I am sitting on a wooden jetty by the Thames, with Lacey, a black guide dog wearing a yellow harness, sitting beside me. I am wearing a white t-shirt with a floral design and light-coloured trousers, and I have a black shoulder bag. In the background, there is a bridge and city buildings under a blue sky with wispy clouds. The sun is shining brightly, reflecting off the water. Trees line the riverbank on the left side of the image.
Iβve been quiet online as of late β donβt really intend on that changing β, but I had a lovely evening on the Southbank last night, and whilst the world feels like itβs spinning faster and faster these days, a moment of tranquility feels worth savouring.
15.05.2025 19:29 β π 4 π 0 π¬ 0 π 0
If youβre still looking for folks, Iβve got experience β both historically, and with Sky, LBC, and more to follow on this latest attack on disability rights β and would be happy to help. Donβt post much here but more posted on the bad place, and the really bad place (LinkedIn) for a sense check.
14.03.2025 17:53 β π 1 π 0 π¬ 1 π 0
A homemade cake on a wooden cutting board with three lit candles on top. The cake is frosted with a light-colored icing and has the name "LACEY" spelled out in orange letters, made from carrots. In the background, Lacey, a black labrador retriever, has her head resting on the table, looking towards the cake.
Lacey is lying on a wooden floor. She is holding a green plush toy bear (yet to be named) in her mouth.
Lacey is standing indoors on a wooden floor. She is looking up with her mouth open and tongue out, appearing happy and attentive.
Lacey is lying on a checkered floor with black and beige tiles. She is wearing her guide dog harness, and is looking up towards the camera with a calm expression. I am sitting on a chair next to her, wearing blue jeans and resting my hand on her back.
πβπ¦Ί Lacey turned 9 yesterday, which of course couldnβt go without celebrating.
This will be her last working birthday and her last living with me, so we made sure she was treated (more so than usual) like the utter princess she knows she isβ¦ with plenty of carrots to go around π₯
26.01.2025 14:11 β π 11 π 0 π¬ 0 π 0
I read said apology immediately after yet another assistance failure on the network at Moorgate (I have raised this in my reply). i'm genuinely pleased to see a commitment to improvement. But time is a luxury we don't have; this is clearly an immediate and pervasive problem. 2/2
18.01.2025 16:44 β π 0 π 0 π¬ 0 π 0
I was pleased to receive an apology for these experiences from TfL yesterday evening, and was reassured by their commitment to ensuring those with lived experience of disability are at the heart of future training. However (because there is always a 'however')... 1/2
18.01.2025 16:44 β π 3 π 0 π¬ 1 π 1
There are so many uncertainties facing disabled people, daily. An understanding of this at the heart of government would go a long way in acknowledging that whilst the markets may be calmer, the prospect of losing my freedom and independence makes me more shaky than ever. 3/3
14.01.2025 19:13 β π 1 π 0 π¬ 0 π 0
For so many disabled people, including myself, these payments facilitate us living independent, fulfilled, and (though it shouldn't need to be part of a winning argument) economically active lives. My independence is being offered up as a trade-off for 'market stability'. 2/3
14.01.2025 19:13 β π 2 π 0 π¬ 1 π 0
It's a difficult pill to swallow, the government trailing Β£3bn cuts to welfare, notably from Personal Independence Payments, thereby prioritising calming the markets over calming the legitimised fears of millions of disabled people now facing the loss of our independence. 1/3
14.01.2025 19:13 β π 2 π 2 π¬ 1 π 0
They claim to have βaccessibility championsβ in the team, but 3 attempts later, I was categorically unable to speak to a human being. Accessibility champions really donβt count if I canβt get through to speak to them. 12/
https://t.co/E8qVgNFevj
14.01.2025 16:11 β π 2 π 1 π¬ 0 π 0
PS: I tried to phone TfL to ask about assistance availability on the night Overground (which I then realised wasnβt running this weekend anyway), as their website doesnβt clarify. 11/
https://t.co/WzrFG2VkIy
14.01.2025 16:11 β π 2 π 0 π¬ 1 π 0
So, overall? This was a weekend of appalling experiences with TfL. From putting my safety at risk to disempowering me and refusing to listen to my voice and my needs, itβs the first time in a while that I have genuinely felt a confidence knock travelling in London. 10/
14.01.2025 16:11 β π 2 π 0 π¬ 1 π 0
This request is repeatedly refused, and Iβm told that they *must* hand me over to a member of national rail staff β for my own safety, of course. What a masterclass in disempowering disabled people. Itβs patronising, itβs ableist, and itβs a waste of everyoneβs time. 9/
14.01.2025 16:11 β π 3 π 0 π¬ 1 π 0
