Amy

When I explain to healthy people what MECFS is and all my limitations now, then follow up with, "...and I am classified as 'mild' right now" it really shocks them.

Usually this is in response to asking me why I wear a mask.

For God’s sake let us sit upon the ground
And tell sad stories of the death of kings

“AI” isn’t a tool or technology or even a cluster of technologies with a misleading name. It’s the infrastructure at the foundation of a form of capitalism dependent on data brokering. We should be teaching our students about this and not teaching them about “responsible” use.

LUCE Immigrant Justice Network of MA

#ICE will be flooding #Boston, and Luce has been helping folks during these raids. their number is 617-370-5023, and you can call whenever there’s a raid. they operate 5am-9pm all days of the week.

#Massachusetts#ICERaids

Of all the scammy, weird things the Josh Kraft campaign has done this feels uniquely bad and actually illegal.

The FTC requires that sponsored posts be labeled #ad or #sponsored. For months, Kraft paid Boston influencers thousands of dollars for Instagram posts with no disclosure. #mapoli #bospoli

My Head is Too Heavy This project is still developing.  Using LiDAR scanning apps on my smartphone, I create virtual models of myself and the space that I exist in. The gaps in information, the distortions and...

They are bringing creatives together to build community for the chronically ill. I am so thrilled to have my series “My Head is Too Heavy” featured in this issue! www.amygiese.com/my-head-is-t...

COPE MAGAZINE VOLUME 1 PART 1 COPE MAGAZINE is a creative magazine for the chronic illness community. We're a collection of personal essays, poems, art, photography, and more. Thanks for reading!

A brand new magazine, “Cope” has just been published online here: issuu.com/copemagazine...

BGIM Resource Guide-August 2025 Maine ** Changing Maine Directory – this is a curated searchable database of organizations working on social justice in Maine and needs updating – could be a great volunteer project!! https://www....

For folks in Maine and MA looking to get involved in local community organizing and community building. I, along with some others, have created a resource list of organizations that you can connect with.

docs.google.com/document/d/1...

Doomsday For SEPTA Is Bad News For Everyone | Defector SEPTA, the fifth-largest public transit system in the country, is days away from drastic service cuts that would decimate transportation in Philadelphia and its surrounding counties. Plagued by a…

Doomsday for SEPTA is bad news for everyone: defector.com/doomsday-for...

Lemons, oranges, & pomegranates in a wan-li bowl, 1630. Beautiful bounty from Jacob van Hulsdonck of Antwerp, whose day is today.

and you can add as many links as you want with deck.blue by using the [text](link) syntax without wasting your 300 characters!

This quote got me:

“And, more generally, how can we measure our unsettling internal realities if we can’t even name them?”

Such a great essay on the power of naming invisible lived experiences in chronic illness!

We nEeD vieWPoiNt DivErsITy

Worth a watch:

Head of Signal, Meredith Whittaker, on so-called "agentic AI" and the difference between how it's described in the marketing and what access and control it would actually require to work as advertised.

RFK Jr wants everyone to start using wearables to make us healthy again

The man who wants to create lists of autistic people. Lists of those likely to access abortion. Lists of trans people

If ever there was a time to go analog, this is it

They want your data. And it’s not to make you healthier

Blue banner at the top with a feint public health shield and a blue outline around the edges of the graphic. Text reads, “June 13, 2025, A person with measles visited Boston. Here’s what you need to know. The person with measles visited Boston from June 7 - 8. Unvaccinated individuals who have been exposed should contact their healthcare provider immediately. Unvaccinated exposed individuals need to avoid public places (school, work, public transit, stores, etc.) and monitor for symptoms for 21 days (through June 29, 2025). Measles vaccination is 93%-97% effective in preventing measles and protecting against severe disease. Vaccinated individuals are at low risk for contracting measles. Learn about measles prevention, symptoms, and frequently asked questions at boston.gov/measles” The Boston Public Health Commission logo is at the bottom.

Blue banner at the top with a feint public health shield and a blue outline around the edges of the graphic. Text reads, “June 13, 2025, A person with measles visited Boston. Here’s what you need to know. The person visited several places in Boston while infectious. Any individuals who spent time in the following locations at the specific dates and times may have been exposed to measles: Westin Boston Seaport District Hotel (including restaurants in the hotel) between 5:30 p.m. on Saturday, June 7 and 1:30 p.m. on Sunday, June 8; The Museum of Fine Arts Boston between 1 p.m. and 6:30 p.m. on Sunday, June 8; Logan Airport Terminal C between 5 p.m. and 11:15 p.m. on Sunday, June 8; On June 8, the person then flew on JetBlue flight 639 to Miami on a flight that departed at 9:12 p.m. Learn about measles prevention, symptoms, and frequently asked questions at boston.gov/measles” The Boston Public Health Commission logo is at the bottom.

A person with measles visited Boston. We're working with local partners to notify those who may have been exposed to measles. Unvaccinated individuals who have been exposed should contact their healthcare provider immediately.

Learn more at boston.gov/measles.

You have to understand how egregious this is. Professors who go up for tenure and don’t get tenure are fired. But in addition, the boards job has always been to rubber stamp the decisions made by people who are actually qualified. What does a banking exec know about your portfolio that profs don’t?

For a board of trustees to shut down their approval of promotion and tenure decisions is beyond the pale, and should be questioned and contested through every means available. Shutting down process precedes shutting down...other things.

It's a job loss penalty, if you lose your job, you lose your food assistance. Calling it a work requirement helps MAGA destroy SNAP.

Koyo Kouoh, Curator Tapped for 61st Venice Biennale, Dies at 57 The museum director would have been the first African woman to oversee the Biennale.

Curator Koyo Kouoh, who was selected to lead the 2026 Venice Biennale, died suddenly at the age of 57 on Saturday, May 10. She would have been the first African woman to oversee the international exhibition.

It’s not often a thread will make you see things differently, but this is one such thread. I learned some things. It’s long, and I’ll probably even reread it.

eight years ago today we all watched the glory of zendaya falling madly in love with tom holland and the internet was never the same

At risk of taking this lovely conversation farther than people are ready for…

One of the real difficulties with addressing trauma from societal abandonment during the pandemic is that many people coped with their own abandonment by abandoning others.

okay

this is an emergency assistance thread for anyone who got this National Endowment for the Arts email today

some of you can still get your money and I’m going to tell you how

article to come later this weekend but here is the Cliffs Notes version:

Bookshop: Buy books online. Support local bookstores. An online bookstore that financially supports local independent bookstores and gives back to the book community.

PLEASE don’t buy into Amazon’s booksale this week.

They are intentionally trying to eat into profits from Indie Bookstore Day this weekend, a really important annual event for our important community institutions.

Check out your local fave or bookshop.org.

What is Long COVID? A Beginner's Guide

Worked hard on this, and I hope it will be a useful resource for many.

A beginner’s guide to Long COVID, with a discussion of mechanisms:

www.thegauntlet.news/p/what-is-lo...

Hand holding a blue booklet outside a store front. The booklet is labeled "passport" and the logo Independent Bookstore Day is at the center. The top reads "Metro Boston Indie Bookstore Crawl." A sign for the MIT Press Bookstore is visible in the background.

The MIT Press Bookstore is participating in the inaugural Metro Boston Indie Bookstore Crawl! Get to as many stores as possible by April 26th to be entered to win a gift basket with something from each store. Details including participating bookstores & potential prizes here: bit.ly/42oMpaA