Ahimsa

Text-based graphic with one photo. Text: New publication. Managing myalgic encephalomyelitis/chronic fatigue syndrome: a new narrative. a chapter in a new Elsevier textbook written by coauthors from #MEAction, Mayo Clinic Rochester and the Bateman-Horne Center. “I was honored to co-author this chapter with colleagues from Mayo Clinic and the Bateman-Horne Center to give clinicians and researchers the tools they need to better recognize, study and treat ME/CFS.” Jaime Seltzer, Scientific Director, #MEAction Photo: Jaime Seltzer (white woman with long, dark hair) wearing glasses and cream blazer and red top slightly smiling.

Stellar new work from @grachstephanie.bsky.social, @exceedhergrasp1.bsky.social, @batemanhornecenter.bsky.social's Bell and Yellman & @raviganeshmd.bsky.social in the Elsevier text 'The Scientific Basis of Fatigue'! The book has chapters on #MECFS, COVID, Parkinson’s, stroke, and multiple sclerosis.

I really don’t know. I am brutally honest on my FB account with friends and family. I try to paint a picture of just how bad it can get.

It’s not fair that we’re doing this to anyone but least of all to kids.

But a role of a 20 sided die doesn’t faze them. Surely it’ll never come up 1
🙄🤦🏻‍♀️😔

How can we get people to become conscious of the fact that

there is a disease that they don't know exists

that will absolutely destroy your life,

help is nonexistent and

you'll be screaming into an abyss for the rest of your torturous life if it takes you down

by a roll of the dice.

#MEcfs

Graphic with photo of author Marisa Renee Lee (a Black woman with a great big smile looking at the camera) and her book (title Grief is Love with purple/blue/pink/gold floral swirls) Text: Dealing with Grief and Chronic Illness Workshop Tuesday October 28th 3 pm ET Get your ticket today! Marisa Renee Lee author of Grief is Love.

Grief and complex chronic illness often go hand in hand. Join us on October 28th at 12 pm PT/ 3 pm ET/ 7 pm GMT for a virtual workshop with Marisa Renee Lee focusing on this important topic. www.meaction.net/event-detail...

#pwME #grief #ChronicIllness #MECFS #Spoonie #LongCovid

I'm normally try to stay fairly philosophical about missing events because of #MECFS but sometimes missing particular events makes me so sad. There's one tonight that's in that category and I'm feeling it.

Probably not that funny, but making silly jokes like this is a coping mechanism 😊

Poor salmon... 😂

I can relate, but it's ME/CFS that's attacking me instead of a cat

#MEcfs #PwME

a concerned-looking salmon toy being clawed by a fluffy black kitten with an intense expression

"Help"

Do you have Diabetes and ME/CFS or Long Covid?

Please consider completing our survey to help us better understand your experiences of these conditions:
https://meassociation.org.uk/zmq1 

#pwME #MECFS #LongCovid #Diabetes

Sequence ME & Long Covid - ME Genetics Centre of Excellence Sequence ME & Long Covid A groundbreaking partnership is working together to secure funding for a study to analyse the […]

“The Sequence ME & Long Covid study represents a unique opportunity to build on DecodeME’s foundation and use world-class technology to address one of the most challenging medical puzzles of our time.”
Professor Chris Ponting, University of Edinburgh
#ME/CFS #Genetics #pwME
@cgatist.bsky.social

Salt/electrolytes, how much should pwME consume? How to find the sweet spot?

I take 5g mineral salts daily, plus 5g sea salt with food. Has resolved orthostatic intolerance, but I'm not sure how much more I may need nor the signs of 'too much'. I don't know if I have low blood volume.

#MECFS #pwME

A person wearing an orange shirt is standing indoors, leaning slightly against a wall, and covering their eyes with one hand as if feeling dizzy. Below the image, text reads: “Living with Orthostatic Intolerance (OI)” followed by a quote: “If everyday tasks like standing in line or taking a shower leave you dizzy, exhausted, or foggy, you’re not alone.” — Melanie Hoppers, MD.

From the OMF-Supported Medical Education Resource Center (MERC) at Bateman Horne Center:

Orthostatic intolerance & #POTS are common in #MECFS & #LongCOVID. Learn signs + management tips: ow.ly/iz3b50Xb2QJ

#POTSAwarenessMonth #UnitedForME @batemanhornecenter.bsky.social

Apply Today - Writers Guild Initiative Writing Workshops WGI Workshops start in November. Apply today!

#MEAction is excited to announce we are partnering with the Writers Guild Initiative (WGI) again to offer creative writing workshops for people with ME and Long COVID. To learn more & get link to the application read this article:
www.meaction.net/post/apply-t...