Then Sunday. A more successful tube assistance experience. At Euston I asked to be taken up to the mainline station via the shortcut to the Overground platforms β Iβll be alright from there, I know this part of the station. 8/
14.01.2025 16:11 β π 2 π 0 π¬ 1 π 0
Rule no. 1 of disabled passenger safety is surely to prevent us being stranded at unfamiliar stations, late at night, when assistance has been requested and confirmed. Just a thought. I felt vulnerable β which as people who know me will attest to is not a common occurrence. 7/
14.01.2025 16:11 β π 5 π 0 π¬ 1 π 0
The worst part? They did precisely the same thing on my way home, this time at 11pm. Assistance at my first station phoned ahead, and helped me onto the train. Arrive at Willesden to change⦠no one there. 6/
14.01.2025 16:11 β π 3 π 0 π¬ 1 π 0
As a totally blind person, TfL left me without the assistance I asked for, in unfamiliar stations after dark β a journey between 8-9pm. 5/
14.01.2025 16:11 β π 3 π 0 π¬ 1 π 0
Finding my next train, Iβm now on my way to a totally unfamiliar station to me, where there will now be nobody to assist. A quick pause here to shout out Geoff Marshallβs StationMaster app, which I used to at least give me an idea of where to head to exit the platform. 4/
14.01.2025 16:11 β π 2 π 0 π¬ 1 π 0
β¦ Where nobody is waiting to meet me. I wait a few mins, with no luck, and am forced to find my own way through a multilevel station. Iβm lucky β and I mean lucky β to have good mobility skills with my cane, and the confidence to ask strangers for help. 3/
14.01.2025 16:11 β π 2 π 0 π¬ 1 π 0
Firstly, Saturday night. I requested assistance on a 2-leg journey, changing at Willesden junction β a complicated station β, and heading to a station Iβve never used before. Assistance sorted, and Iβm on my way to Willesden. 2/
14.01.2025 16:11 β π 2 π 0 π¬ 1 π 0
As a disabled passenger, I had a weekend of appalling accessibility experiences with TfL. As per, let me detail them β not because this is how I enjoy spending my time, but because itβs vital, first and foremost for safety, that this improves, fast. 1/
(Edited 16:11 via @skeetsapp.com)
14.01.2025 16:11 β π 0 π 0 π¬ 1 π 0
I thought this went without saying: *pretending* to be blind is deeply offensive, and in no way improves the accessibility of services for people, like me, who so often find them difficult to access.
https://www.theguardian.com/business/2025/jan/05/barclays-mystery-shoppers-banks-pretend-blind-deaf
06.01.2025 13:32 β π 1 π 0 π¬ 1 π 0
Some lovely betwixmas news for us all π
βIn the longer term, Go-op has visions of low-carbon emission trains, a car-sharing platform for passengers, and even expansion to other stations in Somerset and Devon.β π
27.12.2024 08:12 β π 3 π 0 π¬ 0 π 0
Salt in the wound obviously being that this will likely be our last Christmas together, and being reminded of that on Christmas Eve was⦠perhaps not exactly what I wanted or needed. The humanity in understanding guide dog partnerships feels missing. 8/
24.12.2024 11:29 β π 3 π 0 π¬ 2 π 0
I recognise that written down, this looks like an extreme reaction to something which isnβt a big deal. But for something as emotional, and as strong, as a guide dog partnership, would it be so much to ask to not have to repeat the details of its upcoming end, to new people? 7/
24.12.2024 11:29 β π 3 π 0 π¬ 1 π 0
There are assigned team members for a guide dog partnership β the person at Guide Dogs who I can specifically reach out to if I have any concerns, and the person with whom the discussions around Laceyβs retirement and next steps have been had. 6/
24.12.2024 11:29 β π 2 π 0 π¬ 1 π 0
Not their fault, of course, but they begin to feed me the generic lines about dog retirement β that dogs can usually work until theyβre a little older than Lace is now, etc, etc. I had to re-explain that no, these discussions and processes have already started. 5/
24.12.2024 11:29 β π 0 π 0 π¬ 1 π 0
Except, yes β a problem. Someone totally unfamiliar calls from Guide Dogs. They have no idea about Laceyβs upcoming retirement, or about the context of the discussions which have already taken place. 4/
24.12.2024 11:29 β π 0 π 0 π¬ 1 π 0
Today, on Christmas Eve, Guide Dogs call to book in a regular aftercare visit with Lacey. They undertake these throughout guide dog partnerships, to check in on us and make sure everything is working well, the dog is well looked after, etc. No problem. 3/
24.12.2024 11:29 β π 1 π 0 π¬ 1 π 0
Clearly, quite an emotional thing, the retirement of my first guide dog. Not something Iβm at all looking forward to, but have (I think) come to terms with. 2/
24.12.2024 11:29 β π 1 π 0 π¬ 1 π 0
I canβt quite believe this. For those who donβt know, Lacey, my guide dog of a little over 7 years, is heading for retirement in 2025, as agreed with @guidedogsuk, after a working life which has taken us through university, overseas, and anywhere and everywhere in the UK. 1/
24.12.2024 11:29 β π 10 π 0 π¬ 1 π 0
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