated by people who have never lived on a low income and know little of what such a life involves. There are remarkably few ways for people to truly shape government decisions that will determine their own lives.

So sorry you've had such a difficult week.

I really hope this coming week will be easier for you.

London hospital STILL starving severe ME patient, Savannah — bias medical approach to blame A South London hospital is still putting severe ME patient Savannah's life at risk and a clinician who psychologises ME might be why.

NEW 🚨 A South London hospital is still putting severe ME patient Savannah's life at risk and a clinician who psychologises ME might be why.

www.thecanary.co/uk/analysis/...

People stare if you stand, stare if you sit, stare if you rest, stare if you move “too much” or “too little.”

Our bodies become public property, open to opinions, assumptions, and suspicion.

This isn’t care. It’s control.

Disabled people live under constant surveillance, not for safety, but for judgement.

Strangers comment on mobility aids.

Professionals question pain, weight, movement, or how symptoms “should” look.

Benefits systems scrutinise every gesture.

You already need a lot of medical evidence to prove eligibility for disability benefits.

You’ve always needed a lot of medical evidence to prove eligibility for disability benefits.

Politicians stating otherwise aren’t ignorant… they’re deliberately lying to stir hate.

Just an FYI

You cannot claim it’s “too easy” to claim disability benefits, if you’ve never been through the process.

Je viens d'essayer de créer un compte Facebook sous un nom d'emprunt (prudence oblige par les temps qui courrent).
Refusé : "vous devez utiliser votre vrai nom, celui que vos amis utilisent".
Où sont-il allés cherché comment je m'appelle en vrai ?
Peut-être sur WA où je suis sous mon vrai nom ?

Earned settlement: Activists warn Labour consultation is a stitch-up Migrants’ Rights Network is urging allies to flood Labour’s ‘earned settlement’ consultation — policy rooted in cruelty, racism and classism

Migrants’ Rights Network is urging allies to flood Labour’s ‘earned settlement’ consultation — policy rooted in cruelty, racism and classism

www.thecanary.co/uk/analysis/...

Hey autism research nerds, what are your go-to resources on autism and Alzheimers? This is for a recently diagnosed community member. Thanks in advance.

#autism #alzheimers

Housing is a basic human right & human need.

One disabled person doing one thing on one day, does not mean:

1. They can ever do it again.
2. They are “better”.
3. They’re faking it.
4. It was easy.
5. That another disabled person can do the same.

100%.

I'd also add (and I'll probably phase it really badly) that:

If we seek medication, it's not because we are addicted to or abusing it.

We seek it to have some hope of functioning (but we are often subjected to medical gaslighting and getting our needs dismissed instead).

Temporary accommodation in England is ‘torture’ for neurodivergent children, report finds Exclusive: Parents said their children had become withdrawn or hypervigilant because of uncertainty, unsafe environments and removal of support Neurodivergent children living in temporary accommodation (TA) in England are subjected to conditions that amount to “torture”, and the harm it causes them is “psychologically excruciating” and a form of “child cruelty”, a report has found. The report by King’s College London through the all-party parliamentary group (APPG) for households in temporary accommodation, found that while living in TA was damaging for any child, it had a particularly severe impact on neurodivergent children and those with special education needs and disabilities (Send). Continue reading...

Temporary accommodation in England is ‘torture’ for neurodivergent children, report finds

The right is always happy to weaponise mental health and disability. It just depends on the day whether they’re arguing you’re incapable because of it or you’re faking having it.

Truth is that there is no such thing as a “fully accessible society”.

Not because we can’t do a lot better, but conflicting access needs mean what is accessible for one is the opposite for another.

Really it’s about flexibility & doing our best in as many situations as possible

Don't tell someone that is autistic to calm down if they're experiencing a meltdown. It's just not a nice thing to do. It would be like expecting a fish to breathe outside of water.

Instead show support, patience or even ask if there is anything I can do to help or just leave the person alone.

Because Streeting is a crank who refuses to fund the system properly. It's cheaper for him to pretend that all ND people are hysterical liars.

This always comes down to money.

Here's how you can stop the DWP ruining young people's lives URGENT - we need to stop the DWP from targeting young disabled people - give evidence to the latest consultation

🚨URGENT - we need to stop the DWP from targeting young disabled people - give evidence to the latest consultation

www.thecanary.co/uk/analysis/...

Don't know if it helps, but when I had my recent surgery, I bought an unlocked Nokia non-smart phone for £40 and put my SIM in there so that I could take that to hospital rather than my smart phone.

My theory was that a cheap non-smart phone wouldn't be as attractive to anyone unscrupulous to take.

how conspicuous are you

how much independence do they expect

how much is the wealthy ruling class willing to allocate to support the person

That’s all it measures
That’s all it says

fellas the “levels” of autism (1, 2, 3) are nonsense

it tells clinicians & caregivers nothing about what the person needs

it only serves to separate us into categories so that resources can be withheld from those they feel shouldn’t need them

it’s oppression

individual skill profiles are the way

Shut out of work: How workplaces are excluding disabled people

www.citizensadvice.org.uk/policy/publi...

She smiled and said "You've been on your own for an awfully long time. Would you like a cup of tea?"

I politely declined as I didn't want to put her to any trouble, but I thanked her for her kindness.

It was so nice that she took the time to be kind to me.

2/2

As a child, I went with my excuse for a family to a pub in the countryside as it was someone's birthday.

Afterwards, they announced they were going for a walk. I wasn't invited and had to wait in the car, in the summer heat.

After 2 hours, an elderly woman came from a nearby thatched cottage

1/2

It's horrible that the assessor treated you that way.

I can't stand people who think it's okay to put others down, especially publicly as it's so humiliating.