Join us for the 38th Annual Hope Through Caring Gala, the Les Turner ALS Foundation’s signature fundraiser uniting leaders in ALS research, philanthropy, and people living with ALS.
For more information:
lesturnerals.org/events/hope-...
12.02.2026 18:02 — 👍 0 🔁 0 💬 0 📌 0
Smart home modifications can support mobility, comfort, and care.
Explore practical guidance in our ALS & Home Modifications Guide: lesturnerals.org/als-home-mod...
11.02.2026 18:05 — 👍 0 🔁 0 💬 0 📌 0
Learn what hospice care really is, when it may be appropriate, and how it supports people living with ALS, families and care partners.
Join us Thursday, February 12 at 12:00 p.m. CT
Register: us02web.zoom.us/webinar/regi...
09.02.2026 18:03 — 👍 0 🔁 0 💬 0 📌 0
The ALS Better Care Act has been reintroduced in the U.S. House and Senate.
Thank you to Reps. Jan Schakowsky, Brian Fitzpatrick, Jason Crow, and Mike Quigley, and Sens. Chris Coons and Lisa Murkowski for introducing this bipartisan legislation.
Learn more: lesturnerals.org/get-involved...
06.02.2026 18:01 — 👍 1 🔁 0 💬 0 📌 0
Federal funding plays a critical role in advancing ALS research and care.
The budget includes investments across NIH, ACT for ALS, DoD research programs, ARPA-H, and the National ALS Registry. Thank you to our ALS advocates for helping drive this progress.
Read: lesturnerals.org/congress-app...
04.02.2026 22:30 — 👍 1 🔁 0 💬 0 📌 0
ALS researchers and scientists are working to better understand the causes of the disease. When more people living with ALS sign up for the National ALS Registry, the more accurate the picture will be. Let’s do more and end ALS. cdc.gov/als/ALSJoinALSRegistry.html
#ALS #ALSRegistry #endALS
04.02.2026 21:03 — 👍 0 🔁 0 💬 0 📌 0
Research led by Vladimir Gelfand, PhD, at the Les Turner ALS Center shows that a mutation in Ataxin-2 (ATXN2) disrupts microtubule stability, affecting neuron growth and function and advancing understanding of microtubule dynamics in ALS.
Read full story: lesturnerals.org/discovering-...
04.02.2026 17:15 — 👍 0 🔁 0 💬 0 📌 0
Meet Katie Lord, RN, BSN, Hospice Nurse and Education Coordinator at ILHPCO. Join her Thursday, February 12 at 12:00 p.m. CT.
Register: us02web.zoom.us/webinar/regi...
03.02.2026 18:01 — 👍 0 🔁 0 💬 0 📌 0
Join us Thursday, February 12 at 12:00 p.m. CT for a live webinar on hospice care and how it supports people living with ALS, families and care partners.
Register: us02web.zoom.us/webinar/regi...
30.01.2026 18:03 — 👍 0 🔁 0 💬 0 📌 0
Access to the right equipment matters. We offer equipment loans—like ramps, wheelchairs, and communication devices—for needs not covered by insurance.
Questions? supportservices@lesturnerals.org
28.01.2026 18:03 — 👍 0 🔁 0 💬 0 📌 0
Northwestern Medicine researchers have identified a protein involved in how cells manage misfolded proteins — a process disrupted in ALS and other neurodegenerative diseases.
Read more: lesturnerals.org/targeting-ke...
27.01.2026 18:04 — 👍 1 🔁 0 💬 0 📌 0
Learn how palliative care can support people living with ALS and their families. Join us Thursday, January 29, at 12:00 p.m. CT.
Register: us02web.zoom.us/webinar/regi...
26.01.2026 18:04 — 👍 0 🔁 0 💬 0 📌 0
Looking for a way to make a difference? Volunteer with us at events like the ALS Walk for Life or community fundraisers. No special skills needed—just a willingness to help.
Learn more: lesturnerals.org/get-involved...
22.01.2026 18:01 — 👍 0 🔁 0 💬 0 📌 0
Meet Dr. Kara Bischoff, a palliative care expert at UCSF, specializing in ALS care. Join her Thursday, January 29, at 12:00 p.m. CT.
Register: us02web.zoom.us/webinar/regi...
#ALS #PalliativeCare #LesTurnerALS
21.01.2026 18:04 — 👍 0 🔁 0 💬 0 📌 0
Turn what you love into impact - From birthdays to races to community events, 'Fundraise Your Way' helps support people living with ALS.
Learn more: lesturnerals.org/get-involved...
20.01.2026 18:04 — 👍 0 🔁 0 💬 0 📌 0
“To all the people living with ALS, I don’t care what happens, never give up, never quit.”
Watch more of Brad Dusek’s inspiring ALS story and why he joined the National ALS Registry. youtube.com/watch?v=m8NOodx7GYg
#ALS #BradDusek #ALSRegistry
19.01.2026 18:03 — 👍 0 🔁 0 💬 0 📌 0
Memories shared by loved ones become lasting tributes. To honor someone special who was lost to ALS, we invite you to submit a Celebration of Life.
Celebration of Life form: lesturnerals.org/get-involved...
16.01.2026 18:02 — 👍 0 🔁 0 💬 0 📌 0
Eating and drinking can become more difficult with ALS. My ALS Decision Tool™ can help you understand feeding tube options and plan for your care — on your terms.
Learn more: lesturnerals.org/nutrition/ab...
15.01.2026 18:02 — 👍 0 🔁 0 💬 0 📌 0
Join us Thursday, January 29, at 12:00 p.m. CT for a live webinar on how palliative care can support people living with ALS and their loved ones.
Register: us02web.zoom.us/webinar/regi...
