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BlueZebra

@bluezebra30.bsky.social

M.E. since 1976. In the golden rolling hills of California. Looking at screens sets my eyeballs on fire so there will be pauses.

223 Followers  |  219 Following  |  25 Posts  |  Joined: 24.09.2023  |  2.1108

Latest posts by bluezebra30.bsky.social on Bluesky


Social Media, Pleas From Allies and Prison Essays: How Santos Won His Freedom

On Friday evening, President Trump commuted the sentence of former Representative George Santos. “Good luck George, have a great life!” the president said.
Santos’s Release Frustrates His Former Colleagues and Constituents

George Santos, the disgraced former Republican congressman, was freed from prison on Friday after President Trump commuted his sentence. On Long Island, in his former district, some people called the decision an outrage.

Social Media, Pleas From Allies and Prison Essays: How Santos Won His Freedom On Friday evening, President Trump commuted the sentence of former Representative George Santos. “Good luck George, have a great life!” the president said. Santos’s Release Frustrates His Former Colleagues and Constituents George Santos, the disgraced former Republican congressman, was freed from prison on Friday after President Trump commuted his sentence. On Long Island, in his former district, some people called the decision an outrage.

HOLD UP. George Santos is the lead story on the @nytimes.com website on Saturday night? Not the millions of Americans protesting Donald Trump today at 2,700 events in all 50 states? Come on.
www.nytimes.com/2025/10/18/n...

19.10.2025 02:42 — 👍 1197    🔁 241    💬 79    📌 45

Currently watching Bullitt from 1968. Steve McQueen in a fast car? Whatever. Steve McQueen in a turtle neck sweater holding a glass of milk?👍🏻👍🏻👍🏻

14.10.2025 23:52 — 👍 0    🔁 0    💬 0    📌 0

They certainly are for me. Very ingenious work around!

07.09.2025 04:26 — 👍 1    🔁 0    💬 1    📌 0

How do you manage it?

06.09.2025 17:13 — 👍 2    🔁 0    💬 1    📌 0

My docs insisted I trial all of them-could Not believe I had SX with such small doses. 10 years worth, just nope!

06.09.2025 06:14 — 👍 1    🔁 0    💬 1    📌 0

Thanks for all these threads today! No way could I get up at 8am and absorb all these talks.

05.09.2025 19:54 — 👍 2    🔁 0    💬 1    📌 0
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Disabled and elderly residents were abandoned during LA fires The majority of those who died were disabled and elderly residents, laying bare the intersections of ableism and climate injustice

The toll of climate disasters is a direct consequence of decades of disinvestment in the communities most vulnerable to crises. @zacariasm.bsky.social reports on how many disabled & elderly residents were abandoned during California wildfires.
prismreports.org/2025/02/19/d...

19.02.2025 23:06 — 👍 104    🔁 47    💬 0    📌 3

There are a lot of ppl who won’t engage w/ your stuff if it doesn’t have alt text. Change your accessibility settings to remind yourself! Copy-pasting text from an image is easy in the alt text window. If you don’t have capacity, ask for help & someone will hop in—just don’t ignore it as unnecessary

31.01.2025 22:25 — 👍 44    🔁 13    💬 2    📌 0

I’m sorry for the loss of your close friend. It’s excruciating and infuriating this happens.

26.01.2025 23:07 — 👍 3    🔁 0    💬 0    📌 0

Howdy 👋🏽

20.01.2025 20:19 — 👍 1    🔁 0    💬 0    📌 0
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Dismissed and Disbelieved, Some Long COVID Patients Are Pushed Into Psychiatric Wards The chronic illnesses that make doctors doubt their patients often start after what “should” be a short-lived sickness—like COVID-19.

I'd probably only trust someone like Jamie Ducharme to write this one. The psychologization of severe-presenting #MECFS and #LongCOVID. Worth a read. 🧪

Props to Rivka Solomon, and other people with lived experience who spoke.

time.com/7206080/long...

