Sabrina Poirier

Case report by @sunsopeningband.bsky.social et al. @workwellfoundation.bsky.social @wearlumia.bsky.social

This case report explored whether reduced blood flow to the head contributes to postexertional malaise (PEM) in myalgic encephalomyelitis (ME). Using a new in-ear device, researchers measured

Please check your spam or junk folders for an email from ICanCME if you haven’t received your link yet for part 2 of the conference registration. :)

Also, we had some missing emails and some that were rejected for being written incorrectly (missing the @ sign for example).

You’re right that it’s incredibly difficult to advocate when we’re just trying to survive.

Also, there are many wonderful advocates and researchers in this space who live with the illness. And they do a lot behind the scenes to fight for justice, access, care and education.

Thanks for sharing this Solve.

We appreciate it.

Veronica's poem will resonate with pts trapped in their ME cage, yearning to escape pain & to live a little once again. Pls circulate @kirsties.bsky.social @drjogreer.bsky.social @kristinwrites.bsky.social @cabruce.bsky.social @phoenixme.bsky.social @allyann.bsky.social @sabrinapoirier.bsky.social

Thanks for sharing this Solve.

We appreciate it.

2025 ME Conference - ICanCME

Thank you for sharing and supporting us Maria!

Here is the registration page link too, in case it’s helpful.

icancme.ca/research/202...

2025 ME Conference - ICanCME

Hi Sarah. Here you go.

icancme.ca/research/202...

I am very excited about the ICANCME #MyalgicEncephalomyelitis conference. (At a time when I am generally struggling to hold on to hope.) Gracias @sabrinapoirier.bsky.social & co ❤️. Stellar presenters,updates,overviews
@scishow.bsky.social @hankgreen.bsky.social @johngreensbluesky.bsky.social

Violet Affleck Addressed the United Nations, Calling for Better Protection From COVID-19 Ben Affleck and Jennifer Garner’s eldest daughter is becoming a thoughtful and passionate advocate for public health.

Worth reading and supporting this article on Violet Affleck’s advocacy for clean air and COVID mitigations.

We should always support our youth when they step up and want to engage in making the world a better place.

www.elle.com/culture/cele...

News Release 25-Sep-2025 While it may go unnoticed, loss of smell may linger for years after COVID-19 Peer-Reviewed Publication NYU Langone Health / NYU Grossman School of Medicine People who suspect that their sense of smell has been dulled after a bout of COVID-19 are likely correct, a new study using an objective, 40-odor test shows. Even those who do not notice any olfactory issues may be impaired. Led by the National Institutes of Health’s RECOVER initiative and supported by its Clinical Science Core at NYU Langone Health, a team of researchers from across the country explored a link between the coronavirus that causes COVID-19 and hyposmia — the reduced ability to smell. The results revealed that 80% of participants who reported a change in their smelling ability after having COVID-19 earned low scores on a clinical scent-detection test taken about two years later. Of this group, 23% were severely impaired or had entirely lost their sense of smell. Notably, 66% of infected participants who did not notice any smelling issues scored abnormally low on the evaluation as well, the authors say. “Our findings confirm that those with a history of COVID-19 may be especially at risk for a weakened sense of smell, an issue that is already underrecognized among the general population,” said study co-lead author Leora Horwitz, MD.

Interesting to read this press release on a new US study that used objective testing:

"While it may go unnoticed, loss of smell may linger for years after COVID-19"
www.eurekalert.org/news-release...

Paper:
dx.doi.org/10.1001/jama...

#LongCovid #hyposmia #Coronavirus #COVID #smell #anosmia

When people start rationing their healthcare bad things happen. Ask anyone who has to pay for insulin. Hell, people already literally die in this country because asthma inhalers still cost $50 with insurance because of corporate price manipulation.

Let me be clear. As someone who has been professionally involved with the biodefense / biosecurity sector for nearly 20 years, and has worked on biological risk analysis for Covid-19 since early 2020, reducing one's risk of being infected is not health anxiety. It's just smart.

Hi @npr.org! We worked late tonight putting together this handy pocket guide!

It doesn't address road design issues, but if we're going to educate road users, we should include drivers.

It's the size of a folded business card. Print it, fold it, put it in your wallet!

A divide in journalism right now that's worth watching is between reporters who understand how bad things are but are mindful of their reputation and not wanting to be perceived as too extreme or hyperbolic and reporters who feel things are so urgent they have to use urgent, clear language.

Congratulations. Looking forward to seeing you thrive.

Please consider an investigation into the neglect around Myalgic Encephalomyelitis. It’s a story that has only begun to be told and there are millions of readers globally who support great journalism on this topic.

Masked me in a N95

🧵on COVID

Pharmacist. when did you last have COVID?

Me: I haven’t had COVID.

Pharmacist (unmasked in a pharmacy full of sick people): Never??

Why get COVID while getting or giving a vaccine against COVID?

Please consider wearing a N95 in high risk situations.

#covidisairborne
#StaySafe

@sharonrmecfs.bsky.social @coolforcats9.bsky.social @carolclouds.bsky.social @ceknapp.bsky.social @jitzamna.bsky.social @popns.bsky.social @zanyzue.bsky.social @bastsbest.bsky.social @newfymainlander.bsky.social @writenrun.bsky.social @littleann4ever.bsky.social @sabrinapoirier.bsky.social

@newfymainlander.bsky.social @writenrun.bsky.social @littleann4ever.bsky.social @sabrinapoirier.bsky.social @hershelman.bsky.social @hillygirl1979.bsky.social @crankycartoons.bsky.social @lianapaiva.bsky.social @kattifur.bsky.social @j-sonearmyonce.bsky.social @nicknobbe.bsky.social

These are the victim impact statements submitted at Ghislaine Maxwell's sentencing.

It's the official DOJ document.

“They had been abusing young females for many, many, many years. This is the longest-running sex trafficking scheme in history that I've ever come across."

I hear you. It’s so hard to witness (and experience) these horrors.

Would raising money help?

How can we help, Sarah?

Isla's mother has been arrested under suspicion of causing her death from ME last year (heart failure). There was no inquest. Isla's younger sister (15), who also has ME, has been removed from the only people who understand how the disease must be managed. Imagine her fear.
#MEKills #HumanRights

Completed it.

She’s awesome. Looking forward to having her as my candidate.

There's going to be an important by-election in Halifax, and our candidate, Shannon Miedema, is ready to deliver for her community and bring their voices to Parliament.

What happened inside the WH after the Oval shouting match:

Trump huddled with his key advisers immediately afterward inside the Oval.

According to a White House official, Trump consulted Vance, Rubio, Bessent, etc. That was when Trump decided that Zelensky was "not in a place to negotiate."

Justin Trudeau
Prime Minister of Canada 👏

I won't be purchasing anything tomorrow unless it's an emergency. Yes, I'm aware that won't fix the world, but I see this as practice for strikes and longer boycotting. Let's go 👍

“Be brave” @janefonda.com