Fibromyalgia - What I Know Is Real

I'm with you on that. People who don't have it have no clue how debilitating and challenging fibromyalgia is.

Being Positive With Fibromyalgia...Ya, Right! | The - So Is Fibromyalgia Real? What I Know Is Real - Blog 'Try to be positive' is both RIDICULOUS and GREAT advice, at least that’s what I’ve come to think after living with fibromyalgia for fifteen years now.

“Try to be positive...is both RIDICULOUS advice and GREAT advice, all at once." #Fibromyalgia #WhatIKnowIsReal

It’s An INCREDIBLY STRONG Mind Over EXCRUCIATINGLY DIFFICULT (REAL!) Matter!...Mind-set and Fibromyalgia V | The - So Is Fibromyalgia Real? What I Know Is Real - Blog So you have fibromyalgia and maybe you’ve been told, “It's mind over‎ matter". Well, I can’t deny that the power of my mind and my ability (and sheer will!) to think in certain ways and use that think...

"Like an athlete running a marathon, their body worn out and hurting, their energy expending (not unlike #fibromyalgia…every day!), it's their mental game that keeps them going…mind over matter…to the finish." #WhatIKnowIsReal

Fibromyalgia and Diet...Taking Every Inch I Can Get! | The - So Is Fibromyalgia Real? What I Know Is Real - Blog Fibromyalgia and diet...after my trial and error living with fibromyalgia for over fifteen years now, a healthy diet is a no-brainer for me!

#Fibromyalgia and #Diet …“If there’s a chance in hell it can help AND it’s a thing that’s healthy (even advised!) to do anyway...I’m doing it!” #WhatIKnowIsReal

Fibromyalgia and Coronavirus…We Were Already Warriors! | The - So Is Fibromyalgia Real? What I Know Is Real - Blog Fibromyalgia and the coronavirus pandemic…I can't help but keep seeing some similarities. And maybe our fibromyalgia doesn’t make us weaker as we face this, as we initially fear when something like th...

#Fibromyalgia & #Covid "And maybe our fibromyalgia doesn’t make us weaker as we face this, as we initially fear when something like this comes along…maybe it makes us stronger. Yes. Stronger." #WhatIKnowIsReal

Oh, those are great! Thanks! 😂🤣😂

“THE SLEEP SOLUTION”…Fibromyalgia and Sleep – Book Share III | The - So Is Fibromyalgia Real? What I Know Is Real - Blog “THE SLEEP SOLUTION”…Fibromyalgia and Sleep – Book Share III So this is another book sharing post, something I’m doing from time to time sprinkled in amongst my regular posts that are commentaries on my insights about fibromyalgia. I’m only going to write one w...

"So I’ve been getting my life back these last five years…my full life…particularly my energy…my time…my feeling of well being. Ever so slowly, but surely, it’s all coming back.
And the major thing I changed?
#Sleep.
I FIXED MY SLEEP." #WhatIKnowIsReal

It’s An INCREDIBLY STRONG Mind Over EXCRUCIATINGLY DIFFICULT (REAL!) Matter!...Mind-set and Fibromyalgia V | The - So Is Fibromyalgia Real? What I Know Is Real - Blog So you have fibromyalgia and maybe you’ve been told, “It's mind over‎ matter". Well, I can’t deny that the power of my mind and my ability (and sheer will!) to think in certain ways and use that think...

"It’s ALL mind over matter(!!) to me…it’s ALL using my willpower to overcome my physical problems…my INCREDIBLY STRONG willpower over my EXCRUCIATINGLY DIFFICULT fibromyalgia physical problems." #WhatIKnowIsReal

Ten Things I’m Glad I DIDN’T Know About Fibromyalgia When I Was First Diagnosed…Fibromyalgia and Hope | The - So Is Fibromyalgia Real? What I Know Is Real - Blog I've had fibromyalgia for over fifteen years now and I have to say I’m kind of glad I DIDN’T know many things about fibromyalgia when I was first diagnosed. I've charted my own path. And I’m not only ...

"But I think there’s something to be said for having an optimistic ignorance of our SUPPOSED #fibromyalgia fate…in other words…#hope." #WhatIKnowIsReal

Fibro Fog...Frustrating, Frightening…But, Yeah, Just Another Fibromyalgia Symptom | The - So Is Fibromyalgia Real? What I Know Is Real - Blog As uneasy as I’ve felt about my frustrating and worrisome fibro fog these past sixteen years, I’m starting to feel LESS UNEASY and MORE POSITIVE about this unsettling fibromyalgia symptom NOW more tha...

