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Long Covid Journey

@longcovidjourney.bsky.social

Sharing insights, resources, and experiences on Long COVID recovery and research. Visit www.longcovidjourney.com for more. #cleanair, #covid #LongCovid #ChronicIllness #HealthResearch #PatientAdvocacy

124 Followers  |  360 Following  |  149 Posts  |  Joined: 10.11.2024  |  1.6962

Latest posts by longcovidjourney.bsky.social on Bluesky

Long COVID isn’t just fatigue.

Studies show up to 65% of patients tested have hidden hearing loss & many develop pituitary or thyroid dysfunction months later.

That means hormones, balance, & even hearing can be disrupted long after infection.

#LongCovid

28.09.2025 19:41 β€” πŸ‘ 5    πŸ” 3    πŸ’¬ 0    πŸ“Œ 0

1 in 10 people develop #LongCovid.
In the U.S., over 3 in 4 adults live with at least one chronic condition.

Chronic illness is not rare, it’s the reality for millions. Their voices matter. πŸ’œ

πŸ”— longcovidjourney.com/2025/09/16/g...

#ChronicIllness #InvisibleDisabilities #autoimmune #health

22.09.2025 16:18 β€” πŸ‘ 4    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0

New data shows that people with 3+ COVID-19 infections are 3–10Γ— more likely to develop Long Covid than those with a single infection even if vaccinated. Reinfections = risk. We can’t treat Covid like once & done.

More on long COVID on longcovidjourney.com

#LongCovid #PublicHealth

21.09.2025 12:42 β€” πŸ‘ 4    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0

With LongCOVID, so many of us feel old health stuff getting worse memory, joints, allergies, everything flaring. It’s tough, but you’re not alone ❀️

14.09.2025 12:55 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0

New data reveals what people really Google about #LongCOVID and it’s not what you think.

From fatigue to brain fog, search trends expose hidden symptoms & patient struggles.

πŸ‘‰ Dive into the insights: longcovidjourney.com/2025/09/10/w...

#COVID19 #LongCovidAwareness #HealthData

14.09.2025 12:02 β€” πŸ‘ 4    πŸ” 0    πŸ’¬ 1    πŸ“Œ 0

COVID is still here. Vulnerable people (…actually, all of us) rely on caution. Mask up in crowded spaces, test if needed, and stay home if sick. #COVID19 #PublicHealth

By longcovodjourney.com

11.09.2025 19:14 β€” πŸ‘ 2    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
Preview
Long Covid Journey A guide to Understanding and Managing Long Covid

#LongCOVID why it matters ?

⚠️ Shrinks the workforce & productivity
⚠️ Strains healthcare systems
⚠️ Fuels mental health crises
⚠️ Costs billions to the economy

Behind every statistic is a person fighting to survive.

πŸ‘‰ longcovidjourney.com

#InvisibleIllness #PostCOVID

10.09.2025 19:19 β€” πŸ‘ 1    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0

1 in 10 people after COVID develop #LongCOVID.
That’s not rare.That’s a mass disabling event.

Yet support, treatment, and recognition remain minimal.

How many more lives need to be disrupted before we act?

09.09.2025 20:26 β€” πŸ‘ 10    πŸ” 6    πŸ’¬ 0    πŸ“Œ 0

🧬 New research reveals that Long COVID may involve autoimmunity, T cell dysregulation, and persistent viral fragments, leading to chronic inflammation and neurological symptoms. 🧠

Explore the latest findings on #LongCovid on
longcovidjourney.com

#Immunology #Autoimmunity #Neuroinflammation

07.09.2025 18:04 β€” πŸ‘ 2    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
Preview
How Fascia Affects Long COVID Symptoms Long COVID is characterized by persistent symptoms affecting millions, potentially linked to fascia, a connective tissue network. Inflammation, microvascular damage, and nervous system dysregulatio…

Recent observations suggest that fascia, the connective tissue network, may influence persistent Long COVID symptoms including fatigue, myalgia, and cognitive difficulties. Further study is needed to clarify its role.

longcovidjourney.com/2025/08/06/h...

#LongCOVID #Fascia #MedicalResearch

06.09.2025 19:40 β€” πŸ‘ 2    πŸ” 1    πŸ’¬ 0    πŸ“Œ 0
Preview
Navigating Life’s Challenges Post-COVID Life is divided between those who have moved on from COVID and those with long COVID, facing daily struggles. Small achievements feel monumental, while society neglects the ongoing crisis. Advocati…

Living with #LongCOVID means facing daily challenges but also discovering new ways to adapt and survive.

A thoughtful read:
longcovidjourney.com/2025/08/31/n...

