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@anirow.bsky.social

Posts about #LongCovid and #MECFS

167 Followers  |  333 Following  |  61 Posts  |  Joined: 10.11.2024  |  1.7692

Latest posts by anirow.bsky.social on Bluesky


Ah, it looks like many are leaving comments on the YouTube version of the podcast. I will be joining!

29.12.2025 18:18 โ€” ๐Ÿ‘ 3    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0

Is there a place we can email in to express our disappointment?

29.12.2025 18:14 โ€” ๐Ÿ‘ 2    ๐Ÿ” 0    ๐Ÿ’ฌ 1    ๐Ÿ“Œ 0

#oneofthetwo. My sister, @harttandsoul.bsky.social , had eye surgery this morning. We were the only 2 wearing masks in waiting room, but we were #twoofthetwo.

29.12.2025 17:31 โ€” ๐Ÿ‘ 344    ๐Ÿ” 60    ๐Ÿ’ฌ 28    ๐Ÿ“Œ 2

Jon Stewart and the pod saves guys mocking people who wear masks while talking about What Is To Be Done is exactly what Jon Stewart and the pod saves guys are, it's the most Jon Stewart and pod saves guys thing possible.

28.12.2025 18:23 โ€” ๐Ÿ‘ 3327    ๐Ÿ” 543    ๐Ÿ’ฌ 110    ๐Ÿ“Œ 112

Dear Jon Stewart c/o @weeklyshowpodcast.bsky.social
I recently watched, with great surprise and disappointment, a weeklyshowpodcast segment in which you and other "personalities," gleefully mocked and derided the relatively small subset of individuals who continue to wear a face mask in public.

27.12.2025 18:42 โ€” ๐Ÿ‘ 1713    ๐Ÿ” 355    ๐Ÿ’ฌ 94    ๐Ÿ“Œ 122

"Covid is over. It ended years ago." No it's not. Covid is still disabling thousands of people every day. You just stopped caring.

03.05.2025 22:05 โ€” ๐Ÿ‘ 611    ๐Ÿ” 184    ๐Ÿ’ฌ 11    ๐Ÿ“Œ 2

Excellent LC description.

03.05.2025 20:33 โ€” ๐Ÿ‘ 1    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0

The Human Genome Project cost taxpayers $3 Billion.

Two decades on, it has generated a staggering return on investment of $1 Trillion, with benefits in medicine, agriculture, energy, the environment, & more.

If you want to boost the economy, funding science is one of the best things you could do.

02.05.2025 19:00 โ€” ๐Ÿ‘ 3773    ๐Ÿ” 1166    ๐Ÿ’ฌ 54    ๐Ÿ“Œ 42

He is absolutely disgusting

01.05.2025 18:11 โ€” ๐Ÿ‘ 1    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0

Hi, @motherjones.com disabled disability reporter here, I really want to hear about how tariffs are impacting disabled, chronically ill, and aging folks. Reposts appreciated and my email is jmetraux@motherjones.com.

29.04.2025 15:50 โ€” ๐Ÿ‘ 1576    ๐Ÿ” 841    ๐Ÿ’ฌ 14    ๐Ÿ“Œ 16

Thank you!!!

27.04.2025 20:06 โ€” ๐Ÿ‘ 2    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0

When do you think a monoclonal might be ready? So hard being so sick for yearsโ€ฆ.

24.04.2025 01:53 โ€” ๐Ÿ‘ 3    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0

Thinking of you, Whitney!

22.04.2025 15:24 โ€” ๐Ÿ‘ 0    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0
Preview
I'm the Mom, But No One Listened to Me My son had Long COVID. I assumed his situation would be understood, thanks to science. But I discovered that my voice wasn't heard even though it mattered most.

Psychology Today: โ€œI'm the Mom, But No One Listened to Meโ€

www.psychologytoday.com/us/blog/risk...

Becky Diamond describes repeated experiences of teachers & clinicians not believing her child was sick, including with Long Covid.

#LCKid #LongCovidKids #LongCovid #invisibleillness #chronicillness

22.04.2025 15:08 โ€” ๐Ÿ‘ 13    ๐Ÿ” 5    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 1
Preview
Genetic breakthroughs could point pharma to a long COVID drug The discoveries also hold potential benefits for patients with other conditions, such as chronic fatigue syndrome.

PharmaVoice: 'Genetic breakthroughs could point pharma to a long COVID drug'

'The discoveries also hold potential benefits for patients with other conditions, such as chronic fatigue syndrome'

'Weโ€™re finding genetic signatures...'

www.pharmavoice.com/news/genetic...

22.04.2025 14:57 โ€” ๐Ÿ‘ 67    ๐Ÿ” 20    ๐Ÿ’ฌ 4    ๐Ÿ“Œ 1

Lashes look ridiculously long!

