This government shutdown is on Republicans for refusing to negotiate. Democrats must continue to hold the line to protect our healthcare.
01.10.2025 19:46 โ ๐ 1 ๐ 0 ๐ฌ 0 ๐ 0@trav2421.bsky.social
Formerly @EmpaticoOrg and @GlobalNYC #LongCovid he/him ๐ณ๏ธโ๐
This government shutdown is on Republicans for refusing to negotiate. Democrats must continue to hold the line to protect our healthcare.
01.10.2025 19:46 โ ๐ 1 ๐ 0 ๐ฌ 0 ๐ 0HEALTHCARE NOT AUTHORITARIANISM SHUTDOWN SHOWDOWN MASS CALL OCT. 1ST 8:30 PM ET
TOMORROW: Join our rapid response call to prepare for a potential Trump Shutdown. We will need to act fast to hold Republicans accountable if they force a government shutdown, so we plan to convene with national partners to lay out a strong grassroots response: www.mobilize.us/HealthcareNo...
30.09.2025 19:20 โ ๐ 301 ๐ 139 ๐ฌ 5 ๐ 7Tell the House to investigate government censorship of Jimmy Kimmel Live! act.indivisible.org/sign/censors...
19.09.2025 18:16 โ ๐ 0 ๐ 0 ๐ฌ 0 ๐ 0Tell the Smithsonian: Reject demands to whitewash history act.indivisible.org/sign/smithso...
29.08.2025 17:28 โ ๐ 0 ๐ 0 ๐ฌ 0 ๐ 0Seizure medication, wheelchairs, Social Security cards, dentures, urns of ashes, work uniforms โ just some of what's been thrown away during cruel, degrading, utterly counterproductive homeless sweeps.
A good time to revisit this gutting @propublica.org story:
A square graphic with blue and green abstract shapes in the corners and an alarm emoji at the top of the page reads "Medical Research Funding Slashed 57%. Congress cut $859 million from CDMRP in FY25--putting ME/CFS research at serious risk. H.R. 3906 would restore funding. Tell Congress: COSPONSOR NOW." At the bottom of the graphic are a multicolored image of the U.S. Capitol Building and Solve's orange and green double helix logo.
๐งต 1/ ๐จ Congress slashed $859 MILLION from a key research program that includes funding for ME/CFS and other critical health conditions.
We need your help to restore it. #MECFS #CDMRP #HR3906
solvecfs.quorum.us/campaign/128...
1) If you have had Covid you are at risk.
2) THEY ARENโT FUCKING โBOOSTERSโ THEY ARE NEW SHOTS. THE VIRUS MUTATES.
3) They are able to do this because the uptake is already so low. This is not the end game, itโs an opening gambit.
If we still had a White House Office of Gun Violence Prevention, theyโd be in Tallahassee helping the community access federal resources for survivors, families, & students. Then theyโd take what was learned to help prevent it from ever happening again.
Trump killed it on day 2.
A preliminary budget draft leaked to the Washington Post outlines plans by the Trump administration to cut:
- the NIH budget by 40%
- the CDC budget by 44%
- the HHS budget by 33%
This will not make America healthy. It will make Americans sicker and more vulnerable to disease outbreaks.
If you found it โtoo hardโ to wear a mask or stay at home during shelter in place orders, youโre really not going to like being chronically ill.
I assure you itโs far easier to adapt when you have a choice. Wear a mask. Open a window. Get your boosters.
Adapt now or adapt when you lose your health
The elimination of: grants to study #LongCovid, the Office of LC, & Advisory Committee on LC โย have sent a chilling signal. We encourage folks to take the following action led by our partners:
1. Call your reps: win.newmode.net/longcovidcam...
2. Email your reps: actionnetwork.org/letters/long...
๐จACTION: #LongCovid research funding is on track to be fully eliminated & could mean the difference between treatments in our lifetime or not.
If you care about that โย please take action & share this!
1. Call: win.newmode.net/longcovidcam...
2. Email: actionnetwork.org/letters/long...
Here is the text of the email: Dear Colleagues, We are writing to let you know that the Office of Long COVID Research and Practice will be closing as part of the administrationโs reorganization coming this week. We are proud of what we have accomplished together in advancing understanding, resources, and support for people living with Long COVID. Over the last 3+ years, we have built meaningful connections and fruitful collaborations across the federal landscape to support this work. While our office is closing, we hope that the work we have been dedicated to will continue in some form. Updates will be shared as they become available. Thank you again for your collaboration and commitment. Best regards, Ian Simon, Ph.D. Director, Office of Long COVID Research and Practice Office of the Assistant Secretary for Health et alโฆ
The Office of Long COVID Research and Practice will close as soon as this week, according to an internal HHS email obtained by Inside Medicine.