14.01.2025 16:56 — 👍 141    🔁 69    💬 4    📌 6

Please do me a favor, clothes resellers: unscented detergent. PLEASE. The scent just lingers forever even after washing

27.12.2024 20:41 — 👍 731    🔁 82    💬 46    📌 14
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Preserving Telehealth Preserving Telehealth Many U.S. telehealth benefits are set to expire shortly at the end of this year (December 31, 2024). With this email campaign, you can simply fill out your information and it wi...

Unless Congress acts in the next three weeks, Medicare will stop covering telehealth.

For people too sick to leave home for months, including millions who have been disabled by Covid, this will mean losing all access to healthcare.

Please sign this petition urging your representatives to act

04.12.2024 04:35 — 👍 2151    🔁 999    💬 73    📌 55

Omg 😭😭😭

Zeynep has never been more right in her life: @patientled.bsky.social is an incredible investment.

26.11.2024 19:47 — 👍 21    🔁 3    💬 1    📌 0

I shared it with my new therapist who specializes in chronic illness, who had not heard of ME, and found the diagrams esp useful!

10.11.2023 20:39 — 👍 2    🔁 0    💬 1    📌 0
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Ed Yong is a tremendous, erudite writer who has made it his business to really understand #ME # MECFS

08.11.2023 09:11 — 👍 26    🔁 6    💬 1    📌 0

#NEISvoid... let's say I accept that I'm going to be working mostly from bed through the winter and have awhile before complete collapse to plan that.

What are some things I can do/buy that will make that easier & more pleasant?

Re-post if you pls ✨

25.10.2023 22:34 — 👍 46    🔁 28    💬 18    📌 2

What paper is NT?

14.10.2023 19:08 — 👍 0    🔁 0    💬 1    📌 0

Hate when that happens. Such a sweet couch companion!

11.10.2023 20:22 — 👍 1    🔁 0    💬 0    📌 0

Beautiful, also sorrowful.

11.10.2023 06:22 — 👍 1    🔁 0    💬 0    📌 0

Yay! Good to see you here.

10.10.2023 17:50 — 👍 2    🔁 0    💬 0    📌 0
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Sadly there's been no response from the CEO of the NHS Trust. "Karen is continuing to struggle and is still getting thinner and thinner." Her family ask the community to continue signing & sharing the petition. Update 👇.

#VerySevereME #EndMalnutritioninME #MECFS
www.change.org/p/save-karen...

10.10.2023 01:52 — 👍 23    🔁 13    💬 1    📌 1

I wish they all could be California Gulls

09.10.2023 06:34 — 👍 1    🔁 0    💬 0    📌 0

It’s in the top✨< 1%✨ most shared of all Mayo Clinic publications.

It’s the ✨most shared paper✨ amongst its contemporaries at Mayo Clinic Proceedings.

It’s in the ✨top 0.2%✨ most shared research products of all time.

It’s been live less than a week.

tinyurl.com/ywd3kmjs

09.10.2023 02:00 — 👍 169    🔁 39    💬 19    📌 8

Hells yeah. Can you hear me now? ;) Wonderful work, Jaime and team!

09.10.2023 03:19 — 👍 5    🔁 0    💬 0    📌 0

Holy cow! What an amazing number! You are fab:)

09.10.2023 00:22 — 👍 2    🔁 0    💬 0    📌 0

You just need Hermione’s hand bag

08.10.2023 21:29 — 👍 1    🔁 0    💬 0    📌 0

Good to see you here

08.10.2023 21:22 — 👍 2    🔁 0    💬 1    📌 0

Get to know your mutuals. List 10 things you're into! (My access to these is very limited now.)

Songwriting, playing instruments, singing
Concerts
Photography
Dogs
Organic gardening/landscapes
Hiking/camping
Environmental & social justice
Religious literacy
Art museums/street art
Slow food

07.10.2023 20:53 — 👍 1    🔁 0    💬 0    📌 0
A circular diagram listing PEM symptoms

A circular diagram listing PEM symptoms

A diagram of the human body listing symptoms of Me

A diagram of the human body listing symptoms of Me

We’re particularly proud of the diagrams featured in this paper, which include a review of common symptoms of #MECFS and of PEM, its pathognomonic symptom. (4/)

07.10.2023 16:07 — 👍 136    🔁 41    💬 9    📌 3

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