#ALS #PalliativeCare #LesTurnerALS
14.01.2026 18:03 — 👍 0 🔁 0 💬 0 📌 0
ALS Caregivers Support Group: Thursday, January 15 from 3:30 to 4:30 p.m. CT (Virtual)
A non-judgmental space for caregivers to connect, share challenges, and gain strength through guided support.
RSVP: supportgroup@lesturnerals.org
12.01.2026 18:02 — 👍 0 🔁 0 💬 0 📌 0
We are now accepting runners for our Team Race for ALS waitlist.
Be part of our team at the 2026 Bank of America Chicago Marathon on October 11 in Grant Park, Chicago.
Details on runner benefits and fundraising commitments available here: lesturnerals.org/events/team-...
09.01.2026 18:02 — 👍 0 🔁 0 💬 0 📌 0
ALS can change how we communicate - but technology offers options.
Learn more in our ALS & Communication Guide: lesturnerals.org/als-communic...
08.01.2026 18:04 — 👍 1 🔁 0 💬 0 📌 0
Persons living with ALS today, and those who will live with it tomorrow, seek answers to the unknowns of the disease. Research is the way forward. Learn more at cdc.gov/als
#ALS
05.01.2026 18:02 — 👍 0 🔁 0 💬 0 📌 0
Memories shared by loved ones help keep legacies alive. Submit a Celebration of Life to honor someone special.
Celebration of Life form: lesturnerals.org/get-involved...
31.12.2025 18:02 — 👍 0 🔁 0 💬 0 📌 0
Small changes can help make daily life easier. Our ALS & Activities of Daily Living guide offers practical support you can use now—or later.
Learn more: lesturnerals.org/als-activiti...
29.12.2025 18:03 — 👍 0 🔁 0 💬 0 📌 0
As the year comes to a close, your support helps families affected by ALS access care, guidance, and connection.
Please consider a year-end donation by Dec. 31: lesturnerals.org/the-heart-do...
25.12.2025 18:02 — 👍 0 🔁 0 💬 0 📌 0
New ALS research reveals a breakdown in the cell’s RNA quality control system—offering fresh insight into disease mechanisms and potential treatments.
Read the full article: lesturnerals.org/rna-quality-...
23.12.2025 18:04 — 👍 0 🔁 0 💬 0 📌 0
Looking for thoughtful, last-minute gift ideas this season? Explore our Holiday Gift Guide for meaningful options.
View the full guide on our website: lesturnerals.org/2025-gift-gu...
22.12.2025 18:03 — 👍 0 🔁 0 💬 0 📌 0
As the year ends, your support helps ensure families affected by ALS receive care, guidance, and resources when they need them most.
Please consider a year-end gift by Dec. 31: lesturnerals.org/the-heart-do...
19.12.2025 18:01 — 👍 0 🔁 0 💬 0 📌 0
We empower the rare disease patient community to advocate for impactful, science-driven legislation and policy that advances the equitable development of and access to lifesaving diagnoses, treatments, and cures.
Northwestern University (NU) offers world-class advanced training in neuroscience via its Interdepartmental Neuroscience (NUIN) PhD program. nuin.northwestern.edu
Join us in bringing AI to the fight against ALS. Learn more about the Longitude Prize on ALS at our website (https://bit.ly/457a8zo), and follow us for updates.
Neuroscientist @ MassGeneral Hospital/Harvard Medical School
Amyotrophic Lateral Sclerosis | Huntington's Disease
Neuroscientist turned strategic Marketer, driven by a passion for communicating pioneering scientific discoveries.🧪 A foodie, wine, and travel lover, always seeking new and diverse experiences.🍷About me: https://jacquelinerezosmarketing-kiw36qz.gamma.site/
Fighting for a 🧬 cure for familial #ALS in honor of my family living with #FALS. #Remembering dad & grandma #FundNIH 5calls.org
Non-profit supporting ALS clients with communication technology. Learn more at www.bridgingvoice.org.
ALS = Lou Gehrig's Disease Thought it had been cured by now?
Still no known cause. Still no cure. Still meh treatments. Still quickly fatal. Still outrageous.
https://x.com/alsadvocacy
Fighting ALS on every front through research, care services, and advocacy.
Genetic ALS & FTD Advocate, C9orf72 Carrier , Executive Director Genetic ALS & FTD : End the Legacy - East Bay California
Reporting from the frontiers of health & medicine.
I AM ALS is the largest community movement made up of the very people living with, impacted by, and highly motivated to end ALS. We’re fueled by urgency to find a cure and a track record of real impact.
We conduct vital research into motor neuron disease. Based at the University of Eidnburgh, we unite over 250 scientists and doctors across Scotland.
We're where the business of medicine gets answers. An independent news media organization covering biotech, pharma, science, policy, finance, venture capital and markets, and how they drive the life sciences industry. Read us at www.endpts.com.
ALS United Connecticut provides comprehensive support to improve the quality of life for people with ALS and their families while advocating for increased support and advancing innovative research for new treatments and an end to ALS.
Assistant professor at the University of Calgary | Neuromuscular Neurologist | ALS, neuromuscular, and digital biomarker researcher | Silly dad, bike & ski obsessed ⛰
I direct the Knight Science Journalism Program at MIT. Working hard to advance science journalism and support its practitioners at a time they are needed more than ever.
ALS strategist| former caregiver| ex-CEO and board member| aligning interests of the lived experience ALS/MND community with research, clinical care, regulators, funders, and industry.
Neurologist/Neuroscientist at Lewis Katz School of Medicine, Temple University, and the ALS Hope Foundation. Director, TUHS ALS Postmortem Core collab with CDC ALS Registry. Chair, DoD (CDMRP) ALS Research Programmatic Panel. Views my OWN.
