@d4itdr.bsky.social
The D4I Tribal Data Repository aims to house data from Indigenous communities to further research that will benefit the Native American participants while protecting the rights of the individuals and respecting sovereignty. Part of @nativebio.bsky.social
The D4I TDR has curated list of resources for those interested in Indigenous Data Sovereignty and the intersections with the many areas of public health. Visit our new resource database d4itdr.org/seeds/ #IndigenousDataSovereignty #ResourceDatabase #Indigenous #publichealth #IDsov #datagarden
11.12.2025 19:13 β π 0 π 0 π¬ 0 π 0
A couple of members from the team were asked a few questions over zoom, with these questions geared to highlight what it means to work in data governance. Check it out here: youtu.be/jqNJXR-pevM
08.12.2025 23:45 β π 1 π 0 π¬ 0 π 0
As part of the D4I's mission to educate the community about data governance, we thought it would be an excellent opportunity to offer a glimpse into the work we've done for the Tribal Data Repository. (1/2)
08.12.2025 23:45 β π 0 π 0 π¬ 1 π 0
We hope this presentation and other materials we plan to release soon will serve as continuous educational resources on IDSov and the work surrounding it!!! Watch the presentation below youtu.be/lYT0OWC7Ds4 (2/2)
#DataSovereignty #Indigenous #IDSov #Data #Repository #TribalSovereignty #DataGarden
We're excited to release the presentation our team gave at the AISES conference on our Tribal Data Repository Work in MN! This technical work was brought to life through a garden analogy where it helped attendees connect deeply w/ the principles & work of Indigenous Data Sovereignty (IDSov)! (1/2)
02.12.2025 22:32 β π 1 π 0 π¬ 1 π 0
A garden flourishes when maintained by caring gardeners who monitor the plants throughout the entire lifecycle. Our gardeners are the D4I team, being data stewards who monitor the data throughout its lifecycle.
#DataSovereignty #Indigenous #IDSov #Data #Repository #TribalSovereignty #DataGarden
Consent isnβt restricted to one type, there are multiple types of consent. Acquiring the right type of consent is critical to conducting ethical research! Learn about the different consent types youtu.be/_4j8kKh4Zjc?...
07.11.2025 23:06 β π 2 π 0 π¬ 0 π 0Happy Halloween from D4I!
What we find spooky are cracker-thin fry bread that cuts your mouth (ruh-roh), milk for our lactose intolerant Native babies, and unauthorized use of Tribal derived data.
Come find @nativebio.bsky.social @kstsosie.bsky.social , @judisimcox.bsky.social , Lauren McCallister Davis, Matt Anderson , @d4itdr.bsky.social and me at @sacnas.bsky.social today. Blow your mind and make you laugh! #IDSov is the only thing you should be saying today!
31.10.2025 16:03 β π 5 π 2 π¬ 0 π 0
Presentations at SACNAS #NDiSTEM2025
Some members of the Tsosie Lab for #Indigenous #Genomic #Data Equity & #Justice are so happy to present @sacnas.bsky.social in Columbus, OH #NDiSTEM2025! Here's for an amazing Friday lineup across #IDSov. Hope to see you soon! @d4itdr.bsky.social @caterpillar-coevo.bsky.social #SACNAS #STEM
30.10.2025 22:57 β π 16 π 2 π¬ 0 π 0
Another classic from D4I!
29.10.2025 22:43 β π 1 π 0 π¬ 0 π 0Conducting research hasnβt always looked the way it does now, which is why it is important to know the history between your participants and research institutions. Find out more here youtu.be/_4j8kKh4Zjc?... #DataSovereignty #Indigenous #IDSov #Data #Repository #TribalSovereignty
27.10.2025 23:02 β π 1 π 0 π¬ 0 π 0Ethical research should always require consent from participants! Come find out more youtu.be/_4j8kKh4Zjc?...
#DataSovereignty #Indigenous #IDSov #Data #Repository #TribalSovereignty
Any bioethicists at #ASHG This year? Iβm a newbie to the conference! come to our D4I session and lets connect.
