Julie Houston

Dark blue background with image of DNA helix. At the top of the DecodeME ‘the results’ logo. Two spotlights shine on a speech bubble that says ‘Initial DNA results’. To the right of this is an image of a research paper. At the bottom of the graphic it says ‘Wednesday 7pm BST’.

The initial DNA results from DecodeME are coming this week! We will release them on our website on Wednesday 6th August at 7pm (approx).

We're letting you know the timing in advance so you can pace beforehand.

Thank you to our participants & supporters.

We are writing to let you know that the initial DNA results from the DecodeME study will be available in the next few days. We plan to send you an email with our findings on Wednesday 6th August around 7pm. We will also be announcing the results on our website at this time. We're letting you know the timing in advance so you can pace yourself if needed. Thank you for your continued support and we look forward to sharing more very soon. Warmest wishes, The DecodeME Team

Big news #pwME! Prepare yourselves! The initial DNA results from the @DecodeMEstudy will be available in the next few days. Emails will be sent out around 7pm on Wednesday 6th August & results will be published on their website at the same time. Fingers crossed for some momentous results! 🤞🙏

This is Isla at age 8.

She died at age 18 with severe ME/CFS.

Isla’s mum, who took care of Isla and tried to protect her from abusive medical professionals has been arrested. The state and medical system are trying to blame her for a death resulting from neglect and harmful medical practice.

Screenshot of previous post saying- URGENT call for legal assistance #PwME

I have deleted my previous post at the request of @swastrosarah.bsky.social as the family thankfully now have legal assistance. #PwME #MEKills

Glad to hear it. Will do.

@meactionuk.bsky.social @meactnet.bsky.social please boost on other platforms. We are scrambling for lawyers to get the sister out as the top priority. I am speaking with national print media this morning.

Omg Sarah! Can’t believe what I am reading. The horror of it all.

Award-winning author and journalist, @georgemonbiot.bsky.social was today joined by 8 fellow Lift The Ban sign-holders and around 200 members of the public in support of the de-proscription of direct action group Palestine Action.

Join us on August 9th:
wedonotcomply.org

We believe clean air should be accessible to all, and we’re so excited to support Air Library Scotland’s initiative to rent out air purifiers for free across Edinburgh.

If you’re in Edinburgh, you can try one out and breathe cleaner air for yourself.

Check it out!
@airlibraryscotland.bsky.social

Text: Request form now open! We’re now ready to accept requests from individuals and organisations who want to borrow air purifiers in the Edinburgh area Please read this post before putting in a request! Behind the headline, a dark blue hexagon with yellow shadow, with light blue extending out from it to the right. All images have the Air Library Scotland blue pinwheel in a yellow circle in the bottom left corner.

Second image. Text: How it works 1: Follow the link in our bio to the cryptpad request form 2: Fill out the form: When you want the purifier, for how long, what kind of space/event you’re wanting it for - we can help you find the right model for your use case if you’re unsure 3: We’ll get back to you within 7 days to let you know if we have purifiers available for your chosen dates, and discuss the details 4: Get your air purifier & breathe safer air! We can also help with creating a clean air policy or providing other precautions.

Third image. Text: Who can borrow? Any individual or organisation can borrow an air purifier! You could use it for.... organising meetings, social clubs, gigs, readings & exhibitions, medical appointments, and more! NB: our purifiers have limited portability. We might be able to accommodate longer-term requests but chances are higher the further in advance you contact us about them. Loans are free by default but we accept donations to keep up with maintenance costs.

We're excited to announce we're now ready to take booking requests for air purifiers in and around Edinburgh! Anyone can borrow & loans are free.
Many thanks to @smartairuk.bsky.social for donating a SA600 and a Blast Mini, enabling this initiative!

Request form: cryptpad.fr/form/#/2/for...

"The signatories, including the former supreme court justices Lord Sumption and Lord Wilson, court of appeal judges and more than 70 KCs, say that war crimes, crimes against humanity and serious violations of international humanitarian law are being committed in Palestine."

@bmj.com's dangerous & inconsistent approach to #ME + long Covid resembles psych propaganda more than balanced reporting (notwithstanding the "Opinion" header), especially in relation to Professor Paul Garner's long covid "journey", as described in my 2021 post valerieeliotsmith.com/2021/02/01/p...

I've submitted a rapid response to this BMJ Opinion piece - speaking from my dual experience as both researcher and 'recovered ME/CFS patient' (not a term I'd choose to employ).

Thank you.🙏

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Square text box with blue background. Text in white saying Nothing new to say this #MEAwarenessDay. My brain’s wrecked, my body’s broken, and after 27 years, nothing has changed: no progress, no treatments, no cure. It's #StillTheSaME and the fury burns. Sending love & solidarity to you all. #LeftToRot

Nothing new to say this #MEAwarenessDay. My brain’s wrecked, my body’s broken, and after 27 years, nothing has changed: no progress, no treatments, no cure. It's #StillTheSaME and the fury burns. Sending love & solidarity to you all. #LeftToRot

The brilliant PD Avengers are calling for the Parkinson’s community to sign up to their 2025 World #Parkinson’s Day campaign!

⚡ #SparkTheNight will see landmarks across the globe lit up in blue in solidarity for World Parkinson’s Day.

👉 Find out how you can get involved: https://buff.ly/4hwNvaF

Our next online support meeting for #LongCovid patients (& parents) is next MONDAY 10TH FEBRUARY AT 7PM.

No need to register.

Just click on the zoom link below

Join Zoom Meeting
us06web.zoom.us/j/86731632565?…

#Ireland
#LongCovidKids

Meeting ID: 867 3163 2565
Passcode: 931955

Help Very Severe ME patient Line in Denmark pay for a lawyer to defend her freedom Last week the Severe ME Advocacy Group heard from Line in Denmark that the psychiatrists had dismissed our letter as being from "uncredible sources".  Line added "They are using it against me, further...

Petition update! "Last week the Severe ME Advocacy Group heard from Line in Denmark that the psychiatrists had dismissed our letter as being from "uncredible sources"." @exceedhergrasp1.bsky.social & others have now made submissions. Please keep signing & sharing.
www.change.org/p/prevent-fo...

Great to see @batemanhornecenter.bsky.social here! #PwME #pwLC

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go.bsky.app/J1e2nzR

go.bsky.app/42cuLif

go.bsky.app/FbLo7qc

go.bsky.app/KnwWePQ

Basically lists of people in the community you may want to follow. Helps to find those you may have followed on Twitter.

go.bsky.app/Ba6FATY

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Britain on the Verge of Criminalizing “Malingering” by ME/CFS Patients and Other Desperately Ill People Scottish lawyer David J. Black attacks the “ruthless war of attrition” on benefits for Britain’s “poor-sick” and its U.S.-based insurance company instigators

open.substack.com/pub/immuneil...

Black condemned the physicians, insurers, politicians, and media that were indoctrinated in the “biopsychosocial (BPS) doctrine” of ME/CFS, which portrays patients as delusional..
Calling this doctrine “a fraud” used in “gaslighting”..
"cost effective"..