There is so much I want to do re: all this, the world right now
Yet
There is so little useful energy in my body and brain, and I use most of it for survival
It seems important to connect in person locally
But
I rarely leave home or see anyone outside my household
Fun quandary
Thanks #longCOVID
25.02.2025 02:59 β π 6 π 1 π¬ 0 π 0
Bluesky: βWhatβs up?β
Me: β¦where would I start with that question?? π€―
03.02.2025 23:29 β π 0 π 0 π¬ 0 π 0
Thanks so much π€
23.01.2025 00:41 β π 1 π 0 π¬ 0 π 0
Person with heart hands that say FUCK OFF in the middle
05.01.2025 02:27 β π 1 π 0 π¬ 1 π 0
that person with the peaches
national magazine award-winning culture critic & writer for hire ποΈ in bitch, the nation, the verge, rolling stone, &c
πΏ@theflytrapmedia.com cofounder
πββ¬ Preorder ALL MY DEAD CATS (July 2026)
βοΈ sesmith at realsesmith.com
Memes, culture, politics, cats. You can also find us on Facebook (ew)
#CommunityEngagement Expert. Life sidelined by #MECFS #MCAS #POTS #Fibro #Gastroparesis +
#MECFS & #LongCovid #ResearchPartner & #Advocate β’ Chair of #MedicalEducation Group β’ #PwME #Disability
(Unceded) #Canada
https://linktr.ee/sabrinapoiriercanada
Scientific Director, #MEAction
Stanford Med
UniversitΓ© de MontrΓ©al
TIME100 Health 2024
#ME, #EDS, #POTS, #LongCOVID
Views my own
exceedhergrasp1 on Twitter
Living with ME/CFS since 1983. An advocate since my diagnosis in 1988.
US ME patient advocate. Mother of a son and his wife who have ME and Long COVID. My other focus is on US politics and what's coming
Infection-associated chronic illness advocate | Life sidelined by #LongCovid #MECFS #POTS | #PatientPartner | MSc | Mom | She/Her | π¨π¦ #Canada #Quebec
#CovidConscious #StillMasking
#MyalgicEncephalomyelitis #pwME #EMSFC
#CovidLongue #CovidLong #pwLC
ME CFS, Long COVID, Comorbidities & disability advocate | Former social worker | She/Her/Elle | #MECFS #EMSFC #LongCovid #CovidLongue #DisabilityJustice
TiohtiΓ :ke | Montreal π¨π¦
LC/ME since Jan2022. Patient-partner, neophyte in learning science behind post-infectious illnesses. π¨π¦
Wife, Mom, Nanny. Proud to live in the maritime province of New Brunswick. Life altered by ME/CFS. Gobsmacked by US election results. Concerned the MAGA trend is growing in Canada too. #IStandWithCarney
National nonprofit led by people with lived experience helping families navigate pediatric Long COVID with support, resources, and advocacy.
Compte officiel #ApresJ20 Association Covid Long France visant Γ favoriser la Reconnaissance, les Soins, la Recherche et la Communication sur le #LongCovid
UK-based international charity supporting & advocating for children & young people with #LongCovid & related conditions.
#LongCovidKids #LongCovid #PaediatricLongCovid
#LongCovidAwareness
A non-profit social enterprise dedicated to people with Long Covid + ME. Shifting the paradigm one step at a time...
ππHome to the #pedanticzebra book club.
https://www.longcovidadvoc.com/
ποΈ https://longcovidadvoc.shop/
Billboard campaign/fundraiser here
https://www.notrecovereduk.org
Project run by #RenegadeResearch @renegaderesearch.bsky.social a non-profit 501c3 decentralized org pioneering patient/caregiver led research focused on #MECFS & #LongCovid β’ Renegade-Research.org β’ RemissionBiome.org π Donate now βΆοΈ tinyurl.com/44azdsxm
Founder - Renegade Research
#MECFS #LongCovid
Research, algorithmic art & music, machine learning, anti-bias in AI data. #LongCovid research & advocacy @patientled.bsky.social.
Patient-Led Research for #LongCovid! http://patientledresearch.com
formerly a patient-led research collaborative co-lead, always a co-founder | MPP | she/her | natures 10 in 2022