This is the opposite of what you would do if you were genuinely interested in finding treatments for chronic diseases, as RFK claims.
So for all of the Christian rightโs words about the sanctity of life, theyโve all signed up for killing millions of children as an act of public policy. WWJD?
15.03.2025 11:12 โ ๐ 250 ๐ 89 ๐ฌ 10 ๐ 5Laptop showing a still of a video (a white woman smiling with long dark hair wearing a turtleneck) with text above: "Long COVID Awareness Day. Patient advocates read an open letter to Health and Human Services Secretary Robert F. Kennedy Jr., jointly written by #MEAction and the Patient-Led Research Collaborative" The MEAction and Patient Led Research Collaborative are at the bottom along with the Long COVID awareness ribbon created by Tracey Thompson.
On #LongCovidAwarenessDay, we want to lift up the importance of Long COVID advocacy. #MEAction & @patientled.bsky.social delivered a letter to HHS Secretary, RKK Jr calling for him to reinstate the Long COVID Advisory Committee.
Video & more info: youtu.be/hQn3kqyAT6w
#LongCovid #PwME #MECFS
"Remembering what COVID is and the damage it causes is crucial for anyone organizing around or working towards disability justice, racial justice, LGBTQ+ justice, migrant justice, and liberation... we have to acknowledge how we may be contributing to debilitation."
12.03.2025 02:49 โ ๐ 51 ๐ 10 ๐ฌ 2 ๐ 1It is inaccurate to say โback during Covid,โ โwhen Covid was a thing,โ โduring Covid times,โ because it is still very much happening, disabling and killing people, and leaving millions with Long Covid.
It IS accurate to say โwhen Covid first started,โ โin 2020,โ โat the beginning of the pandemicโ
Chart: U.S. adults reporting a disability The number of people reporting a disability soared. Many Americans struggled with long Covid and reported cognitive issues like โbrain fog.โ Source: Census Here, adults refer to people older than 16.
Since the start of COVID, the number of people reporting a disability soared. Yet the majority of the world acts like COVID is over, and Long COVID doesn't exist.
10.03.2025 18:10 โ ๐ 3132 ๐ 1193 ๐ฌ 49 ๐ 65These cuts mean:
- Thousands dying daily from TB, HIV, Malaria, avoidable deaths!
- Devastation to global pandemic surveillance making certain next pandemic will come soon.
- Children going hungry in war torn zones
Human lives are not "waste".
This is mass murder!
www.theguardian.com/us-news/2025...
NEW: Millions will observe half a decade of #LongCOVID this year as the ongoing pandemic turns five.
For @thesicktimes.bsky.social, I wrote about the courage of millions of pwLC who have led the way in the face of so much willful indifference, cruelty, and denial.
thesicktimes.org/2025/03/07/h...
Please look up the influenza epidemic of 1918-19 to understand that the CDC not selecting strains for next yearโs vaccines sets the stage for a public health calamity that will, without doubt and at bare minimum, catastrophically and directly impact people you know. This is a five alarm fire.
27.02.2025 04:28 โ ๐ 7406 ๐ 2192 ๐ฌ 162 ๐ 168PETE: โWhat we have to do now is make clear we do want government to work differently and better than it has, but burning it to the ground wonโt do that for anyone.โ
20.02.2025 03:51 โ ๐ 12933 ๐ 3512 ๐ฌ 291 ๐ 239Allowing the administration to define broad swaths of history, programming and civil rights compliance as โDEIโ and then regurgitating that language instead of clearly articulating what specifically is being targeted is spreading disinformation and propaganda.
17.02.2025 14:47 โ ๐ 1235 ๐ 373 ๐ฌ 14 ๐ 18 I donโt know why anyone in the media styles โthe Department of Government Efficiencyโ as if it is like "the Department of Education."
Instead, it should be: โthe โDepartmentโ of Government Efficiency, which is not in fact a governmental department.โ
Murphy: "We need to act like a real opposition party in the middle of a constitutional and democracy crisis. That means we should not be moving forward nominees or legislation in the Senate. Ds should not be giving votes to nominee or legislation in the Senate until Rs get serious about this crisis"
05.02.2025 15:40 โ ๐ 58961 ๐ 13773 ๐ฌ 2515 ๐ 1819