#FibroFog ..."And if you’re a “regular” person (who doesn’t have #fibromyalgia)…STOP RIGHT NOW!…and don’t laugh and dismissively tell me, “Oh, I get that too, that happens lately, it’s old age.” #WhatIKnowIsReal

I Have Fibromyalgia…And I’m More Competent Than Ever! | The - So Is Fibromyalgia Real? What I Know Is Real - Blog It seems there’s a stigma attached to fibromyalgia; it seems the question 'Is fibromyalgia real?' hangs over me (and everyone else suffering from it) questioning my competence, and honestly, it just g...

"there’s a stigma attached to fibromyalgia; it seems the question Is fibromyalgia real? hangs over me (& everyone else suffering from it) in the eyes of many others & honestly, it just gets too ridiculous for me to even dignify it with a response anymore!"

It Seems Like My Automatic Mode Switch Broke...My Brain and Fibromyalgia | The - So Is Fibromyalgia Real? What I Know Is Real - Blog After years with fibromyalgia I realized it SEEMED like my brain was not 'automatically resetting' each day and that I needed to work hard to 'reset' it myself.

"So I guess then, pain and symptoms in my body, for me, is a signal to (in fact, I guess) work on my brain. (IMPORTANT NOTE: This is NOT the same as saying “It’s all in my head.”!!!)" #WhatIKnowIsReal

MY STORY - The - So Is Fibromyalgia Real? What I Know Is Real - Blog Is fibromyalgia real? My story of living with fibromyalgia started in 2002 and as I’ve struggled daily I’ve found it’s not only very real, it’s manageable.

"Without medications to help me feel better I have learned how to make myself feel better on my own.” #Fibromyalgia #ManagingWithoutMeds #WhatIKnowIsReal

Go Figure…Helping Our Health Helps Our (Fibromyalgia) Brains Too!…Fibro Fog II | The - So Is Fibromyalgia Real? What I Know Is Real - Blog Go figure…it seems that helping our overall health…helps our brains too! It turns out, as I've worked on my overall health and gradually, ever so gradually, improved my fibromyalgia overall, my fibro ...

#FibroFog and eating #brain-boosting foods..."So, the worst that happens, is…I get healthier? And the best? I get smarter? Personally, I can’t argue with that logic!" #WhatIKnowIsReal

To Sleep or Not to Sleep?...So Done with That Question!...Fibromyalgia and Sleep II | The - So Is Fibromyalgia Real? What I Know Is Real - Blog Because of my observations about fibromyalgia and sleep over the last fifteen years, I AM managing to get GOOD SLEEP, so I thought I should share them.

#Restorative "I’m certainly not a #sleep expert but I think I can just tell when I wake up, if I was able to get that…there’s a feeling of being rested, having a sense of well-being & grounded…that is just not there if I have a night of disjointed sleep"

”Different Things Work for Different People”…or DO They!? I Wonder… Fibromyalgia Big Picture | The - So Is Fibromyalgia Real? What I Know Is Real - Blog I hear this over and over again with respect to fibromyalgia treatments and every once in awhile I'm told...”different things work for different people”... but I keep wondering...do they? Do they REAL...

"Many with #fibromyalgia tell me they can’t #exercise and I’ll be the first to acknowledge that exercising with fibromyalgia is fraught with so many difficulties it took me two posts of over five thousand words combined to discuss it." #WhatIKnowIsReal

I Live In Deliberate Denial and It Helps!...Mind-Set and Fibromyalgia | The - So Is Fibromyalgia Real? What I Know Is Real - Blog I am surviving, thriving and even steadily, gradually and unmistakably improving; I live in 'deliberate denial' and it helps my mind-set and fibromyalgia!

"For all of us with #fibromyalgia, it seems to me that it’s all about doing or thinking whatever it takes to get up and get doing the things we have to do in life and hopefully, before our energy runs out each day…getting to some things we like to do."

These Are Side Effects I Can Live With!...Making Fibromyalgia Work FOR Me | The - So Is Fibromyalgia Real? What I Know Is Real - Blog There is hands down absolutely no doubt that my fibromyalgia has been working AGAINST me, but I'm making it work FOR me as well, and I have the side effects to prove it!

“If I must have this #fibromyalgia thing, I’m going to get something out of it…I’m going to make it work FOR me!" #WhatIKnowIsReal

Fibromyalgia…Pyramid of Resilience | The - So Is Fibromyalgia Real? What I Know Is Real - Blog Over the years, having fibromyalgia, I have been continually KNOCKED BACK DOWN to BASIC SURVIVAL MODE. Working on the most basic of needs.

"I just couldn’t do what I used to do with such limited available “good” time and energy each day…remember, a certain amount of time when you have #fibromyalgia is just “survival”, trying to feel okay enough to function at the most basic level."

