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Kyle

@kylofone.bsky.social

carer for my partner with very severe ME / long covid i like loud guitars and tiramisu

128 Followers  |  278 Following  |  12 Posts  |  Joined: 25.08.2023  |  1.6352

Latest posts by kylofone.bsky.social on Bluesky

lmao you have my attention

24.05.2025 14:02 β€” πŸ‘ 1    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0

too many DM points to respond to, the servers finally gave up

24.05.2025 13:27 β€” πŸ‘ 1    πŸ” 0    πŸ’¬ 1    πŸ“Œ 0

Oh wow two whole days without spreading transphobia and labour apologia whoohoo

04.12.2024 08:34 β€” πŸ‘ 453    πŸ” 56    πŸ’¬ 2    πŸ“Œ 0
tweet: "the assisted dying bill, like any piece of legislation, can only be considered in the context of present material conditions. a culture where the public broadcaster happily highlights cost savings from killing people is a fundamentally unsafe place for these powers to be granted."

tweet: "the assisted dying bill, like any piece of legislation, can only be considered in the context of present material conditions. a culture where the public broadcaster happily highlights cost savings from killing people is a fundamentally unsafe place for these powers to be granted."

from @kylofone.bsky.social

29.11.2024 17:37 β€” πŸ‘ 18    πŸ” 5    πŸ’¬ 0    πŸ“Œ 0

And also my partner has recently just started being able to tolerate having her mum take over some of the simpler care duties, which is huge as I've been exclusively doing all of her direct care for almost 2 years now. So she's starting to come stay with us occasionally to help out!

21.11.2024 23:56 β€” πŸ‘ 1    πŸ” 0    πŸ’¬ 1    πŸ“Œ 0

Ain't that the truth! Yeah, thankfully we moved in spring to be closer to our families, and so my parents are nearby to help with some of the practical stuff like picking up groceries, which is super helpful because I can't really leave the house because of the care responsibilities.

21.11.2024 23:53 β€” πŸ‘ 1    πŸ” 0    πŸ’¬ 1    πŸ“Œ 0

They're not totally terrible at the moment thanks. Today was kinda rough but my partner has seen some small improvements recently. Tiny in the grand scheme but monumental for her. We had a bunch of snow here Monday and she managed to tolerate watching it out the window from her bed for a while.

21.11.2024 23:35 β€” πŸ‘ 1    πŸ” 0    πŸ’¬ 1    πŸ“Œ 0

Naur not the technical issues. This digital world is really not kind to old people. Godspeed with helping him there 🫑 And that's great re: your improvement - sounds like the right approach for sure though I can only imagine how frustrating it is to have to be so patient and diligent all the time!

21.11.2024 23:28 β€” πŸ‘ 1    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0

It's an honour. Hope your dad's doing ok, given... everything. And you too! I was really happy to read about your recent improvement, hope that's still the case and long may it continue if so!

21.11.2024 23:14 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 2    πŸ“Œ 0

Thank you for imparting your hard-earned wisdom, sage Kira! This really resonated. Hell I nearly didnt send this reply (ew earnestness) but like...I'm just a guy scrolling on his phone while biting his already shredded nails. Who gives a fuck?

21.11.2024 22:31 β€” πŸ‘ 1    πŸ” 0    πŸ’¬ 1    πŸ“Œ 0

Same, I genuinely wouldn't have any idea it was even a thing were it not for all the complaints about how much it sucks from other people

19.10.2024 21:17 β€” πŸ‘ 1    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0

Having a classic Kyle Saturday Nightβ„’ (putting on a Japanese found footage horror movie and falling asleep twenty minutes in)

19.10.2024 21:10 β€” πŸ‘ 1    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0

you guys weren't wrong, CGI Ian Holm really sucked. comically bad. still had fun with the movie though.

18.10.2024 23:04 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
Preview
Maeve Boothby O’Neill died because of a discredited view of ME. How was this allowed to happen? | George Monbiot Chronic fatigue syndrome is as physiological as a broken leg. ​We must learn all we can from this tragic case, says Guardian columnist George Monbiot

This story is one of the most disturbing I've ever covered. It's about how the views of a deeply weird ideological sect affected science, medicine and the media, with devastating impacts on patients. Please read and pass on. This horror has to stop. www.theguardian.com/commentisfre...

18.10.2024 06:39 β€” πŸ‘ 955    πŸ” 489    πŸ’¬ 48    πŸ“Œ 75

ok let's see if the sky really is bluer on the other side

17.10.2024 20:51 β€” πŸ‘ 5    πŸ” 0    πŸ’¬ 1    πŸ“Œ 0

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