Second, Franziska Sotzny showing data on molecular mimicry, with patients expressing antibodies against EBV that also recognize human proteins, particularly those expressed in the brain. 3/7
13.05.2025 14:32 β π 11 π 5 π¬ 1 π 0
YouTube video by Norges ME-forening - Rogaland Fylkeslag
Professor Γystein Fluge (MD) - Biological treatment strategies (English subtitles)
Hereβs a short presentation of the Norwegian pilot study on using the medicine Daratumumab on MEpatients. The results have lead to the decision to turn this into a large study with 66 patients.
The lecture is in Norwegian with English subtitles.
#pwme #MEcfs
12.06.2025 17:10 β π 31 π 14 π¬ 1 π 2
Interestingly, NIH funding also saved FOTUSβs life
26.02.2025 16:30 β π 0 π 0 π¬ 0 π 0
I wish it was this simple.
Vitamin D supplements do nothing helpful in my case
26.02.2025 12:59 β π 2 π 0 π¬ 0 π 0
Itβs interesting because antibodies cannot get inside of cells from the outside (i.e., from interstitial space, cell culture medium, or the circulation)
They can tho, bind to things in the circulation and they can bind to cell surface proteins
31.01.2025 16:15 β π 0 π 0 π¬ 1 π 0
@cuboidalhug.bsky.social
Another transporter, essential in maintenance of homeostasis (health)
25.01.2025 15:38 β π 3 π 0 π¬ 1 π 0
Important work published from Dr Hansonβs lab
03.12.2024 12:02 β π 1 π 0 π¬ 0 π 0
The absolute best post of the day, possibly of the entire month!
This public atlas came online to relate disease to protein levels found in the blood from thousands of people across many diseases, searchable by sex. 1/9
bsky.app/profile/chil...
23.11.2024 21:47 β π 109 π 44 π¬ 4 π 6
Disability Reporter @ Mother Jones β’ jmetraux@motherjones.com β’ She/her β’ Berkeley Journalism alum β’ Signal: @juliametraux.49
Author page: https://www.motherjones.com/author/julia-metraux/
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Iβm a lover of democracy and a lemon achar addict π. Reader of medical literature pertaining to chronic illness. π Fund Long Covid and ME/CFS research! π¬
Advocate for #MyalgicEncephalomyelitis using ME-ICC.
Contracted ME in 1989
Substack: https://colleensteckelmeiccinfo.substack.com/
Volunteer at www.MEadvocacy.org
Aspiring writer of paranormal fiction
Living with ME/CFS since 1983. An advocate since my diagnosis in 1988.
https://renesugar.substack.com/
A "director's cut" of @kateviolette.com 's medical journey: not just what treatments they're trying but why, and how they make medical decisions generally. Also various educational bits!
π ME/CFS, MCAS, lyme (plus bartonella, babesia), and mold toxicity
Skeletal muscle biologist, cancer cachexia researcher, father of 5, Liverpool fan.
Non nobis solum nati sumus. Husband. Dad x3. Upstreamist. Pracademic. Oregifornian. Storyteller. Itβll be ok in the end. If itβs not ok then it ainβt the end. Alphabet soup after my name: DPT PhD MPH OCS. https://www.linkedin.com/in/todd-davenport-2795ba10
Living with myalgic encephalomyelitis, Living a limited life, missing from many places. Aspiring to be well again. Occasionally bipedal. Twitter/X refugee. #mecfs
#CommunityEngagement Expert. Life sidelined by #MECFS #MCAS #POTS #Fibro #Gastroparesis +
#MECFS & #LongCovid #ResearchPartner & #Advocate β’ Chair of #MedicalEducation Group β’ #PwME #Disability
(Unceded) #Canada
https://linktr.ee/sabrinapoiriercanada
Myalgic Encephalomyelitis since 1983 Tapanui Flu epidemic | #ME | #PwME | #LongCovid ally | Covid cautious
Grandmother | Ex social scientist | Mostly housebound | On welfare
Website: tapanuiflu.blog
Aotearoa | New Zealand
ME since 2017 (Mild), 2019 Moderate , 2020 Severe
Long Covid since March 2020 (V Severe)
Funcap55 = 1.9 ( (Severe)
Medically retired palliative care RN, #pwME since 2001. #MECFS #POTS #MCAS #EDS
Enthusiastic gardener, baker, and candlestick maker.
ME/CFS San Diego, a 501c3 public charity, is working locally to raise awareness of Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS), to help educate healthcare workers and researchers, to increase access and support for ME/CFS patients.
2001 PVFS 'Recovered' to 90% by 2006. Sepsis 2013 resulted in M.E. / relapse. Brain/fitness not 'what it used to be'. Beloved Lisnakill Myles-Happy Hound himself π
In-depth analysis of research on myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS). Formerly known as ME/CFS Skeptic.
https://mecfsscience.org/
A global network of people empowering one another to fight for equity for myalgic encephalomyelitis. Home of the #MillionsMissing linktr.ee/meactnet
#pwME #MyalgicEncephalomyelitis #LongCovid #MECFS #ChronicIllness #DisabilityJustice
Mostly posting about Long Covid
Ella/she/her. I write, I read, I draw plants. Chronically ill en la Ciudad de MΓ©xico. #ME #MECFS #POTS #LongCovid
Author of Through the Shadowlands: A Science Writer's Odyssey into an Illness Science Doesn't Understand. I mostly write about complex chronic illness and math. Bylines in NYT, WashPost, Discover, Wired, Slate, Stat News, Science News, lots more. She/her.