chronic illness life & disability lit 📚🪴🌊🐕
honoring the hard & finding joy along the way
migraine | SF neuropathy | POTS | ME/CFS |
long COVID | MCAS | ambulatory ♿
Scientific Director, #MEAction
Stanford Med
Université de Montréal
TIME100 Health 2024
#ME, #EDS, #POTS, #LongCOVID
Views my own
exceedhergrasp1 on Twitter
Severe M.E./LC having creature in a room somewhere in the Netherlands
They/them
Ready to Return to the Woods. And to my art and writing.
I am one of the #MillionsMissing
31 years old
Netherlands
She/her
Long COVID, mild, since Apr 2022
ME / Long COVID diagnosed May 2024
🇬🇧: Severe ME & long covid
🇳🇱: Auteur van 'De achterblijvers' (Uitgeverij De Geus)
🏳️🌈
Former professional ballet dancer | Bed/sofa-bound M.E. patient | Using BlueSky to raise awareness for #MyalgicE | #IACC I #PAIS
#art2cureME #pwme #millionsmissing
Creative turned activist #NietHersteld - Long Covid since jan’21 ♿️ - posts with brain fog, so pls bear with me - eager to learn - posts in 🇬🇧 & 🇳🇱
for when the birdapp goes down for good
(Severe ME)
she/her ◦ ecology lover ◦ 🍄🟫 ◦
musings from the sickbed ◦ 🌻 ◦
one of the millions missing #myalgicencephalomyelitis ◦ 🛏️ ◦
"Where you see wrong or inequality or injustice, speak out, because this is your country. This is your democracy. Make it. Protect it. Pass it on" Thurgood Marshall
No DMs please! I will unfollow.
Lvl. 29 UK Disabled artist 🎨
Nature lover, rubbish gamer, tired goblin ✨
Former History teacher 📚
hEDs | POTs | M.E/LC | ND
Queer and chronically tired 🌈
https://linktr.ee/jadebearteeth
Senior Fellow in Public Health and Journalism, Center for Global Public Health at the University of California, Berkeley. I blog at Virology Blog (virology.ws). My academic position is largely funded by donations from patients. davetuller@berkeley.edu
Irish Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Association
NB: Posts should not be considered advice
Registered Charity Number 20100254
CHY 22039
#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME. Some #LongCovid items also
95% of posts on #MyalgicEncephalomyelitis, #LongCovid or #chronicillness.
With ME/CFS 36 years, severe ME 31 years.
@IrishMECFSAssoc trustee 28 years
26 publications in peer-reviewed journals
Social media: https://me-pedia.org/wiki/Tom_Kindlon
Full time ill/Disabled person (ME/CFS and now Long COVID) writing about disability and craft. #MillonsMissing. #MECFS http://chronicallysiobhan.wordpress.com
Historical novelist, book lover & freelance writer/editor with ME/CFS. Currently writing about a 1930s spirit medium.
📚 CBC breakthrough mentee 2024
📚 MMA mentee 2022
https://linktr.ee/katieandersonmorrison
