The Senate HELP Committee has jurisdiction over NIH.
GOP members of the committee represent AK, AL, IN, FL, KS, KY, LA, ME, MO, OH, and SC.
Research universities and hospitals in those states need to be extra loud.
@kjmcconnell.bsky.social
Medicaid + Health Policy Researcher at the Center for Health Effectiveness at Oregon Health & Science University
The Senate HELP Committee has jurisdiction over NIH.
GOP members of the committee represent AK, AL, IN, FL, KS, KY, LA, ME, MO, OH, and SC.
Research universities and hospitals in those states need to be extra loud.
Three Maryland Democrats urged the Trump administration Monday to reverse a directive that has frozen some operations at the National Institutes of Health, saying they have βgrave concernsβ about the effect on the nearly $50 billion agencyβs medical research and other operations. βWithout quick corrective action, the consequences of further disruption could be disastrous for both medical progress in America and our nationβs overall standing and competitiveness on the world stage,β Rep. Jamie Raskin, Sen. Chris Van Hollen and Sen. Angela Alsobrooks wrote in a letter sent to Dorothy Fink, the acting secretary of the Department of Health and Human Services, and shared with The Washington Post.
Democrats are calling on Trump officials to βrestore full operations at NIH,β warning that itβs threatening medical research.
βWithout quick corrective action, the consequences of further disruption could be disastrous,β @raskin.house.gov @vanhollen.senate.gov and Sen. Alsobrooks write.
Cancer researchers said grants were on hold.
Health briefings were abruptly canceled.
The CDCβs famed Morbidity and Mortality Weekly Report didnβt publish as scheduled.
Our look at the sweeping consequences of the Trump adminβs βpauseβ of health communications.
with @lenasun.bsky.social + pals
Check out the first episode of this PBS NewsHour series on the social safety net. Iβm always eager to see this kind of important information shared with the public. Iβm glad I could contribute my perspective (my comments begin around 2:49 mins) www.pbs.org/newshour/sho...
05.03.2024 20:11 β π 19 π 13 π¬ 0 π 01/ @vinisingh.bsky.social and I have heavily updated our NBER working paper, now titled "Rationing by Race": www.nber.org/papers/w30380
The paper is about how system stressors - here #hospital capacity shocks - lead to *consequential* #rationing of resources by race rather than need.
This letter to CMS from AcademyHealth about the data access debacle is quite good I think
academyhealth.org/sites/defaul...
Lots of other issues to address too: (1) unclear if you can use Stata or R without it being cost-prohibitive (current use a "credits" system which can get blown through quickly); (2) looks like you can't use GitHub; (3) user-defined packages in or Stata may be cumbersome/impossible to implement. Etc
13.02.2024 14:45 β π 5 π 1 π¬ 2 π 0"Researchers incensed over CMS data access change" (accurate), with quotes from @asacarny.bsky.social and @aschwartz.bsky.social
www.washingtonpost.com/politics/202...
If you're an R shop like ours, with lots of TAF data and projects, it looks like the annual fees could be over $200K (e.g. 5 projects *$13K + 10 analyst seats*$15K). It also upends 5 years and hundreds of thousands of dollars to create an efficient software/hardware infrastructure to manage TAF.
12.02.2024 20:02 β π 4 π 2 π¬ 2 π 1Additional issues:
1) ridiculous cost to have additional users peek at data. so a strong incentive for PIs to never touch data at all
2) hard for institutions to set up data infrastructure for folks, e.g. make harmonized files many projects can reuse
At a time when we should be democratizing access to data, CMS appears to be moving in the opposite direction.
This policy change will have a disproportionate impact on students and researchers at less well-resourced institutions.
This policy change from CMS will do much to degrade the quality and timeliness of health policy research in the US.
While I understand the security concerns that motivated it, there has to be a middle ground that will efficiently balance security and access.
Does carving-in behavioral health lead to better outcomes for Medicaid enrollees? Our new paper published in JAMA Health Forum leverages a staggered rollout of integration, finding mostly null effects. Financial integration: perhaps necessary, but not sufficient. jamanetwork.com/journals/jam...
03.01.2024 01:22 β π 4 π 0 π¬ 0 π 0