YouTube video by Post-Exertional Mayonnaise
Living with the fluctuations of ME and chronic illness
youtu.be/ITufM6CY7-M?...
05.05.2025 17:36 β π 0 π 0 π¬ 0 π 0
New episode of Post-Exertional Mayonnaise podcast out today. We talk about managing fluctuations while living with ME and Chronic illness. Why not join us?
05.05.2025 17:36 β π 3 π 0 π¬ 1 π 1
Hi there! Have been going through a difficult time π. Sorry, only just seen this! Hope you're surviving.
05.05.2025 17:35 β π 0 π 0 π¬ 0 π 0
π
30.04.2025 11:36 β π 0 π 0 π¬ 0 π 0
ππ
14.04.2025 17:15 β π 1 π 0 π¬ 0 π 0
So pleased for you!
08.04.2025 18:34 β π 1 π 0 π¬ 1 π 0
07.04.2025 20:36 β π 13 π 1 π¬ 1 π 0
Congratulations!
27.03.2025 08:51 β π 1 π 0 π¬ 1 π 0
Just because we canβt be on the streets doesnβt mean weβre invisible. Take part in online actions if you can. #ME #Disabled #BenefitCuts
25.03.2025 15:31 β π 12 π 6 π¬ 0 π 0
Good luck!
25.03.2025 16:01 β π 2 π 0 π¬ 2 π 0
When you write lyrics to a song about PEM and desperately want to find melodies and hooks but you have PEM so can't pick up the guitar.
25.03.2025 10:15 β π 7 π 0 π¬ 1 π 0
ππ
21.03.2025 12:09 β π 0 π 0 π¬ 1 π 0
Great shot
16.03.2025 13:11 β π 1 π 0 π¬ 0 π 0
More need to know how bad it is for so many. Lives up ended yet few beneficial treatments. Prevention is key. Improve air quality, N95 and stay home if unwell. More money for research needed
15.03.2025 02:40 β π 24 π 10 π¬ 0 π 0
Cheers for sharing!
14.03.2025 18:05 β π 0 π 0 π¬ 0 π 0
Hello!
14.03.2025 18:05 β π 1 π 0 π¬ 0 π 0
YouTube video by Post-Exertional Mayonnaise
ME, Chronic Illness and Toxic Religion & Spirituality
youtu.be/Z42direXkuM?...
14.03.2025 11:35 β π 3 π 0 π¬ 1 π 0
New episode of Post-Exertional Mayonnaise podcast out now! We talk about toxic religion and spirituality in relation to #MyalgicE and chronic illness. Join us on YouTube or wherever you get podcasts!
14.03.2025 11:34 β π 9 π 1 π¬ 1 π 0
π
28.02.2025 14:57 β π 0 π 0 π¬ 0 π 0
Nice one! This would work well in monochrome too.
28.02.2025 11:25 β π 1 π 0 π¬ 1 π 0
Last night my son went to watch the GB basketball match and danced on camera like his life depended on it to win a basketball signed by the team.
Wish I could have been there.
FU ME.
25.02.2025 17:29 β π 13 π 0 π¬ 0 π 0
So sorry
25.02.2025 10:33 β π 2 π 0 π¬ 1 π 0
Community campaigning together. Campaign update #14. Concerns about lack of funding for the Delivery Plan for ME. How to join #FundThePlan. Long Covid awareness day. New #ThereForME Substack post. A phone displays on its screen: Get involved! #FundThePlan.
New #ThereForME blog out today highlighting some of the community campaigning work going on for #ME and #LongCovid - from #FundThePlan to Long Covid Awareness Day.
Read more and learn how you can get involved π
www.thereforme.uk/p/campaign-u...
25.02.2025 09:30 β π 30 π 15 π¬ 0 π 3
YouTube video by Post-Exertional Mayonnaise
Navigating an online life whilst living with chronic illness
youtu.be/0QGVaGpT8Vc?...
19.02.2025 12:02 β π 5 π 0 π¬ 0 π 0
New ME/chronic illness podcast episode out now!
Join myself, @litsadremousis.bsky.social and @dovsz.bsky.social as we discuss life online with a chronic illness.
19.02.2025 12:02 β π 12 π 3 π¬ 1 π 1
Recently watched The Traitors New Zealand. It's like the traitors on the cheap. No helicopters or speedboats and the competitors have to drive themselves places. Still, not bad!
