right now, I'm surviving on mutual aid. without it, I don't have a way to meet my basic needs or stay safe while I'm this sick.
if you're able to help or share, it makes a real difference in whether I can keep going.
#NEISvoid
๐ธ๐
@camillesonwheels.bsky.social
AuDHD, hEDS & co, ME/CFS They/them Queer Mostly housebound, but I love a vintage dress when I make it out. Still masking Profile pic ID: Selfie of Camille, a white femme with red braided hair, smiling with an orange cat on their lap.
right now, I'm surviving on mutual aid. without it, I don't have a way to meet my basic needs or stay safe while I'm this sick.
if you're able to help or share, it makes a real difference in whether I can keep going.
#NEISvoid
๐ธ๐
A collage post of Noelle "the face behind the etsy shop Nowhalle". The top right photo has Noelle, a white person with blonde hair and glasses, standing outside with her underarm crutches. Her shirt says "the future is accessible" The bottom left photo is Noelle balancing on her forearm crutches with her legs extended into a pike position in front of her. She is wearing a short light blue dress. There is a cartoon whale in the bottom right corner and it says Nowhalle.Etsy.com underneath
A blue circular sticker with a wheelchair symbol and the words "not all disabilitites are visible"
A small spoon-shaped sticker decorated with the disability pride flag colors
A sticker with yellow, pink, and red flowers that says "grow through what you go through" underneath the stems
Nowhalle.Etsy.com is 20% off (until 11:59pm EST)!
I am a #Disabled #Creator who sells #Stickers & #Buttons for #ChronicIllness, #Spoonies, #Disability, & #MentalHealth
You'll find #DisabilityPride, #Awareness, & #MedicalAlert!
SHOP NOW! BIGGEST SALE UNTIL THE HOLIDAYS!
#CreatorLift #NEISVoid
Itโs never too late to start masking again!!
28.07.2025 16:30 โ ๐ 2 ๐ 0 ๐ฌ 0 ๐ 0๐ฉต
25.07.2025 14:04 โ ๐ 1 ๐ 0 ๐ฌ 0 ๐ 0I like NuGo bars! The dark chocolate pretzel flavor is my favorite. Definitely my most consistently eaten food
25.07.2025 14:04 โ ๐ 1 ๐ 0 ๐ฌ 1 ๐ 0Feeling really discouraged trying to refill my cromolyn RX. The pharmacy keeps canceling my orders because they havenโt gotten new stock. Itโs been at least 2 months of trying to get refills, and I would like to not have to ration my medication and also hopefully be free of pressure hives
#NEISVoid
Help Mori get the supplies they need to be able to recover from this ME/CFS crash! They havenโt been able to post as much because of their severe crash, so itโs extra important to share their post for visibility
#ChronicIllness
#Disabled
#MutualAid
#NEISVoid
On my first day back
my colleague asked
what my secret is,
for whenever he travels
he winds up getting sick
but that never seems
to happen to me,
so I pointed to my mask,
and I could tell right away
this wasnโt the explanation
he wanted.
It shouldnโt be considered radical to believe that every human life has value.
It shouldnโt be controversial to say no one should have to prove their worth.
It shouldnโt be divisive to fight for a basic income, healthcare, education, food and housing for all.
People have no idea how hard it is to be a complex chronic illness patient.
They always think they will be the exception.
That we arenโt trying hard enough.
That help exists but we donโt want it.
There is no help.
Many of these conditions have no cure & few treatments. ๐งต
Glad to hear youโre not having surgery again so soon!! Hope youโre able to get some good rest at home and the antibiotics help quickly ๐ฉต
10.07.2025 22:04 โ ๐ 1 ๐ 0 ๐ฌ 1 ๐ 0Itโs so hard to get abled people to understand this! Like yes, I want you to see and understand the hardships, but I donโt want your pity, I want your anger on my behalf! And then I want you to use the anger to do somethingโstart masking again, advocate for clean air, start a meal train, etc.
10.07.2025 21:20 โ ๐ 3 ๐ 0 ๐ฌ 1 ๐ 0Having one of those days where I simply cannot get a handle on spatial awareness. Iโve grazed so many walls with my wheelchair in the last 10 minutes
10.07.2025 20:14 โ ๐ 5 ๐ 0 ๐ฌ 0 ๐ 0Definitely introverted to start, but I feel this. Itโs so much harder to connect with people when it takes so much energy for us! I also struggle with feeling like thereโs not a lot of common ground when I try to talk to people who canโt fathom chronic illness
10.07.2025 20:00 โ ๐ 1 ๐ 0 ๐ฌ 1 ๐ 0So sorry youโre dealing with this right now ๐ฉต I hope theyโre able to treat you quickly so you can get back home and resting as quickly as possible
10.07.2025 19:50 โ ๐ 1 ๐ 0 ๐ฌ 1 ๐ 0PSA: Thereโs a difference between wearing a mask or respirator & wearing a gaiter or face covering to disguise identity. Itโs important to discern & communicate this nuance because if you donโt, you might encourage elected officials to ban masks for everyone, which would be a public health disaster.