21.04.2025 21:13 โ€” ๐Ÿ‘ 0    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0
Post image

My adult daughter Rachel works everyday, pays taxes, loves going to movies with her friends, and listens to awful (IMO) music.

Our U.S. Dept HHS has lost all of its humanity, compassion, and intellectual curiosity

17.04.2025 11:22 โ€” ๐Ÿ‘ 7778    ๐Ÿ” 1925    ๐Ÿ’ฌ 159    ๐Ÿ“Œ 64

And people will just see the headline. Boooo.

17.04.2025 14:59 โ€” ๐Ÿ‘ 0    ๐Ÿ” 0    ๐Ÿ’ฌ 1    ๐Ÿ“Œ 0

What do yall know about Plasma replacement therapy? Does it help?

17.04.2025 14:27 โ€” ๐Ÿ‘ 1    ๐Ÿ” 1    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0

Havenโ€™t read the study, but also wonder if 10 sessions is enough. I think probably not.

17.04.2025 14:04 โ€” ๐Ÿ‘ 0    ๐Ÿ” 0    ๐Ÿ’ฌ 1    ๐Ÿ“Œ 0

Just want to say thanks for all of your posts!

16.04.2025 15:04 โ€” ๐Ÿ‘ 0    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0

Same! Not in a trial, but taking it on my own and feel that it is responsible for an energy uptick.

15.04.2025 21:55 โ€” ๐Ÿ‘ 2    ๐Ÿ” 1    ๐Ÿ’ฌ 1    ๐Ÿ“Œ 0
Flyer for Long Covid clinical trial of low dose rapamycin. Researchers are investigating effects of a 12 week course of low dose Sirolimus (Rapa) bs placebo in adults with Long Covid. Youโ€™re eligible if you have a positive test for COVID and a diagnosis of long covid. There are 5 in person visits required over the 6 month study period. There are blood draws, in person meetings, saliva collection and online surveys required. If youโ€™re interested, please email coreresearch@mountsinai.org.

Flyer for Long Covid clinical trial of low dose rapamycin. Researchers are investigating effects of a 12 week course of low dose Sirolimus (Rapa) bs placebo in adults with Long Covid. Youโ€™re eligible if you have a positive test for COVID and a diagnosis of long covid. There are 5 in person visits required over the 6 month study period. There are blood draws, in person meetings, saliva collection and online surveys required. If youโ€™re interested, please email coreresearch@mountsinai.org.

Weโ€™re truly excited that the PolyBio supported Low-dose Rapamycin trial is now recruiting in the NYC area.

Interested in learning more? Hereโ€™s the full study summary: polybio.org/projects/lon...

15.04.2025 15:16 โ€” ๐Ÿ‘ 58    ๐Ÿ” 35    ๐Ÿ’ฌ 1    ๐Ÿ“Œ 2

Long COVID is real. Itโ€™s common. Itโ€™s disabling millions.
And no one talks about itโ€”because if we looked too closely, weโ€™d have to change

So instead, we decided:
Let people get sick.
Let kids struggle.
Let the vulnerable disappear.
Let the numbers stop counting.

15.04.2025 12:50 โ€” ๐Ÿ‘ 1134    ๐Ÿ” 308    ๐Ÿ’ฌ 35    ๐Ÿ“Œ 11
Preview
Suggesting the world is โ€œpost COVIDโ€ contributes to an unwitting shift in research priorities

Stop saying โ€œpost covidโ€. People are confusing the end of the public health emergency with the end of the pandemic.

The pandemic is not over. โ€œDuring COVIDโ€ is now.

If we want to end it, we need to first acknowledge this fact. Then mask up, clean the air & develop better vaccines & treatments.

11.04.2025 20:52 โ€” ๐Ÿ‘ 624    ๐Ÿ” 211    ๐Ÿ’ฌ 20    ๐Ÿ“Œ 11

Donnnnne!

11.04.2025 15:33 โ€” ๐Ÿ‘ 5    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0

"Post pandemic"
"During the pandemic"
"During lockdowns"
"Back in Covid times"
"Covid is over"

These statements all sound ridiculous given the >23 million U.S. adults reporting long Covid with no treatments

10.04.2025 14:30 โ€” ๐Ÿ‘ 559    ๐Ÿ” 163    ๐Ÿ’ฌ 9    ๐Ÿ“Œ 8

Covid is still ongoing! Language matters.

08.04.2025 20:47 โ€” ๐Ÿ‘ 63    ๐Ÿ” 4    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0

MMR vaccine doesnโ€™t just prevent measles, mumps, and rubella. It also prevents RFK Jr. from showing up at your childโ€™s funeral to exploit your grief at your most vulnerable moment.

07.04.2025 14:57 โ€” ๐Ÿ‘ 26958    ๐Ÿ” 6762    ๐Ÿ’ฌ 316    ๐Ÿ“Œ 176

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