#Resilience #covid

03.09.2025 18:34 β€” πŸ‘ 1    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0

Muscle weakness can persist long after COVID.

If your lifts, runs, or sprints aren’t hitting pre-COVID levels, you’re not alone.

Your muscles are suffering πŸ’ͺ

Read the science πŸ‘‰ longcovidjourney.com/2025/08/20/u... #LongCovid #sport #athlete

31.08.2025 18:13 β€” πŸ‘ 2    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0

During COVID, ~40% of people developed β€˜coronasomnia.’

Studies linked poor sleep to higher cortisol, more inflammation & weaker immune defense.

Good Sleep is a frontline in pandemics and recovery.

#Sleep #COVID19

30.08.2025 21:23 β€” πŸ‘ 1    πŸ” 0    πŸ’¬ 1    πŸ“Œ 1

Has COVID changed your smile or the way you see the world?

From dry mouth to eye discomfort, some are noticing surprising shifts. Are you one of them?

Read more πŸ‘‡
longcovidjourney.com/2025/08/26/o...

#LongCovid #HealthChanges #OralHealth #EyeHealth #COVID19

29.08.2025 21:35 β€” πŸ‘ 4    πŸ” 1    πŸ’¬ 1    πŸ“Œ 0

Me: β€œPlease mask, COVID is on the rise.”
Him: β€œYou always say that, tell me when it’s not.”
…Still waiting. πŸ€·β€β™€οΈ #COVIDIsNotOver #LongCovid

22.08.2025 22:29 β€” πŸ‘ 6    πŸ” 1    πŸ’¬ 1    πŸ“Œ 0

Pacing with #LongCovid isn’t just β€˜taking it easy.’ It’s a constant balancing act enough to live, but not too much to crash. Some days it feels impossible πŸ€·β€β™€οΈ In the end, it’s about surviving. πŸ’œ

22.08.2025 17:17 β€” πŸ‘ 2    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0

Have you discovered a deficiency since COVID?

Long COVID & nutrients: Evidence is mixed. Low vitamin D linked to higher risk in one study, no link in another. Iron/B12/D deficits can occur test & treat, don’t megadose.

#LongCOVID #EvidenceBased

20.08.2025 19:33 β€” πŸ‘ 1    πŸ” 1    πŸ’¬ 0    πŸ“Œ 0
Preview
Long Covid Journey A guide to Understanding and Managing Long Covid

Long COVID: Not a ghost story. MRI studies reveal that up to 48% of sufferers have memory deficits and over 27% struggle with attention, speed, or recall even compared to recovered COVID patients. This is real brain change, not just fatigue.

More on longcovidjourney.com

#LongCOVID #brain

19.08.2025 20:14 β€” πŸ‘ 2    πŸ” 2    πŸ’¬ 0    πŸ“Œ 0

Long COVID isn’t β€œjust in your head.”

Studies show mitochondrial damage = less energy, more fatigue.

Up to 50% of long-haulers meet ME/CFS criteria.

65M+ people affected worldwide.

πŸ‘‰ Learn more: longcovidjourney.com/2025/08/17/l...

#LongCOVID #Fatigue #Mitochondria

18.08.2025 17:52 β€” πŸ‘ 7    πŸ” 2    πŸ’¬ 0    πŸ“Œ 0

~6 % of COVID cases β†’ Long COVID.

Only ~50 % recover by 12 weeks;

just 7–10 % fully bounce back by 2 years.

Reinfections pile on risks. Avoid catching COVID.

More info on. Longcovidjourney.com

#LongCOVID #COVID #LongCOVIDRecovery #ChronicIllness #LongCOVIDAwareness

17.08.2025 16:54 β€” πŸ‘ 3    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0

Largest genetic study yet
Researchers compared DNA from over 15,500 individuals with ME/CFS to more than 259,000 control samples, unearthing consistent differences that implicate immune and neurological pathways.This isn’t just fatigue, it’s a biological reality

longcovidjourney.com/2025/08/14/d...

15.08.2025 18:39 β€” πŸ‘ 1    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0

Not just about COVID.
You’re in a packed, sweaty room in the hospital. Everyone’s coughing and Ill. No windows. No fresh air.
Why wouldn’t you wear a mask?
It’s like bringing an umbrella when it’s raining 🌧️ not politics, just common sense πŸ™„

#health #hospital #why #maskup #cleanaur

15.08.2025 08:00 β€” πŸ‘ 19    πŸ” 4    πŸ’¬ 1    πŸ“Œ 1
Cartoon-style illustration showing two people against a warm beige background. On the left, a woman with brown hair and a sad expression rests one hand on her chest. On the right, a smiling man with short brown hair places a hand on her shoulder in a comforting gesture. Above them, large text reads β€œUNDERSTANDING LIFE WITH LONG COVID,” and a speech bubble from the man says β€œEMPATHY.”

