EDIFY research

Thrilled to share that I’ve been awarded funding to lead my own research project looking into the association between eating disorders (ED) and PCOS! Grateful to @medresfdn.bsky.social for supporting this work and further important ED research. Very much looking forward to the journey ahead!

I’m thrilled to have received a Launchpad Grant from @medresfdn.bsky.social
This award will enable me to investigate an important relationship between loneliness and eating disorders in young people. Huge thanks to the Medical Research Foundation for supporting this work!

The @freedfromed.bsky.social team want to hear from you!

What is most important in #earlyintervention for #eatingdisorders?
Those with lived experience, families, clinicians, researchers, anyone involved is welcome to take part.

Take the short survey here: qualtrics.kcl.ac.uk/jfe/form/SV_...

Watch our participant information video here: youtube.com/watch?v=Gve-...
And email amelia.1.hemmings@kcl.ac.uk to find out more and take part! 🧠

Have you had treatment for anorexia that has not helped you recover fully?

RaISE is recruiting those aged 13-30, with a current diagnosis of anorexia and who have had at least one previous course of treatment that has not resulted in full and long-lasting recovery.

For day 5 of #EatingDisordersAwarenessWeek, we're sharing work from EDIFY WS 5!
We have reached 50% of our recruitment target for the RaISE trial of non-invasive neuromodulation for anorexia 🧠
We are still recruiting!
To find out more, contact amelia.1.hemmings@kcl.ac.uk

@kingsedresearch.bsky.social @kingsioppn.bsky.social @nihrmaudsleybrc.bsky.social @drhelensharpe.bsky.social

Characterising illness stages and recovery trajectories of eating disorders in young people via remote measurement technology (STORY): a multi-centre prospective cohort study protocol - BMC Psychiatry Background Eating disorders (EDs) are serious, often chronic, conditions associated with pronounced morbidity, mortality, and dysfunction increasingly affecting young people worldwide. Illness progres...

Additionally, if you are interested in learning more about the scientific side of STORY, you can read our published protocol paper using the link here: tinyurl.com/STORYProtoco...

YouTube video by EDIFY research The STORY study: Participant information and recruitment

You can find out more about the study by watching our recruitment video or visit the EDIFY website: tinyurl.com/WeWantToHear...

youtu.be/gRyVHnKYw4Y?...

A study poster with bright colours and shapes, with two people exchanging books in the bottom right corner. The text reads: "We want to hear your STORY! Join the STORY study! Are you... between 16-25 years, and have an eating disorder, or have no eating disorder or major mental health diagnoses? The STORY study is a one-year long study to explore the diverse experiences of young people with eating disorders and how they recover from them. Interested? Contact us under: STORY@kcl.ac.uk"

For day 4 of #EatingDisordersAwarenessWeek, we're sharing work from EDIFY Workstreams 3/4!

These Workstreams are focused on understanding how young people recover from their eating disorder and how their eating disorder changes over time. As such, we are recruiting for STORY.

Day 3 of #EDAW updates! We are delighted to highlight EDIFY today which is co-led by @drhelensharpe.bsky.social . @edifyresearch.bsky.social is a 4 year programme of research focused on how we understand and treat eating disorders in young people. Www.edifyresearch.co.uk

@ntrompeter.bsky.social @drhelensharpe.bsky.social

@kingsedresearch.bsky.social @kingsioppn.bsky.social

@nihrmaudsleybrc.bsky.social

An infographic featuring four boxes arranged in a grid layout. Each box contains distinct text: Box 1: In workstream 2, we use cohort data to explore potential risk factors for eating disorders. Box 2: Currently, we are looking at the topic of childhood food insecurity and links with disordered eating in adolescence. Box 3: We know that eating disorders occur across the socio-economic spectrum, but we know less about the impacts of growing up in food insecurity. Box 4: Using cohort data means we get a bigger picture of the population, not just people who typically participate in research.

For day 3 of #EatingDisordersAwarenessWeek, we’re sharing work from EDIFY Workstream 2!

This workstream uses large cohort data to explore the interplay of risk and protective factors for eating disorders, including unique and shared pathways in different groups.

@kingsioppn.bsky.social @nihrmaudsleybrc.bsky.social

This workstream uses large cohort data to explore the interplay of risk and protective factors for eating disorders, including unique and shared pathways in different groups.
@tineopitz.bsky.social @drhelensharpe.bsky.social @kingsedresearch.bsky.social

This visual abstract describes key findings of a recent study conducted by researchers of the EDIFY team on the relationship between sleep and disordered eating. As part of this graphic, it is outlined that about one in four young people experience sleep problems. Furthermore, the graphic states that sleep and disordered eating can be linked through a variety of factors including disturbed mood. Based on information provided by more than 6,000 young people in the UK, we investigated if sleep and disordered eating are associated across time. Within our study, we found that sleep (as assessed at age 14) did not predict disordered eating at age 17. However, we found that disordered eating (as assessed at age 14) did predict poorer sleep quality at age 17 through depressive symptoms. We conclude that more research is needed to explore the relationship between sleep and different forms of disordered eating.

For day 3 of #EatingDisordersAwarenessWeek, we’re sharing work from EDIFY Workstream 2!

This workstream explores how young people experience and understand eating disorders, particularly focusing on those who feel unrepresented in the current ED narrative—co-creating their own stories, their way.

@kingsedresearch.bsky.social @kingsioppn.bsky.social @nihrmaudsleybrc.bsky.social

A digital poster from EDIFY and the University of Nottingham. The title reads “Workstream 1 update.” The text explains that researchers are studying how young people with lived experience of eating disorders discuss ED content on TikTok. The study also explores how the platform’s algorithm may create "echo chambers" that expose vulnerable users to more ED content. The poster features illustrations of three young people using smartphones. The University of Nottingham logo is in the top right corner.

For day 2 of #EatingDisordersAwarenessWeek, we’re sharing an update on EDIFY Workstream 1 from the University of Nottingham. @tamsinparnell.bsky.social

@kingsedresearch.bsky.social @eatingresearch.bsky.social @edresearch.bsky.social @basakince.bsky.social @kingsioppn.bsky.social

YouTube video by EDIFY research Food Insecurity in Eating Disorders: A Short Animation

📣This #edaw2025, we wanted to share a recent animation we made with Woven Ink on food insecurity in people with eating disorders.
www.youtube.com/watch?v=lMhU...

📣Have you had treatment for anorexia that has not helped you recover fully?

Check out RaISE, a trial of non-invasive brain stimulation!

Participants receive 20 sessions of iTBS, £50 and can see a picture of their brain📷🧠

Email amelia.1.hemmings@kcl.ac.uk for more info!

Recruitment poster for a study looking at experience of help seeking for eating disorder care. text read: Are you aged 16 years or over? Do you have a current or past eating disorder? Do you identify as being part of any of the following groups? ethnic minority, men, LGBTQ+? We want to speak with people who are not well represented in services about their experience seeking help for an eating disorder. we want to improve access to eating disorder care and the treatments people are offered. you would need to complete a short survey about yourself and take part in an interview lasting up to an hour. If you would like to be involved contact jessica.wilkins@kcl.ac.uk

📢Call for participants 📢 We want to improve access to #eatingdisorder care!
If you identify as an underrepresented group in ED research, we would really like to hear about your experience of ED help seeking!

Contact jessica.wilkins@kcl.ac.uk to find out more and take part.

📢 Read the Estra team's new paper! Machine learning models for diagnosis and risk prediction in eating disorders, depression, and alcohol use disorder
doi.org/10.1016/j.ja... 🧠