10.07.2025 17:17 โ ๐ 1913 ๐ 551 ๐ฌ 30 ๐ 18Mori is recovering from an ME/CFS crash and needs money for meds, food, and phone plan. Theyโre severely ill and need supplies to get out of this crash
Please share and contribute!
#ChronicIllness
#Disabled
#HelpSky
#NEISVoid
an image that shows my phone plan on Mint: "You're in month 11 of 12 Plan Ends Aug 12, 2025 Renewal Amount $180 Renewal Balance ($0) Amount Due $180 Make payment"
a tabletop medical setup with various health supplies arranged in a neat layout. items include multiple bottles of supplements and medications, several blister packs of pills in ziplock bags, a container of Soylent powdered food, a large bottle of Germ-X hand sanitizer, a box of Equate fragrance-free everyday clean wipes, a pack of Xfire commode liners, a tissue box, and a box of disposable nitrile exam gloves. the items are placed on a wooden table with two dark wooden chairs in the background. the overall scene suggests preparation for managing chronic illness and caregiving.
(made by @chronicallyfab.bsky.social) a graphic with a gradient blue-to-orange background titled "Mutual Aid Request." it describes Moriende (me) as severely disabled and bedridden with ME/CFS, receiving no physical or financial support. the text requests urgent donations for medication and essentials, encouraging people to contribute with the note โFor Mori,โ sign up for monthly donations via Ko-fi, and share the image. listed payment handles are: CashApp: $kookysnell Venmo: @kookysnell PayPal: paypal.me/belzomalsh ko-fi: ko-fi.com/moriende a circular image of a simple, smiling cartoon cat face appears in the bottom right corner.
a fluffy long-haired cat, Daphne, lounges contentedly on a crinkled plastic bag. her body is curled with her paws tucked in, resting on a chair. the bag beneath her appears semi-translucent and slightly rumpled, catching some soft indoor light.
hi!
my July goal is $969.49.
it includes the rest of June since that goal was not met!
we've raised $270.51.
this is for meds, supplies, & $180/yr phone plan (due soon).
anything helps.
CA: $kookysnell
V: @kookysnell
paypal.me/belzomalsh
ko-fi.com/moriende
#NEISvoid
#disabled
Thinking of you and hoping youโll be back to baseline soon ๐ฉต๐ฉต
08.07.2025 18:31 โ ๐ 1 ๐ 0 ๐ฌ 1 ๐ 0Disabled people have been screaming about fascism for years.
We screamed when the government rushed โback to normalโ with respect to Covid & said we would be left by the wayside.
We screamed about mask bans.
We pointed out that pandemics historically lead to fascism ๐งต
Congrats!! I hope it goes well ๐
07.07.2025 21:40 โ ๐ 1 ๐ 0 ๐ฌ 0 ๐ 0Boycotting is a privilege.
Prepping is a privilege.
Protesting is a privilege.
Leaving the country is a privilege.
Not all solutions are accessible to everyone.
We need robust community care to ensure people arenโt left behind.
โOnly the vulnerable die of Covidโ
โGenuinely disabled people wonโt lose Medicaidโ
โHow many comorbids did they have?โ
โDisabled people are stealing my tax dollarsโ
These are all eugenicist talking points.
Disabled people are not expendable.
Theyโre conditioning you to accept atrocities.
Many disabled people canโt โshop localโ
Weโre housebound and often bedbound.
We lack disposable income.
We have huge medical and caretaking expenses that wipe out discretionary spending.
Instead of shaming us, help us. Take us to the store. Donate to mutual aid. Shop for us.
Every week someone tells me they had to put Covid aside to focus on bigger issues like fascism. The thing is, eugenics and fascism go hand in hand.
Historically pandemics have ignited fascism & normalized eugenics & indifference
One of the most straightforward, radical, life affirming actions you can take right now is wearing a K/N95 mask. Community care & self care rolled into one easy act. Show up for yourself and your neighbors.
03.07.2025 18:53 โ ๐ 271 ๐ 115 ๐ฌ 1 ๐ 7They vowed to โMake America Healthy Again.โ
Instead, they:
Kicked millions of people off health insurance
Closed hundreds of hospitals, nursing homes, and reproductive health clinics
Cut billions of dollars from science research
Fired government scientists and replaced them with antivaxxers
Absolutely. Sometimes even being around the most understanding people can highlight the differences. Solidarity
01.07.2025 22:51 โ ๐ 2 ๐ 0 ๐ฌ 0 ๐ 0The UK just voted to slash disability benefits, while they prepare to roll out an Assisted Dying program
The US just voted to slash Medicaid & food assistance
Canadaโs disability benefit is out of reach for most
This is ableism & eugenics. Nowhere is safe for disabled people
As disability pride month starts up, this is my reminder to everyone that you should still be masking. Masking helps keep people safe and helps people who wouldn't regularly be able to join folks because of health concerns welcome in the community spaces we share.
01.07.2025 17:14 โ ๐ 26 ๐ 19 ๐ฌ 0 ๐ 2