16.10.2025 19:42 β π 2 π 1 π¬ 0 π 0
Hello @geneticssociety.bsky.social come see Native Bio and @d4itdr.bsky.social wow your pants off!!!!
16.10.2025 22:57 β π 3 π 3 π¬ 0 π 0
Check out our D4I session tomorrow at ASHG!
#DataSovereignty #Indigenous #IDSov #Tribal #Data #Conference #ASHG #ASHG25 #ASHG2025
Out today via @natgenet.nature.com, the first federally funded #Tribal #data repository, a revolutionary approach to data management and applied/operationalization of IDSov @d4itdr.bsky.social. Also, if you are at #ASHG25, come see us this morning in 205ABC
www.nature.com/articles/s41...
Publication day! So proud to be a small part of this incredible team at @d4itdr.bsky.social. check out what it looks like to build a data repository grounded in #IDSov
15.10.2025 21:37 β π 1 π 1 π¬ 0 π 0
For those interested in #Indigenous #Genomics and #ASHG25 in Boston, here are some interested posters/talks/events coming out of the Tsosie Lab, @nativebio.bsky.social, and @d4itdr.bsky.social. For those looking for Friday plans, attend our Ancillary Event, debuting a #Tribal #data repository!
14.10.2025 14:29 β π 34 π 17 π¬ 1 π 0
This project could not have been possible without the work from our multiple sites collaborating together to uphold and strengthen Indigenous Data Sovereignty. Come read about it here www.nature.com/articles/s41... #Datasovereignty #Indigenous #IDSov #Nativeacademics #Tribal #Data
15.10.2025 22:16 β π 1 π 0 π¬ 0 π 0
Exciting news!!! Our paper describing our Tribal Data Repository work and its framework has been published today in Nature Genetics! (1/2)
15.10.2025 22:16 β π 0 π 0 π¬ 1 π 0Check out our session tomorrow morning titled βIndigenous Data Sovereignty is very DEMURE, very MINDFUL! Saturday 8:30 am in room 205 A
conference.aises.org/agenda
#DataSovereignty #Indigenous #IDSov #Data #Repository #TribalSovereignty #AISES
Them: You look so happy!
Us: Thanks! We're upholding Indigenous Data Sovereignty!
#DataSovereignty #Indigenous #IDSov #Data #TribalSovereignty
Ever wonder what IDSov and related topics could look like as a music album?
19.09.2025 19:36 β π 2 π 1 π¬ 0 π 0
When Indigenous peoples build our own #Tribal #data repositories, we self-direct #health #research & create #education resources to train next-gen of #Indigenous science
From PhD student, Karina Hernandez-Hernandez (PβurhΓ©pecha) it is βhope-givingβ news.asu.edu/20250917-sci...
@d4itdr.bsky.social
We also consulted with Tribal partners to discuss how Tribes can leverage sovereignty to get their data, an ongoing conversation we are always happy to engage in. (2/2)
#DataSovereignty #Indigenous #IDSov #Data #TribalSovereignty
Two weeks ago the D4I team visited the unceded territories of the Coast Salish peoples in the Pacific Northwest Coast. Here our team discussed data sovereignty with the Urban Indian Health Institute director, Abigail Echo Hawk. (1/2)
12.09.2025 18:15 β π 3 π 2 π¬ 1 π 0We uphold Indigenous Data Sovereignty in our repository work youtu.be/twp6lABlTM8?...
#DataSovereignty #Indigenous #IDSov #Data #videoseries #TribalSovereignty
#DataSovereignty #Indigenous #IDSov #Tribal #Conference #ASHG2025 #ASHG
08.09.2025 16:52 β π 2 π 1 π¬ 0 π 0
If you are attending the ASHG Annual Meeting in Boston this year, and you would like to hear about advances in Indigenous digital sovereignty and Tribal Nation-led health research, please sign up for our limited seating engagement on Friday, Oct 17th. Lunch provided: tinyurl.com/5aj9544f
08.09.2025 16:52 β π 4 π 3 π¬ 1 π 0
