In Sympathy with the Beleaguered UK
A failed response to ME continues to play out in a country with a venerable legacy of ME research
The fate of ME in the UK has been a tragic saga since 1970, and a new development suggests the tide has yet to turn. Young women with severe ME are dying of medical neglect in England in the 21st Century. Why?
hillaryjohnson.substack.com/p/in-sympath...
26.02.2025 20:33 — 👍 12 🔁 8 💬 0 📌 2
Music geek. Healthcare worker and nature lover, because we all need a good life. Author of “Samantha’s Voice.” The young girl who tackles the fentanyl crisis and kicks some terrorist ass!!
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Berkeley professor, former Secretary of Labor. Co-founder of @inequalitymedia.bsky.social and @imcivicaction.bsky.social.
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Recovering Lawyer. President, @chkbal.bsky.social. Host of the "George Conway Explains It All to Sarah Longwell" podcast on @thebulwark.com.
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Deputy news editor, Science magazine. Infectious diseases, global health, scientific integrity, science policy. Based in Amsterdam. Cat lover.
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Retired 🪷 Grandmother • 3 chronic illnesses since early 2020 🥄 #longCOVID #ESKD #IgGdeficiency 💙 Volunteer at @renegaderes 🥩 animal-based keto ♿️ amputee
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Leider nun auch #mecfskid Familie.
Weiterhin überall mit Maske unterwegs.
Große Liebe für Bücher, Stoffe, Schokolade und Katzen ... und alles in BLAU.
Nordisch by nature.
Interests: Civility | Democracy
| Long Covid | ME/CFS | MCAS | Autism | PDA | Alexithymia | Repost/Follow/Like doesn't imply endorsement
pissed-off & no-spoons w 20+ yrs #MECFS, #FM, #Lyme & Co #LongCovid #MillionsMissing 🌻 #RepoRights 🌻Art 🌻 Former flak USPS & The Phillips Collection 🌻 F#ck Mitch McConnell
Artist, researcher. Anthropology, experimental archaeology, painting, sculpture, visual communication. Slowed but not entirely stopped by ME/CFS. Ottawa, Canada.
Severe ME after covid infection Feb'22. Young dad. Bedbound. 🛌 #MillionsMissing #pwME #ThereForME #GreatestMEdicalScandal #PEM 🇬🇧🇲🇫🇪🇦🇧🇪
Severe ME/CFS patient since 2006, fundraising for the Open Medicine Foundation, all proceeds from all sales go directly to OMF, Worldwide shipping🩵
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Long term living with ME (over 30 yrs)
Have a lot of crashes but
Still trying
Still hoping
Largs, Scotland
Love crafts, history, stories, natural world & spending time with husband, children, family & friends. When M.E /CFS & POTS doesn't stop me - which is most of the time right now. Usually found in a dressing gown. Devon, UK ♿🌿🏳️🌈🏳️⚧️🇺🇦
Advocate for Myalgic Encephalomyelitis per ME-ICC and Ramsay/Dowsett/Hyde et al.
Severe M.E. since 1989.
Supporter of meadvocacy.org and nightingale.ca