Cartoon-style illustration showing two people against a warm beige background. On the left, a woman with brown hair and a sad expression rests one hand on her chest. On the right, a smiling man with short brown hair places a hand on her shoulder in a comforting gesture. Above them, large text reads β€œUNDERSTANDING LIFE WITH LONG COVID,” and a speech bubble from the man says β€œEMPATHY.”

Some days, everything is a negotiation with your energy, your focus, your equilibrium. If you’re navigating Long COVID or supporting someone who is, you’re not alone. To read with compassion longcovidjourney.com/2025/08/12/u...
#health #compassion #longcovid #me

13.08.2025 11:30 β€” πŸ‘ 2    πŸ” 1    πŸ’¬ 0    πŸ“Œ 0

Electrolytes, ice packs, salt… and hope.
Heat intolerance hits up to 60% of people with long COVID, I’m just one of the sweaty statistics. πŸ₯€πŸ§ŠπŸŒ€

12.08.2025 18:54 β€” πŸ‘ 3    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0

Months after COVID infection, risk of heart attack, arrhythmia & blood clots can remain 2–3Γ— higher even in mild cases. Know the signs. Protect your heart. ❀️ longcovidjourney.com
#LongCOVID #CardioHealth #COVID19 #HeartHealth #PublicHealth

10.08.2025 16:37 β€” πŸ‘ 4    πŸ” 2    πŸ’¬ 0    πŸ“Œ 0

Up to 10% of people experience symptoms beyond 12 weeks after COVID,including fatigue, cognitive impairment, and respiratory issues.
Emerging research links these to immune dysregulation, microvascular changes, and autonomic dysfunction.

More information: longcovidjourney.com

#LongCovid #research

09.08.2025 15:04 β€” πŸ‘ 3    πŸ” 1    πŸ’¬ 0    πŸ“Œ 0

🫁 In a 2023 UK study, 11% of non-hospitalised Long Covid patients had lung abnormalities on xenon MRI 14+ months post-infection.

🧠 Other studies show heart & brain changes too long after β€œmild” Covid.

πŸ”— More on : longcovidjourney.com

#LongCovid #PostViral #MedTwitter #lungs

04.08.2025 19:02 β€” πŸ‘ 2    πŸ” 1    πŸ’¬ 0    πŸ“Œ 0

Long Covid + MCAS gut edition:
Eat something β†’ instant regret.
Bloating, pain, histamine chaos, eating feels like a personal attack.
It’s not being β€œsensitive.” It’s immune system drama, 24/7.
Anyone else on the low-histamine struggle bus?

#LongCovid #MCAS #SpoonieLife #HistamineHell

01.08.2025 06:48 β€” πŸ‘ 7    πŸ” 2    πŸ’¬ 0    πŸ“Œ 0
Cartoon-style illustration of a smiling woman in a green shirt giving a thumbs-up while sitting at a kitchen counter. Surrounding her are helpful kitchen tools such as a kettle, slow cooker, mini food processor, cutting board, vegetable peeler, and various utensils. In the background is a cozy kitchen with blue tile walls and a window with sunlight and a potted plant. A large orange circle displays the text: β€œ10 Must-Have Tools for Long Covid and POTS.

Cartoon-style illustration of a smiling woman in a green shirt giving a thumbs-up while sitting at a kitchen counter. Surrounding her are helpful kitchen tools such as a kettle, slow cooker, mini food processor, cutting board, vegetable peeler, and various utensils. In the background is a cozy kitchen with blue tile walls and a window with sunlight and a potted plant. A large orange circle displays the text: β€œ10 Must-Have Tools for Long Covid and POTS.

Fatigue friendly cooking is real.
If you’re living with Long Covid or POTS, your kitchen setup can make or break your energy levels.

Here are 10 must-have tools to make food prep easier & flare safe:
πŸ‘‰ longcovidjourney.com/2025/07/27/1...

#LongCovid #POTS #MECFS #DisabilityHack #EnergySavingTips

30.07.2025 14:10 β€” πŸ‘ 3    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0

Tinnitus after #LongCovid isn’t β€œjust in your head” it may stem from neuroinflammation & autonomic dysfunction.

Over 1 in 10 people with Long Covid report persistent ear ringing.

It’s time to take these symptoms seriously.

#LongCovid #Tinnitus #NeuroCovid

27.07.2025 20:56 β€” πŸ‘ 7    πŸ” 1    πŸ’¬ 1    πŸ“Œ 0

@longcovidjourney is following 20 prominent accounts