I Have Fibromyalgia…I Work on Stress…The Fibromyalgia and Stress Connection | The - So Is Fibromyalgia Real? What I Know Is Real - Blog Apparently all illnesses are affected by stress but from having fibromyalgia for over fifteen years, I can say the fibromyalgia and stress connection is clear, fibromyalgia seems to be SUPER affected…

“It suddenly becomes..crystal clear to me that there’s nothing more impt than my #health, and I won’t let anything jeopardize it. And as soon as that #realization becomes “crystal” to me again, the absolute top #priority that my health.": buff.ly/4qlNWUd

by @soisfibroreal.bsky.social
#fibromyalgia

Beautiful! Lovely to hear again. 🩵💚

Oh yeah, stretching is so helpful, same for me.

I hear ya! Same for me, sleep is key to being able to function in my life. I can sooo identify with you!

Staying Afloat With Fibromyalgia…Come Aboard! | The - So Is Fibromyalgia Real? What I Know Is Real - Blog Struggling to stay afloat with fibromyalgia, feeling alone and pretty hopeless? Come aboard! Join me, there's no need for you to be down there alone.

"I can only imagine how much more difficult it must be to be dealing with multiple debilitating chronic illnesses at once...what I would say to them is my blog could present an especially useful opportunity to them in a way maybe they hadn’t considered."

These Are Side Effects I Can Live With!...Making Fibromyalgia Work FOR Me | The - So Is Fibromyalgia Real? What I Know Is Real - Blog There is hands down absolutely no doubt that my fibromyalgia has been working AGAINST me, but I'm making it work FOR me as well, and I have the side effects to prove it!

"...when I started out on this path, like everyone with #fibromyalgia I would imagine, I was just trying to be able to function in my every day busy life, to keep my head above water when I felt like I was drowning in the vicious circles of fibromyalgia."

To Sleep or Not to Sleep?...So Tired of That Question!...Fibromyalgia and Sleep | The - So Is Fibromyalgia Real? What I Know Is Real - Blog What do I say about fibromyalgia and sleep that everyone doesn't already know? I'm not sure, but I AM managing to get GOOD SLEEP so I'll give it a try.

"Seems to be an optimal amount of sleep…such that going under OR OVER(!) the amount is not necessarily desirable.” #Fibromyalgia #WhatIKnowIsReal

“THE SLEEP SOLUTION”…Fibromyalgia and Sleep – Book Share III | The - So Is Fibromyalgia Real? What I Know Is Real - Blog “THE SLEEP SOLUTION”…Fibromyalgia and Sleep – Book Share III So this is another book sharing post, something I’m doing from time to time sprinkled in amongst my regular posts that are commentaries on my insights about fibromyalgia. I’m only going to write one w...

"What I know is real is I think there would be a whole lot less people trapped in the vicious circles that can take us further & further down the rabbit hole of more & more messed up sleep & the resulting health issues, if they only truly understood sleep"

Fibromyalgia…Pyramid of Resilience | The - So Is Fibromyalgia Real? What I Know Is Real - Blog Over the years, having fibromyalgia, I have been continually KNOCKED BACK DOWN to BASIC SURVIVAL MODE. Working on the most basic of needs.

"...when you have #fibromyalgia, it’s a monthly, weekly, sometimes daily kind of thing, getting knocked down‎! Not a life stage.
I mean, I have been continually KNOCKED BACK DOWN to BASIC SURVIVAL MODE. Working on the most basic of needs."

Is Fibromyalgia (Truly) Different for Everyone? | The - So Is Fibromyalgia Real? What I Know Is Real - Blog Is fibromyalgia TRULY different for everyone? Or is everyone DOING DIFFERENT THINGS and thus MAKING THEIR FIBROMYALGIA JOURNEYS DIFFERENT?

#Fibromyalgia ..."But something I’ve learned to consider and to be careful of, is that my temporary fix is not setting my overall fight back…that I am not winning a battle at the expense of losing the war…at the expense of the journey." #WhatIKnowIsReal

In Your Face, Fibromyalgia...I "Do the Opposite"! | The - So Is Fibromyalgia Real? What I Know Is Real - Blog It seems to me that fibromyalgia is a “do-the-opposite” illness. I mean, you kind of HAVE to be oppositional, even defiant, to tackle it! Yes, if you're oppositional, defiant...then maybe this is the ...

"When aches start to set in and my body gets stiff…I move more. The achier and stiffer I get, the more I move. Yes, experience (of living with #fibromyalgia for over seventeen years now) has taught me to be very conscious of moving in my everyday life."