This is typical Iceland: My neighbor has been out for an hour in his T-shirt MOWING THE LAWN. It's October. In Iceland. The grass stopped growing a while back man. Leaves are falling off trees and it's cold outside. We might have frost soon, but he's out mowing the lawn like we're in Florida. π
01.10.2023 17:34 β π 2 π 0 π¬ 0 π 0
I created this form to help distribute codes so the chronic illness community can congregate on Blue Sky. Please fill it out if you have codes to donate, and spread the link far and wide. forms.gle/LGVPYz8i3U8e... Let's protect our community from platform collapse!
30.09.2023 01:07 β π 116 π 63 π¬ 7 π 7
Do I think long covid treatment trials should be fast tracked with heaps of funding? Yes, I do. Because:
1) the diseases covid causes have been neglected so long that itβs overdue, &
2) the sheer number affected is only increasing & there are zero effective treatments. Butβ¦
01.10.2023 10:05 β π 30 π 8 π¬ 1 π 1
This looks like a dream! Having a dryer (and a home for it) is one of my biggest goals in life. Congratulations π
22.09.2023 23:01 β π 1 π 0 π¬ 0 π 0
Hi all! Like everyone I am here because of Elon's self destruction tendencies. I hope to be a part of the #MECFS community here so will mostly post about that. My parents are sheep farmers though so you might encounter occasional sheep or an interesting bit from Icelandic folklore π
22.09.2023 17:26 β π 15 π 1 π¬ 2 π 0
PΓ€dagogin, Behinderten- u. Altenpflege, Herzensmensch, vieles war einmal #MECFS nach #PostCovid #CovidIsNotOver #LearnAboutMe
Founder - Renegade Research
#MECFS #LongCovid
Sustainability science studies on hold because of POTS + Long covid / suspected ME. Previously interesting, now mostly into resting.
Here to connect with other sick people and for science stuff.
Looking behind the obvious || Tingting is my nickname || Pro science || #MECFS #POTS #MCAS || Former management consultant & university guest lecturer || Posts in English & German || Jazz Funk lover
I love museums and history. β
bed-tethered disabled! AuDHD, POTS, MCAS, and ME/CFS. β
π§βπ¦½β
I miss traveling and being in nature and sewing.
location: Jacksonville, Florida
(agender ace ey/em/eir)
This account will prob be about biomed researchβcomplex chronic illnesses and Covidβw/some material on disability justice and organizing.
ME β05, LC β23, many of their friends along the way. Very severe (FUNCAP 0.9). No unsolicited advice please!
I'm @jmatwood on Twitter. Featuring: Immature/informative/TMI posts about: birds, plants, bees, disability, chronic illness, silliness, my own health, etc π¦π±πβΏπ·πͺΏπ₯
#pwME
NO TERFS, NO UNSOLICITED ADVICE
User pic is from Effin Birds (used w/permission)
Chronically ill. Medical research, better care for underresearched & rare conditions, disability rights & ethics. @OdyO11 at π¦
Here for the science and because of the still ongoing pandemic. She/her.
Demonstrates under #CallForPublicHealthAction.
#MECFS #LongCOVID #MaskUp #DoNoHarm
Trying to leave finance for music but escape plan thwarted by Long-Covid
irgendwas mit Medizin/Recht/Aufsicht - PrΓ€vention und Lufthygiene jetzt - Dog-Lover Cat-Lover Long Covid/ ME/CFS dekonditioniert, neugierig auf Neuigkeiten - Medbubble
Interested in goings on. Small life lived in a small house. Past best before date. Lefty. ME/POTS #Anti-RecoveryActivist
for when the birdapp goes down for good
(Severe ME)
Here to talk about #MEcfs, #MEspine, #hypermobility, #POTS, #hEDS, #LongCovid, #ChronicIllness and #disability ...but I also have opinions on other things. You have been warned :P
I dress up in fancy dress for the charity Invest in ME Research to raise funds & awareness of Myalgic Encephalomyelitis. In a previous life I worked in film. Iβm an advocate for good science, treatments & better healthcare for #pwME.
Body malfunctioning since 1998 #MECFS #PoTS #MCAS #hypermobility & other delights.
I'm a #LongCovid #LongCovidKids and #Pans #Pandas ally. Here to make connections old & new.
#CovidIsNotOver #CleanAirForAll #MasksInHealthcare #GreatestMEdicalScandal
π΅ Resist
Disabled, Composer, visual artist, dad, husband, conlanger, linguistics nerd, etc
Posts in English, Spanish, and Esperanto
a goddamn delight since 1977
#MECFS since 2012
#pwME #POTS #Fibro
#MillionsMissing
#ACAB
Alabama, US
He/him
My body has given up but I haven't...
ME/CFS Patient Leader & Complex-Chronic Disease Advocate (on hiatus). Co-founder #MEAction Maryland. Bed-tethered disabled by severe ME & LC & comorbids.
Orioles/Ravens/Caps fan. She/her