"Covid is over. It ended years ago." No it's not. Covid is still disabling thousands of people every day. You just stopped caring.

Excellent LC description.

The Human Genome Project cost taxpayers $3 Billion.

Two decades on, it has generated a staggering return on investment of $1 Trillion, with benefits in medicine, agriculture, energy, the environment, & more.

If you want to boost the economy, funding science is one of the best things you could do.

He is absolutely disgusting

Hi, @motherjones.com disabled disability reporter here, I really want to hear about how tariffs are impacting disabled, chronically ill, and aging folks. Reposts appreciated and my email is jmetraux@motherjones.com.

Thank you!!!

When do you think a monoclonal might be ready? So hard being so sick for years….

Thinking of you, Whitney!

I'm the Mom, But No One Listened to Me My son had Long COVID. I assumed his situation would be understood, thanks to science. But I discovered that my voice wasn't heard even though it mattered most.

Psychology Today: “I'm the Mom, But No One Listened to Me”

www.psychologytoday.com/us/blog/risk...

Becky Diamond describes repeated experiences of teachers & clinicians not believing her child was sick, including with Long Covid.

#LCKid #LongCovidKids #LongCovid #invisibleillness #chronicillness

Genetic breakthroughs could point pharma to a long COVID drug The discoveries also hold potential benefits for patients with other conditions, such as chronic fatigue syndrome.

PharmaVoice: 'Genetic breakthroughs could point pharma to a long COVID drug'

'The discoveries also hold potential benefits for patients with other conditions, such as chronic fatigue syndrome'

'We’re finding genetic signatures...'

www.pharmavoice.com/news/genetic...

Lashes look ridiculously long!

My adult daughter Rachel works everyday, pays taxes, loves going to movies with her friends, and listens to awful (IMO) music.

Our U.S. Dept HHS has lost all of its humanity, compassion, and intellectual curiosity

And people will just see the headline. Boooo.

What do yall know about Plasma replacement therapy? Does it help?

Haven’t read the study, but also wonder if 10 sessions is enough. I think probably not.

Just want to say thanks for all of your posts!

Same! Not in a trial, but taking it on my own and feel that it is responsible for an energy uptick.

Flyer for Long Covid clinical trial of low dose rapamycin. Researchers are investigating effects of a 12 week course of low dose Sirolimus (Rapa) bs placebo in adults with Long Covid. You’re eligible if you have a positive test for COVID and a diagnosis of long covid. There are 5 in person visits required over the 6 month study period. There are blood draws, in person meetings, saliva collection and online surveys required. If you’re interested, please email coreresearch@mountsinai.org.

We’re truly excited that the PolyBio supported Low-dose Rapamycin trial is now recruiting in the NYC area.

Interested in learning more? Here’s the full study summary: polybio.org/projects/lon...

Long COVID is real. It’s common. It’s disabling millions.
And no one talks about it—because if we looked too closely, we’d have to change

So instead, we decided:
Let people get sick.
Let kids struggle.
Let the vulnerable disappear.
Let the numbers stop counting.

Suggesting the world is “post COVID” contributes to an unwitting shift in research priorities

Stop saying “post covid”. People are confusing the end of the public health emergency with the end of the pandemic.

The pandemic is not over. “During COVID” is now.

If we want to end it, we need to first acknowledge this fact. Then mask up, clean the air & develop better vaccines & treatments.

Donnnnne!

"Post pandemic"
"During the pandemic"
"During lockdowns"
"Back in Covid times"
"Covid is over"

These statements all sound ridiculous given the >23 million U.S. adults reporting long Covid with no treatments

Covid is still ongoing! Language matters.

MMR vaccine doesn’t just prevent measles, mumps, and rubella. It also prevents RFK Jr. from showing up at your child’s funeral to exploit your grief at your most vulnerable moment.

Long COVID activists fought Trump team’s research cuts and won ― for now Success gives hope to scientists and advocates who managed to get millions of dollars in grants restored.

Activism works. Case in point: #LongCovid
@nature.com
www.nature.com/articles/d41...

What gives with #altruan #pluslife no longer shipping to the US? This is such a crucial tool as someone with #longcovid.

Yesss so feel good!! Watching the first season a couple of times when I was at my lowest with LC. Still need to do the second season…

Thank you so much for these!

Most Wearables Prompt You to Move More. This One Helps You Avoid Overdoing It. The Visible platform uses continuous heart-rate monitoring and pacing techniques to help people with energy-limiting conditions avoid overexertion.

New York Times - Wirecutter: 'Most Wearables Prompt You to Move More. This One Helps You Avoid Overdoing It.'

'Pacing is key to Visible’s approach'

'The signature symptom of long COVID and ME/CFS is post-exertional malaise'

www.nytimes.com/wirecutter/r...