17.02.2025 16:17 β π 1 π 0 π¬ 1 π 0
Worth repeating: there is NOT an ounce of exaggeration in this. This illness is out of the charts. #GreatestMEdicalScandal
09.02.2025 08:19 β π 13 π 9 π¬ 0 π 0
@talmandaniel.bsky.social you might be interested in sharing this in your ME community?
08.02.2025 09:31 β π 3 π 1 π¬ 1 π 0
π
08.02.2025 10:30 β π 0 π 0 π¬ 0 π 0
Ha, love it.
07.02.2025 16:57 β π 1 π 0 π¬ 1 π 0
Billboard campaign/fundraiser here
https://www.notrecovereduk.org
ME/CFS archive. For education, not profit. Researched since 2011 by @continuitytweets.bsky.social & @ciaranj_farrell. Reposts not necessarily endorsements. No art, emoji etc.
https://rfh1955.blogspot.com/
#pwME patient 12 yrs & mum of 2 with ME, #LongCovid & PANS β’ ME & LC Advocate β’ Co-Founder LCAI β’ Women's Health; Endometriosis,PMDD β’ Sci-fi & movie lover
they/them π³οΈββ§οΈ queer, trans non-binary | disabled. neurodivergent. chronic illnesses. | artist. reader. writer. | cats: Charlie & Lola |
Ex-Bookseller 7yrs.
Mostly bedbound with Severe ME. #MECFS #MillionsMissing #pwME
Midwest political correspondent at @TheGuardian.com. Lots of Arizona journalism before this. Based in Minneapolis. Email: rachel.leingang@theguardian.com. Find me on Signal: rachelleingang.21.
6th grade ELA teacher and mindfulness coach. Sometimes podcaster and writer. Full time dad.
Scotch, vinyl, books and good food.
Support my work as a mindfulness coach and podcaster by buying me a coffee... https://buymeacoffee.com/michaelscottevans
#Exvangelical and host of The Dismantling Doctrine Podcast. Proud to #resist the fascism of the Trump administration. Warning about Christian nationalism and the threat it poses to American democracy. https://podcasts.apple.com/us/podcast/the-dismantling-d
Waitress turned Congresswoman for the Bronx and Queens. Grassroots elected, small-dollar supported. A better world is possible.
ocasiocortez.com
Music fan. UK science teacher in an FFP3 mask.
The right mask makes it easy to sing, perform, teach, or speak in public.
#N95 #FFP2 #FFP3 #YallMasking
He/him
He/him. Spoonie. Why couldnβt we be bonobos.
Protect trans kids.
Trans rights are human rights.
Cohost pempod (pempod.com) podcast about life with ME and long covid.
Severe M.E bedbound, socialist, artist, cat lover, free palestine, trans rights are human rights
She/her
n95βs + HEPAβs | Long COVID | MECFS
Our leadership & medical providers have failed us on c19
ANTI-profit-over-people
ME since 2021
#PwME #mecfs #longcovid #fibro #pots #severeME
I live on a lovely little island ( #OrcasIsland #PNW )
pfp: my black cat sleeping with forelegs stretched out
Christian, early retired, priest living with ME/CFS. Author of Sustaining Leadership (BRF). Spirituality. Inclusivity. Vulerability and Grace. Photography. Nature. Politics. Husband and father.
Visual Artist and Writer | Posts from the sick bed #ME #pwME #LongCOVID #ZeroCOVID #Crip #ChronicIllness #DisabilityJustice #ContemporaryArt #ConcretePoetry #PostdigitalPoetry #PoeticWeb
n=50 @remissionbiome.bsky.social
Poetry @diktgymnasiet.bsky.social
Senior Fellow in Public Health and Journalism, Center for Global Public Health at the University of California, Berkeley. I blog at Virology Blog (virology.ws). My academic position is largely funded by donations from patients. davetuller@berkeley.edu
#MECFS #POTS #Fibro patient/atteinte dβEM/POTS/Fibro- since 2008 π¨π¦
New caregiver of my 19yr old son with severe #LONGCOVID/ME #POTS π’π
Former veterinarian
Membre comitΓ© scientifique AQEM-
post infectious illness interest
Doctor in psychology, proud participant of #RemissionBiome first cohort, #EDSh #MCAS #ME/CFS. The pandemic is not over. #CleanAir #MaskUp #StandWithUkraine #StopGenocideInGaza
Artist,partner, mother, keen archaeologist and baker of cakes! Carer for daughter with M.E. for twelve years, housebound for ten of those years.
Based in East of England.
Sports Editor & Reporter for Tyne & Wear TV, Teesside TV & Leeds TV πΊ