Paul Garner

For @unherd.com, I plumb the depths of the tangled and tortured case of Gordon Guyatt, who threw his team’s research funder under the bus and contradicted his own research findings to appease an activist mob.

t.co/ftZh0p9s0x

This will be a great lecture from a brilliant and impactful epidemiologist

"Chronicity rhetoric" underpins the UK NICE ME/CFS guidance. The word "recover" appears ONCE and then implies relapse. @NICEComms contributes to a discourse that creates barriers to recovery. Shame on you.

Recovered #LongCovid #MECFS patients state 11 June in BMJ that the message, "no hope without a biomedical cure", is HARMFUL. NICE-you need to wake up to the damage you have done www.bmj.com/content/389/...

NICE Guidance UK misleads. People with severe ME will not get better with this advice, and they are denied cognitive approaches that can help recovery

Myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) affects around 250 000 people in the UK.

Reframing beliefs about illness, along with specialist rehabilitation, can help recovery in people with severe ME/CFS, @paulgarnerwoof.bsky.social and colleagues
www.bmj.com/content/389/...

This is a terrific seminar, linking the science of the stress response to the post-COVID condition and ME/CFS. "We need to "We need to listen to communities of people who have recovered from illness"-and brain-body retraining programmes really help people recover.

‘This explanation of Long Covid helped me overcome my struggle with the illness’ Professor Paul Garner, a specialist in infectious diseases, was 'beaten up' by Long Covid for around 10 months, then he was given an explanation that transformed his life

Excellent journalist. I am not sure the ME/CFS association comment is correct-they have not kept up with the science. In my view, this means the association is impairing people’s access to approaches that will help them recover. www.manchestereveningnews.co.uk/news/uk-news...

so two independent, published critiques of Appelman point out this study is flawed and the patients were deconditioned. What is important is that Appelman inferences are also incorrect, as both these criticisms point out, from different disciplinary angles

A second group of commentators, who know muscle physiology well, point out these patients were deconditioned, myalgia after exercise is non-specific, and exercise will help recovery in these patients rdcu.be/eaOtl

study in Nature claimed exercise damaged people with post-exertional malaise from #LongCovid. A second critique, from specialists in muscle, say pain after exercise is not specific to covid-19, and exercise IS helpful in muscle recovery. rdcu.be/eaOtl

A study in Nature claimed exercise damaged people with post-exertional malaise from #LongCovid. We found their evidence does NOT support this: patients were deconditioned, the exercise was extreme, and there were no proper controls #MEcfs
www.nature.com/articles/s41...

Pace trial is disbelieved by people that don't like the results. It is a well done study

The long Covid ‘treatments’ to avoid People with long Covid are resorting to a range of unproven remedies, from supplements to stem cells, but simple rehabilitation techniques are proving the best medicine

Great piece in the "I" about #LongCovid treatment by @ClareWilsonMed : sensible, basic rehabilitation with cognitive approaches and incremental activity, and steer away from quack medicine that are "high on promise and low on evidence".
inews.co.uk/news/health/...

Health researchers believe: Chronic fatigue disorders are not incurable. OPINION: A new study shows that cognitive behavioural therapy (CBT) and other rehabilitation measures are effective for so-called 'Long Covid.' At the same time, studies have shown that neither medica...

Improvement and recovery are possible for individuals living with chronic fatigue conditions.
This comes from extensive research, clinical experience, and the perspectives of patients who have experienced positive changes and full recovery.
www.sciencenorway.no/chronic-fati....

Mind-Body ReprogrammeringsTerapi (MBRT): ny behandling for long covid Modellen er utviklet for pasienter med betydelig redusert funksjonsnivå som følge av long covid.

Excellent article on the theoretical underpinning of neuroplastic programmes to help people recover from #longcovid, and the structured active approach to reframe to make activity safe
psykologtidsskriftet.no/fagessay/202...

Plasmapheresis to remove amyloid fibrin(ogen) particles for treating the post‐COVID‐19 condition - Fox, T - 2023 | Cochrane Library Select your preferred language for Cochrane Reviews and other content. Sections without translation will be in English.

"insisting that symptoms in these [post-viral fatigue] conditions are wholly biomedical - unrelated to evolved biological stress responses...and the promotion of unfounded theories, such as “microclots” causing chronic fatigue conditions, in itself could be harmful".
tinyurl.com/yvyh9e24