SKOPJE, MACEDONIA Training for marathon 38 in Skopje was a little tough with injury and illness but after missing my flight connection from Turkey to Macedonia, I was very pleased to get to the start line.  The day...

Race report for Skopje Marathon, Macedonia 🇲🇰

Marathon 38 for @investinmeresearch.bsky.social in European country 34.

www.mikeseumarathons.eu/skopje-maced...

Thanks for your support and sponsorship

@meactnet.bsky.social's Executive Director, Laurie Jones, wrote a op-ed about the medicaid work requirements that was recently published in MedPage Today!

Thank a look below!👇

I’ve learnt an incredible amount about #ME/CFS from social media.

one of the biggest names in trans healthcare discrimination is also one of the biggest names in ME/CFS healthcare discrimination (Simon Wessely) & as a trans person with ME/CFS i'm begging all of us to make this intercommunity connection

Scientists develop first ‘accurate blood test’ to detect chronic fatigue syndrome Research could offer hope for ME patients – but some experts urge caution and say more studies needed

ME/CFS is a devastating condition that has long been denied, dismissed, psychologised and underdiagnosed. Research is at last starting to catch up with it, with glimmers of hope for those who have been left untreated for so long.
There's a huge BUT coming ...🧵
www.theguardian.com/society/2025...

a small cream colored dog stares up at us. this is Boksil, swaddled in a grey robe, and tucked underneath a thick blanket on a bed. her little paws poke out of the robe's sleeves, and her toe beans are in full view. her tiny pink tongue mlems from her grinning mouth.

a higher angle of Boksil. a small yellow pillow rests beside her for scale, and her eyes are closed peacefully as she rests swaddled under a white blanket, looking very cozy.

This is Boksil. She is reaching levels of cozy previously unheard of. 12/10 a trailblazer (IG: with_bokdanji)

A handsome, well fed tabby cat, Joe, sitting in a big white armchair, looking out the window. His big fluffy belly and big fat polydactyl paws are on full display. #CatsOfBlueSky

Keeping an eye on the neighbourhood

Mike Harley is a marathon running machine, raising funds for ME research. £52,000 and counting!

@mikeseumarathons.bsky.social

#MECFS #LongCovid #pwME

Mike Harley - EU Marathons for ME - SKopje October 2025

Thanks to Mike Harley for another outstanding effort to raise funds to facilitate biomedical research into #MECFS
at the Skopje Marathon 2025
www.justgiving.com/fundraising/...
#philanthropy #research #CofEforME #InvestinMEresearch @mikeseumarathons.bsky.social

Blind man with a walking stick being led off by a police man in a yellow vest.

Two seniors in motorized wheelchairs and holding Palestine flags being loaded up into a police van by several agents.

Not sure you’ve seen these images here, but in the UK they’re arresting dangerous anti genocide protestors for “supporting terrorism”. You can sleep easier knowing these thugs are off the streets.

Our latest News in Brief post has headlines and links to further reading for #MECFS and #LongCovid news, advocacy and research for the week of Sep 29-Oct 5.

Topics:
News, advocacy and articles
Coming events
Research news and commentary
& Published research

www.s4me.info/threads/news...

Gus is standing on a completed puzzle. His mouth is open yelling at human

No more puzzle! It’s done! Pet me now!

The TRO (Temporary Restraining Order) was Granted 💚blocking deployment of National Guard troops in our home.

#GoodNews
#NoTroopsInPortland
#ProtectOregon

bsky.app/profile/josh...

A well fed tabby cat sitting human style in a big white armchair. His tail is sticking out between his hind legs and his front paws are at his sides. He’s watching some TV . #CatsOfBlueSky

Catching up on his stories

me, fiasco, a fluffy grey tabby with a white bib and white toes, sitting on a faux-fur blanket of various shades of grey.

Fiasco am on the Fiasco colour blankie

NO ONE CAN FIND HIMS HERE

Fiasco am... incog... uh... inog... cog... u know. Eggnogito.

Tiled fondant Escher birds in a gradient from white to dark gray on a ball-shaped cake

Tiled fondant Escher birds in a gradient from white to dark gray on a ball-shaped cake. Each bird has a black outline and other details drawn on with an edible marker

Escher cake
Vanilla cake, vanilla bean buttercream, one layer of salted chocolate buttercream filling, one layer of salted caramel buttercream filling, fondant (modeling chocolate was too sticky for the cookie cutter)

I actually have more hate for this flavor because every Marxist/AnCap I have encountered who advances this position eventually terminates in “fuck the disabled. Sacrifices must be made for the revolution.”

At least the fash are transparent about their desire to end me.